Laxido pain

[Shopnow1]

Hi

I have been on here before with same old problem slow transit bowel and severe constipation which last three years have been a nightmare !

Anyway dont like taking Laxido because of nasty side effects but unfortunately on it again because the only thing that works. However this time round am going to the toilet without difficilty

( Hooray! ) AND only taking 1 satchet daily BUT the last few weeks after going have the most horrendous pain in my stomach which lasts most of the day .

Is this normal when using Laxido ? just wondering other peoples experiences

[azaelea]

I am having low abdominal pain now, having taken one Laxido sachet for the last 3 days but only managing very small amounts although I keep feeling I need to go. This happens all the time. I have very bad Diverticulitis and what I’m sure is IBS but hasn’t been diagnosed with IBS. After going to the toilet I have abdominal pain and I have it most times during the day and always wake up with it all over tummy in morning. We are not alone I believe. Wishing you well.

[Shopnow1 in reply to azaelea]

Im sorry to hear youre in pain too but it is a relief to know Im not on my own ! It really gets you down doesnt it ! Thank you so much for your lovely reply

[azaelea in reply to Shopnow1]

I so agree, it really gets you down. You’re never free from tummy pain one way or another and doctors don’t seem to want to know about IBS or Diverticulosis. Just leave you to get on with it or give medication that causes other problems.

[heartmatters1 in reply to azaelea]

I too have severe diverticulosis & constant stomach pain, which is worse in the morning. Just wondering if you get any other symptoms, such as weak & aching muscles, mainly in the thighs? Also generally feeling crap (pun intended!) 😅

[Shopnow1 in reply to heartmatters1]

Feeling crap is the mantra of my life ! Ive had several scans over the years but never been able to get a full report . I am convinced I have Diverticulosis aswell but never been told this officially and also get pain in thighs but this usually relates to when Im backed up

[azaelea in reply to heartmatters1]

Ha,ha I like your pun! I can’t say I have weak and aching muscles but I have all sorts of symptoms as I also have a blood cancer, Essential Myelofibrosis which has numerous side effects to medication. I do wish I could go back to feeling well, I am in my 80’s so shouldn’t grumble! Best wishes

[Shopnow1 in reply to azaelea]

Bless you hearing all your problems I guess I should feel grateful ! ( very hard though when the loo rules your life !! ) AND you grumble away nothing like having a good old moan. Take Care

[Edgar77 in reply to heartmatters1]

Dear heart matters I have celiac disease IBS. Also recently diagnosed with fibromyalgia. It is worse in the morning and I told doctors I ache all over a d I haven't done anything!!? You have mentioned some similar symptoms so it may be worth looking it up. Good luck. (It was a rheumatologist that diagnosed me)

[heartmatters1 in reply to Edgar77]

Thanks for your reply. I did wonder this myself, as when I researched symptoms it does say that a high percentage of IBS sufferers have fibromyalgia too. I have a private consultation coming up with a gastroenterologist soon so I will mention it to him.

Ps - meant to ask - do you get any dizziness or headaches?

Best wishes

[Ambazac in reply to heartmatters1]

Yes and never associated with Endo

[Gwelos in reply to azaelea]

Sorry to hear of all the pain you have and others who have posted. There’s a lady in Ireland who has The happy Tummy company. She herself has Ibs and has successfully treated it with her bread making. Her website is worth a look at and some YouTube videos she has made with The Doctors Kitchen.

thedoctorskitchen.com/podcast

Search Karen on the website

Hope it helps

[Chocolate41]

I have been taking Laxido fora few yrs.Now when I take it every time I pass urine I pass a very thin poo that floats.Its a nightmare if you want to go out.

What Ihave to do is use a suppository to clear my bowel out.

Does any one else have to do this.?

[Shopnow1 in reply to Chocolate41]

I dont experience that but I fully endorse the unpredictability and it has stopped me going out quite a lot of late which has affected my confidence and increased anxiety .

[Hylda2 in reply to Chocolate41]

I too have the very thin floating stool. Have stopped going to walking club and know every loo in a five mile range

[Angie11 in reply to Chocolate41]

I also have to use a suppository to clear my bowel ( daily).

[Chocolate41 in reply to Angie11]

Suppositories work for me as well but concerned my bowel will become lazy.Only use the glycerine ones.

[Beakybird58 in reply to Chocolate41]

I have a large rectocele- so I use suppositories and then douche large quantities of warm water up my butt. Gives me dreadful pain.I also take cosmocol( similar to laxido) and senna nightly. It puts me off eating and going out. I have to get up really early if I have a morning appointment as it sometimes needs doing more than once. This constant feeling of wanting to go is awful.

I’m having a silicon vaginal pessary fitted on Friday… after a lot of badgering doctors secretaries etc.

failing that I want a posterior vaginal repair. But waiting lists are long and they will do anything to avoid surgery.

