Am I entitled to a copy of the letter my endo h... - Thyroid UK

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Am I entitled to a copy of the letter my endo has sent to my GP?

Mickeydooley profile image
8 Replies

A couple of months ago I was sent for blood tests by my endo. After 4 weeks with no word I contacted the clinic to be told the endo hadn’t yet written to the GP but she phoned me the following day to tell me my results. TSH 0.01 and FT4 10 (12-22). I expressed surprise that they were intending to keep me on my current dose of meds given that my FT4 was under range but she said my T4 levels weren’t important. Since I’m on t3 trial I asked what my FT3 level was but she told me that it hadn’t been done and that since my TSH was suppressed there was no need to do it. I’m afraid she caught me at a bad moment and I told her I wasn’t impressed by the clinic. I have only ever seen the same endo twice (have been going for 2 years now) so there is absolutely no continuity of care and although they ask me each time what my symptoms are they totally disregard anything I say so not sure what the point is! She offered to send me for t3 test but I told her there was no point as I keep a check on my own levels by private testing. All in all it was a pretty tense conversation. Usually I receive a copy of the letter which is sent to my GP but so far have received nothing. I considered phoning the clinic to ask for a copy but want to check first if I’m within my rights? I have ALWAYS received one in the past and am now getting slightly suspicious about what has (potentially) been said to my gp.

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Mickeydooley
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8 Replies
Hibs1 profile image
Hibs1

You are entitled to a copy of the letter. It's your letter about you. You can after all get copy of your notes

Mickeydooley profile image
Mickeydooley in reply toHibs1

Thanks.

SeasideSusie profile image
SeasideSusieRemembering

Mickeydooley

My lung consultant always sends me a copy, or writes to me separately, following an appointment. I'm no sure if this is because my first appointment with him was private and then he transferred me to NHS.

If you've always had a copy in the past there shouldn't be any reason not to send you a copy this time unless (1) the letter hasn't been sent yet or (2) your copy has just been omitted.

If I were you I'd phone your GP's surgery and ask if they have received the letter yet. If so just ask them to give you a copy, they can do that, it doesn't have to come direct from the consultant.

Mickeydooley profile image
Mickeydooley in reply toSeasideSusie

Thanks for your reply. I don’t mind contacting the clinic. Its easier than getting through to the surgery tbh.

shaws profile image
shawsAdministrator

It is so frustrating when you get that kind of response from the professionals. It's no wonder why we are surprised that we seem to consult with someone who has no idea where or what the thyroid gland is supposed to do. They seem to have no idea that it has to run everything in our body from head to toe! Brain and heart contains the most T3 receptor cells.

silverfox7 profile image
silverfox7

Sorry Horsey but thank you to Helvella for letting you know.

Mickeydooley profile image
Mickeydooley in reply tosilverfox7

Hi. I’m not sure if I’ve missed a reply here but don’t understand your comment

silverfox7 profile image
silverfox7 in reply toMickeydooley

Sorry no, you have t missed a reply, I was sayin a thank you as mine had been passed on within the thread

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