Hi there, I've been given the official diagnosis by my GP today that I have hypothyroidism and he has now started me on levothyroxine - 25mcg a day in the morning.
He says that my case is quite unusual as to how the underactivity has all come about, and I'd like to know if anyone else has had something similar.
So the first ABNORMAL blood test that started the investigations off was back in November 2011, where my TSH was high - 5.2 with the previous clinic's range between 2.0 and 4.2. T4 was 16.48 but I can't remember the range for that I'm afraid. At this time the GP I was previously with did not start me on any treatment and simply told me not to worry about the result, i.e. adopt a 'do nothing' approach.
The months go on and another blood test came back NORMAL, despite me experiencing symptoms such as tiredness and muscle aches. I knew something was up. I changed doctors as I didn't feel able to ask for an antibody test as they might've thought, "what does she know?" kind of thing.
So I change clinics and the first blood test that was done specifically asked for antibodies to be tested. What do you know, they were raised at 84 KIU/L with the normal range 34 KIU/L or under. The doctor pointed out that SOMETHING was definitely going on and for me to come back if I felt any worse. She also said for me to undergo a retest in 6 months.
Things got weirder for me still - periods were consistently brown and black and were either early or late, never on time. Tiredness got worse and I took naps during the day. I consulted a GP in the middle of May and she suggested I have the retest much sooner than the agreed 6 months. I had the blood test done the following week, again to check for thyroid antibodies but also the TSH, T4 and a whole lot of other things that could contribute to tiredness, so I had LFT, glucose, plasma and iron tested.
The GP came back to me today and noted that the TSH was high and the T4 low. Ranges I don't have for which I apologise as this was all discussed on the phone and I could ask for the definite amounts at reception, thinking in hindsight. He tells me that although the thyroid is underactive, the brain is demanding more T3 and T4 than the thyroid is churning out. Not only that, but to go from a blood test done 3 months ago that came back with the TSH completely normal with the antibodies being high to all of a sudden a high TSH and low T4 is, well, in his words, unusual. I had an MRI done on my head/neck back in February last year to check for abnormalities in the pituitary so it can't be a pituitary problem, can it?
I always assumed I had Hashimoto's, but if the brain is demanding more T3 or T4 than my thyroid is producing does that mean it isn't autoimmune and is nothing to do with Hahsimoto's?
I've taken the news pretty well as I always knew something was wrong and I never felt that right, but if anyone could help me out with this I would be very, very grateful.