I take buscopan for the pain- helps. A bit. I wish you well. X

[Beakybird58 in reply to Beakybird58]

Ps- I have a very slow transit time due to years of having to take opioids for back& neck problems ( had 3 ops on neck)

They tried me on moventig.. it’s a bowel opioid blocker but that gave me even worse pain. Ive been offered the other drug down but am dubious to try because of side effects.

[gussmithy]

I use 2 suppositories together most days which helps with my constipation perhaps 70% of the time. No longer take Laxido or other laxatives which make the bowel lazy and can have long term effects. If bad constipation then a dose of Milk of Magnesia last thing at night works. Doesn't mean this regime will work for you. Hope you do get some relief.Tap on a clip to paste it in the text box.

[gussmithy]

Sorry ignore last sentence my reply....

[Spaceboy_60]

Laxido causes me pain every time I take it and gas. Try to avoid it where possible

[Krisbetty]

Gave up on laxido , but eventually saw a gastroenterologist and requested I wax put on linaclotide, what a difference still dont have a bm everyday but at least 2 times a week which is normal for me. I still get pain but not so bad now . But i also have gallstones and just been told i both my hips are really bad. So it could be transfer pains. Btw only gastroenterologist can prescribe linaclotide so push to see one.

[Angie11 in reply to Krisbetty]

Do you take the linaclotide daily, thanks.

[Krisbetty in reply to Angie11]

Yes one tablet 1hour before breakfast.

[Beakybird58 in reply to Krisbetty]

hi, did you suffer any side effects from linaclotide? I suffered badly from moventig. I shall try and email the secretary to see if she can prescribe. X

[Krisbetty in reply to Beakybird58]

None at all

[Beakybird58 in reply to Krisbetty]

That’s reassuring to hear! Thanks for replying.

[Beakybird58 in reply to Krisbetty]

Did you try moventig first? Am curious to know as it gave me dreadful gut ache- even worse than just laxido etc.

thank you for your reply, it’s always good to hear others experiences.

Take care. X

[Krisbetty in reply to Beakybird58]

Havent tried or heard of it, my dr said laxido can cause problems and in some people can make symptoms worse.

[Edgar77]

I take 1 sachet of fybogel a day. It helps but still not regular and lots of wind after every meal?? Embarrassing. So I can't even go to dentist and optician. Ect ect. Or long journeys. Like a 2 hour drive to my 2 sons. I'm heartbroken about that. Anyway the point I was going to make is I see fybogel as a high fibre drink NOT a drug.

[Shopnow1 in reply to Edgar77]

Thank you for getting back. I have tried Fybogel on and off worked much better when I was years younger but like you now makes me very gassy and similar with journeys . Had a terrible 18 months so no holidays this year. Specialists just seem to want to increase laxitives to the point you cant leave the house and yet to find one that really understands. Take Care

[Beakybird58 in reply to Shopnow1]

Hi, I felt the same with fybrogel, just adds to the awful wind both ways!

I found a fabulous gasto surgeon privately ( arranged all the awful tests on nhs.)

But they get the diagnosis but can’t do anything- unless you pay thousands… which I haven’t got!

The radiologist was great, he showed me where my rectum was pointing into my vagina- entrocele. Then saw gynaecologist who recommended a silicone ring pessary… to hold everything up! It appears that having two kids has ruined my pelvic organs!

Have seen a pelvic physio which was a good help, despite my worries, she’s been great and has got me doing pelvic floor exercises I didn’t think would work/ help- but they have a little. Baby steps

So now ring pessary Friday ( after a LOT of calls& emails) so 🤞it may help.

This laxative rollercoaster is no joke!

I hope you find a solution soon, it’s miserable not being able to go anywhere.

Speak to your Gp, and push for a solution ( pardon pun) goo luck 👍

[Starfush in reply to Edgar77]

I recommend hydration. Electrolytes are key you system needs to work. Ideally before but evens with lots of food it can still work after

[Dolly38]

Hi Shopnow1I have ST gut and severe constipation. I took have been prescribed Laxido by Gastro team. Plus had input from Pelvic team. Exercises carried out most days and also prescribed quifora bowel mini wash out thing which I hate using and only use occasionally. Laxido x 2 sachets advised to take at night but never know when this is going to become effective. Can be one or two days. I'm now trying a totally different approach and eat a plant based diet. Look up deliciously Ella!

So life is a trial at times as I'm also late diagnosis of Coeliac! So sympathise totally with your problem.

Best wishes

Dolly

[Shopnow1 in reply to Dolly38]

Dolly

Thank you for this.

I have also had input from Pelvic team but still keep getting impactions. My gut feeling (excuse the pun !) is its never been properly cleared. At my wits end with it all and totally with you very much a trial.

Kind Regards

[Hidden]

Hi yes terrible gut pain and rectal pain with laxido 2 sachets a day not sure where I would be without it though

I think it is best when taken with food I did it on an empty stomach today bad move

Life is such a battle, I also have IBS suspected SIBO and urinary issues to deal with

All scans come up blank and they just throw more medication at you that makes it worse

Oh well could be worse ..I think