Have Hashimotos for 11 years,been ill for 9 mon... - Thyroid UK

Thyroid UK

137,137 members160,815 posts

Have Hashimotos for 11 years,been ill for 9 months since going hyper.Every time I increase dose of thyroxine just a little, I feel worse and

susiebow profile image
6 Replies

tsh lowers to 0.11 ,0.06 .I feel very jittery and hyper at this .

When I lower dose ,I feel terrible as well and TSH rises only a little to about 0.85,still feeling awful,cant stay on same dose for longer than 5 weeks.I do get the odd day when I feel a lot better although something has lifted,but still not right,I think this is me getting better ,but then feel terrible again.I have felt like this for 11 years but not as bad as I do now, everything has got worse,barley can go to work.

My t3 is 5.2 t4 19.2 ,so ok.How much longer will I feel like this and how can I feel better?

Thanks for reading

Written by
susiebow profile image
susiebow
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Clutter profile image
Clutter

Susie,

Have you ever tried to add in a little T3 instead of increasing your T4?

susiebow profile image
susiebow in reply to Clutter

Hi Clutter ,scared too as I dont like to have suppressed tsh as can feel hyper easily.I thought t3 would do this.

PinkNinja profile image
PinkNinja in reply to susiebow

T3 may help in the long run but it isn't going to help if any of the above tests (suggested by Reallyfedup123) are lower than optimal. Getting those things sorted out first is important and will help if you do ever need to add t3.

Clutter profile image
Clutter in reply to susiebow

Susie, TSH doesn't always suppress TSH and suppressed TSH doesn't mean you are or will become hyper. FT4 would have to be high above range too, and if this was the case would point to over medication rather than being hyper.

As RFU and Carolyn have said, you need to sort out your vitamins and minerals before making changes to your thyroid medication.

susiebow profile image
susiebow

No he doesnt know what to do,but I will ask him ,thanks

PinkNinja profile image
PinkNinja in reply to susiebow

All of the above can affect how your body is and responds to thyroxine. It is important to get them tested if you can. Low iron/ferritin particularly can cause this but the others are important too. I hope your doctor will test them.

Take care

Carolyn x

You may also like...

Feel like I am going mad - no change in dose for 7 years

change in dose (25mcg levothyroxine) since this time. The only thing I can think of as to why my...

Have been feeling progressively worse on ERFA and have just ordered some Naturethroid. Why?

Something feels wrong. I haven't taken any today because I can't face it and am already feeling a...

Diagnosed with Hypothyrodism in July and have gradually been increasing my Thyroxine monthly.

Thyroxine and have very slowly began to feel slightly better. Earlier this week I had a period which

It's been a year since i've posted and i'm progressively getting worse. I do have a question regarding flu shot/antibiotics?

measly and terrifying barely at 100, 98 .lbs and still losing. I suspect celiac and/or SIBO have...

I have been under active for 4 years now on levothyroxine 3 months ago my dose was

years now on levothyroxine 3 months ago my dose was lowered from 200mcg due to pulpitations to 150...