Hi I'm due to see an endocrinologist on Monday for the first time, referred from my gp, due to fatigue, weakness, pains, pins and needles, tingling in feet, hair loss etc. I have vit D deficiency +on medication. My Vit b12 levels continued to fall but still in range but dropped on 3 separate occasions lowest been 243. I saw a locum doctor who prescribed Vit b12 injections +after 2weeks started to feel a little better but my normal gp, I feel wasn't happy that I had injection+so has now referred me to see consultant. I got some bloods done private again so I have some results to take to my appointment
TSH 4.52 mIu/L (0.27-4.20)
Free thyroxine 13.5 pmol/L (12-22)
Total thyroxide( T4) 68.6 nmol/L ( 59-154)
Free T3 4.38 pmol/L (3.10-6.80)
Thyroglobulin antibody 136 IU/ml (0-115)
Thyroid peroxidase antibodies 42.2 IU/ml (0-34).
Foliate 6.82 ug/L (2.91- 50)
I had a vit b12 but this was taken a few weeks after my injection 121 pmol/L (25.10-165)
I know my TSH and antibodies are slightly above range, do you think the consultant would/should do something+will they acknowledge these results. Also is there any advice if he won't do anything.
Thank you for reading
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vicks05
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He certainly should do something - you have Hashi's - although he will probably call it Autoimmune Thyroiditis - or maybe deny everything! - and you are hypo with a TSH over 4. But whether he will have the correct knowledge or the right attitude is anybody's guess! Nor will he recognise your low B12, because it was 'in-range'. Personally, I wouldn't recommend any hypo see an endo, because they seem to be less and less knowledgeable and have worse and worse attitudes. But, who knows! You might hit the jackpot with this one!
If he won't do anything, come back here and let's think again. But, I would say that it was a no-brainer that your fatigue is due to your low thyroid and pins and needles due to your low B12. But, then, I'm not a doctor!
They nearly all are. Thyroid just isn't interesting enough for them, for some reason. I would have thought it was far more interesting than diabetes! But, perhaps that's because I'm hypo and don't have diabetes!
Most endo's never seem to consider at all the importance of vitamins levels or how badly gut can be affected by Hashimoto's
Did you get your vitamin D retested after loading doses? It was extremely low before supplementing Are you still taking a maintenance dose, if so how much, plus recommends magnesium and vitamin K2
Private testing of vitamin D, including free vitamin D supplements
Thank you for the information. Yeah I got it re-tested +it had come up I was on 60,000 a week now I'm on 800iu a day. I started taking the vit k2 mk7 but have stopped as my stomach bloated badly+was extremely hard, not sure if it was related, I might try again +if it does happen then stop
800IU per day is too low. You want to keep your level around 100nmol/L and this level of supplementation won't do it especially in winter simply because you have been severely deficient before.
You will very likely find at the end of next year you are severely deficient again.
Unfortunately the NHS rations vitamin D tests so you are going to have to pay for your own. The cheapest sole vitamin D tests are City Assays. They cost £28 and are finger prick tests you do by post.
Personally I would up your dose to the equivalent of 2000-2,5000IU per day then concentrate on sorting out your B12 and folate problems. You can test your vitamin D next year.
Btw you don't need to talk to your doctor about your vitamin D again unless you have symptoms as many CCGs are not giving out prescriptions for maintenance doses.
Your folate is low in range. I suggest you go over to the pernious anaemia society on healthunlocked. Ask them questions on B12 and folate stating your results, the symptoms you have and the treatment you have been given.
Once you have seen the endo come back here and start a new thread with an update. Posters here will give you advice on what worked for them as it is extremely unlikely the endo will help you. It is more likely they will upset you and/or p*ss you off.
Thank you. Yes more than likely. I was in tears during one consultation with a doctor, more through frustration as he wasn't listening or taking on board anything I was saying +constantly saying I had chronic fatigue syndrome
It was a locum doctor a saw, he didn't want to know regarding my thyroid and wasn't too keen on b12 but I spoke through the guidelines + showed him stuff I had printed off. He agreed to vit b12 injections +ordered some bloods but my normal gp said they wouldn't do bloods+therefore has now referred me to see an endo
Sadly it is often the case. What a shame they do not realise there is a connection between the two endocrine conditions. Bet they do not test their diabetic patients for thyroid issues correctly. An untreated or under-treated thyroid can lead to diabetes I have read ....
The PAS is recognised and provides information to health professionals so don't be scared to tell him that you only consulted your GP after contacting them. If he puts PAS down then you know he's not worth bothering with.
If your supplementing or injecting B12 then also taking good vitamin B complex will improve folate and keep all the other B vitamins in balance
But when taking vitamin B complex, or any supplements containing biotin, remember to stop these 3-5 days before any blood tests, as biotin can falsely affect test results
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