Thyroid UK
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Endo appt today

Well......that was a waste a time!! Saw Registrar who knew nothing! Only interested in my TSH and recommended reducing dose (of course, why didn't I think of that). I pointed out that just because TSH was low (only just under range) didn't mean I needed to reduce. Showed him that my FT4 was mid range and FT3 low in range - not over medicated at all and I was not going to reduce. Said I had been very stressed over last few months and thought that was why FT3 lower than previously. He then said that even on low dose levo (I take 50/75) that could be too much and so make me feel TIRED!!! WTF...what are they teaching them!!

I ignored this and asked whether he had any ideas for reducing fairly long term stress and he said I would know better than him as I'm a clinical psychologist - thanks for nothing. Why do we bother??

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Can you email me details of this endo please - louise.roberts@thyroiduk.org.uk

Thanks

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Ha ha! You've got to love these endos, haven't you! Not a single clue!

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Surely, they should be reported for total lack of knowledge, the wages they are on, total waste of time, thank heavens for the few knowledgeable endos out there.

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Sounds familiar!! 😕

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I saw an endo privately. He wanted me to gradually reduce my levo from 200mg to 50mg because of my low tsh. He described levo as being a caffeine-like drug and said I'd needed a higher and higher dose because I'd got used to it - he made it sound like an opioid drug! I actually paid for this!

I've since had a DIO2 gene test which showed I had trouble converting t4 to t3. I've since been prescribed t3 by my gp and it's made all the difference.

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problem is T3 is being banned and DIO 2 test is not recognised by the NHS

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My last endo appointment was such a farce. We waited 75 minutes for the clinic to start after my appointment time as he 'didn't know he had a clinic'. I then didn't even get to see him as he sat in a room at the computer whilst I spent 20 minutes explaining the whole sorry tale to the registrar who looked a bit rabbit in the headlights. I was not going without saying my piece. Eventually realising that he was out of his depth I then spent another 20 minutes trying to get an action plan from the consultant. His only suggestion was that I have a blood test, now 4pm and so no chance, He had no suggestions for me not converting and having FT3 in my boots etc. We both vowed that never ever again unless I was unconscious and my OH was desperate.

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I can see it now, going back to square one.............going to the butchers and begging sweetbreads, fishing out the thyroid glands, spinning 'em up into a smoothie and down the hatch! That's how myxodoema was originally treated until it was made into pill form. Where's that vomiting smiley when you need it? :D

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You may joke - but I have given serious consideration to it, to be honest. :D

Unfortunately I've never cultivated a good butcher, I just use supermarkets, so I have no idea where I might get thyroids from.

And I do wonder whether your average high street butcher (the few that are left) would have pig thyroid or cow thyroid delivered with their meat supplies.

Perhaps we need to get friendly with slaughterhouse staff instead!

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Unfortunately the thyroid gland is removed in the slaughter house and cannot be used for human consumption. Same as chitterlings (scrubbed small intestines) and in Britain, blood. This is not true of slaughterhouses in other countries.

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