We were called to a meeting by the chief executive of the NHS Trust i work for today, regarding an upcoming hospital inspection from the Care Quality Commission. The overall theme of the meeting was about nurses, midwives and care workers ensuring they provide the 'best care experience' to our patients and their families under the principles of Care Respect Responsibility and Communication. This included care our 'our own'.
I was once a patient of my own Trust. One visit to an endo, who i pinned my hopes of some effective treatment, but which resulted in the usual garb of " your depressed". Your continuing low levels of ft3 are "low but a stable normal" Discharged...end of care episode. The care was disgraceful.
This has troubled me greatly since along with the knowledge that most of the GP's working in the surrounding areas of the hospital , will only test TSH. I find it distressing that i talk to others who feel unwell and guide them but who wont fight and be their own advocate...their docs know it all and im a maverick.
Ultimately...who IS responsible for all this? Can i blame my endo when we know all docs are singing from the same song sheet from the training they receive? How much is she to blame? Should i be writing to the Trust to complain? Will it help or change anything or will it just make me feel better psychologically having off-loaded?
I still feel rubbish and am preparing myself to start NDT with my T3. After a very stressful few months my adrenals are shattered again so have upped my supplements. I have blagged a full panel of bloods off my GP as feel he at least owes me that (he doesnt know what to do with me). I will post again when the results come back.
I am also sorry to not be around much....i am letting apathy get the better of me again.......
I have decided to write to the GMC about my experience so far......I f anyone has any research papers which i can use to support my complaint...id be very grateful Hugs sent to all.... K x