Botox and colonoscopy

[RhiannonT]

Hi all.

If you read my previous posts you'll be able to see I've had bowel problems for years, but a bit of background. I'm female, 25 from Scotland. I have IBS-C, been getting gradually worse. I'm currently taking 290mg Constella. I have debilitating pain with bowel movements, blood and mucus in stools. Severe bloating (currently under gynaecology too as i think I have endometriosis or Adenmyosis, I've had a Laparoscopy but it wasn't carried out by a specialist and nothing was found) I've seen a private gynaecologist and he says I should push for another laparoscopy, but that's for a different sub. I also don't have much of an appetite as every time I eat I seem to feel sick. Anyway, I had a flexi sig done 2 years ago and they found an anal fissure. I was prescribed GTN, didn't fix it, as well as Diltiazem, didn't fix it. I saw a bowel consultant on the 18th of April and he said the Fissure still isn't healed. They're going to put me under a general anaesthetic and give me Botox on the Fissure, as well as doing a full colonoscopy to check for anything else that might be causing symptoms. I'm just wondering if anyone has had botox before, and if they could give me any advice? My bowels have now gone the other way over the last 3 weeks, I'm sometimes going 4-7 times a day.

Thanks everyone

Rhiannon

X

[Aimz32]

I’m in a similar situation to you! Nearly 25 and I’ve tried about 4 courses of xyloproct and GTN and a course of diltiazem - my fissure always seem to heal a little but never fully so always comes back! Says it’s more an ulcer now. I have trouble with bowel movements too, and am also going 4+ times a day currently - hospital appointment is soon to chat about Botox procedure, I’m going to see if they’ll do a colonoscopy too to check everything out as I also get really bad pain/nausea/appetite issues as well as fever/chills that wake me up at night. I’ve had a quick look at the procedure and it has slightly better success rates than GTN apparently? So fingers crossed. Just remember you’re not alone xx

[RhiannonT in reply to Aimz32]

Thank you for the advice! 😊 That's so strange how similar our symptoms are and we're the same age! Have you had any blood tests/stool tests done? I've had Fecal Calprotectin and the Q fit (checks for bowel cancer) and they all came back normal, but they're still doing the scope due to symptoms. My fissure is the same, hasn't fully healed. If you want to chat about anything feel free to message me, I should be getting my procedure done by mid/end of July. Xx

[Lovemyfamily89]

My consultant decided against the Botox as he told me it only lasts for a certain time period and needs re-doing. He told me that each time, it lasts less and less. Instead he went straight to an anal spincterotomy when The GTN cream didn’t work- it was the best thing I have ever had done, it was 17 years ago and I could not have carried on without it. My fissure had given me constant pain for three years when I had it done.

I hope the Botox works for you but if it doesn’t, ask about a sphincterotomy. Good luck 👍

[RhiannonT in reply to Lovemyfamily89]

Thank you 😊 x

[DM14]

Hey RhiannonT hope you don’t mind me following you but our issues/symptoms/pain sound exactly the same. I am 27 and been having issues for around 13 years. They have always said it’s bowel related and I have had every test/medication under the sun with no real improvements. So last April I also had a lap for endometriosis and it came back clear but I saw a new consultant and she isn’t convinced. I definitely have IBS/C but with no improvements they are wondering if there is something more.

I have had about 3 round of Botox injections as I have Anismus (basically my rectal muscle work backwards and tighten rather than release)

I feel like they did help for a few weeks but then everything sprung back to how it was.

I have due to have a flex sigmoidoscopy ( already had a cooonoscopy) a rectal examination under anaesthetic and possibly another lap :/

Your not alone I’m going through the whole thing with you xx

[RhiannonT in reply to DM14]

Thanks so much for this comment, makes me realise I'm not alone! I've spoke to my GP today and she's not convinced by the clear Laparoscopy given my symptoms, she's going to refer me to a new gynaecologist. I've got my pre assessment for my colonoscopy under general in June, the scope should be sometime after that. Have you had a flexi sig before? I had one without anything, no sedation and I was awake. It was horrendous ngl. Am I right in reading you're getting it under a general anaesthetic? Hang in there, we will get through this! Feel free to DM me anytime. Xx