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The Brain Tumour Charity

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Brain tumor

My husband was told he has a tumor in the right cerebellum its about 2cm. Was told to come back in 6months for another brain scan, told to eat right and walk...

My husband was told he has a tumor in the right cerebellum its about 2cm. Was to...

Ljkriemy

•4 days ago

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Cabergolin

Hi, new here. My husband has been on cabergolin since April, to shrink a macro benign pituitary adenoma. He's struggling with side effects, that don't seem...

Hi, new here. My husband has been on cabergolin since April, to shrink a macro ...

TiredwifeLu

•6 days ago

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2nd Opinion

Hi all, A general question, and I am a first timer on here. Has anyone ever explored the route of getting a second opinion regarding treatment path/diagnosis....

Hi all, A general question, and I am a first timer on here. Has anyone ever exp...

Blueberries-are-good

•2 months ago

2 Replies

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Husband just been diagnosed with brain tumour

My husband has just been diagnosed with a brain tumour aged 32. He had a seizure back in March and they didn’t do a CT, and then no symptoms until now, which...

My husband has just been diagnosed with a brain tumour aged 32. He had a seizure...

Marsbar2024

•3 months ago

2 Replies

Introducing myself

Hi Brain Tumour Charity community It seems I've resisted sharing about myself and my journey. So, this is a first step to open up and connect with this...

Hi Brain Tumour Charity community It seems I've resisted sharing about myself a...

ArgonautGuitar

•3 months ago

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Diagnosis

My name is Carole. My partner Kristy has had brain cancer for 12 years. Three surgeries during that time. Our team in the Hunter is not prepared to operate on...

My name is Carole. My partner Kristy has had brain cancer for 12 years. Three su...

TheGardeners

•3 months ago

1 Reply

Questions

I have appointment with neurosurgeon in a few weeks feeling anxious and would some suggestions on what questions I should be asking

I have appointment with neurosurgeon in a few weeks feeling anxious and would...

catmillieprincess22

•4 months ago

3 Replies

tomwills0420@gmail.com

Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the...

Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024...

Hidden

•5 months ago

2 Replies

Catmillieprincess22

I have recently been diagnosed with 2 meningiomas one is pressing on my trigeminal nerve and the other a small one in temperature area have appointment...

I have recently been diagnosed with 2 meningiomas one is pressing on my trigem...

catmillieprincess22

•5 months ago

1 Reply

Diagnosed with a Pituitary Macroadenoma

Hello, its a first time joining a forum like this and to be honest I feel like a bit of an imposter, as my tumour is located in my pituitary gland, so not...

Hello, its a first time joining a forum like this and to be honest I feel like a...

Chloe-Pit-Adenoma

•6 months ago

3 Replies

55 year old - 23 years + of Survival - Looking for Connection

Greetings & Blessings all! Been dealing with my Oligodendroglioma (stage 2 >>> stage 3 Anaplastic mixed) since 2003…all good things & to be honest can not...

Greetings & Blessings all! Been dealing with my Oligodendroglioma (stage 2 >>>...

BrainEP

•6 months ago

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New to this!

Hey all! First off I’m new to the group but also I’m new to my brain tumour! (Well 10 months new!!) last June I was diagnosed with a hypothalamic/optic pathway...

Hey all! First off I’m new to the group but also I’m new to my brain tumour! (We...

LabradorLover46

•7 months ago

4 Replies

Family support

Hi, My sister in her early 30th was diagnosed with a brain tumor a couple of months ago and I would like to know how you and your family dealt with similar...

Hi, My sister in her early 30th was diagnosed with a brain tumor a couple of m...

Mellowmarshmallow

•7 months ago

2 Replies

Haemangioblastoma

Any advice on what to expect post surgery? My husband is having his op this Wednesday

Any advice on what to expect post surgery? My husband is having his op this Wed...

Sturgey1

•7 months ago

1 Reply

driving licence

hi there, I’m wondering if I can apply for my driving licence earlier as it may take a while to come through. i had my operation last October and I was told...

hi there, I’m wondering if I can apply for my driving licence earlier as it ma...

chocolate40

•7 months ago

3 Replies

Recovery from Temporal lobe resection

Hello, my partner underwent a temporal lobe resection 5 days ago to remove a 3cm tumour from her brain. The surgery itself was a success and they believe they...

Hello, my partner underwent a temporal lobe resection 5 days ago to remove a 3cm...

Discodai1980

•7 months ago

1 Reply

Anyone else have a DNET?

Hi everyone Hope you’re all doing OK. Is there anyone out there who has a DNET that can’t be removed? I know that only treatment/cure is total surgical...

Hi everyone Hope you’re all doing OK. Is there anyone out there who has a DNET ...

BettytheYeti

•8 months ago

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Post Craniotomy Symptoms

So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma in my right temporal lobe that I was diagnosed with in October. My surgeon was...

So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma...

Callumsully

•9 months ago

7 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•9 months ago

1 Reply

Employment Resources

A brain tumour diagnosis can mean that you need to consider adjusting your working arrangements, hours and sometimes the type of work you do. If a partner is...

A brain tumour diagnosis can mean that you need to consider adjusting your worki...

Zhaleh_TBTC

Administrator•9 months ago

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Brain Lipoma symptoms

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help. I...

Hi, I'm looking for others who have this rare type of benign brain tumour. What ...

Flower589

•10 months ago

1 Reply

Brain tumors galore, cushings disease

I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease -...

I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disea...

Audrey8Claude

•11 months ago

1 Reply

Seeking input on new drug for Anaplastic astrocytoma - grade III

G33 YO male patient diagnosed in 2019 with Anaplastic Astrocytoma - Grade III - IDH Mutant. Tumor size was reduced following treatment. IVOSIDENIB is being...

G33 YO male patient diagnosed in 2019 with Anaplastic Astrocytoma - Grade III - ...

travelzone

•11 months ago

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Support Team Christmas opening times

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

We know that this time of year can be difficult for many in the brain tumour com...

Zhaleh_TBTC

Administrator•11 months ago

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Anyone diagnosed with Anaplastic Astrocytoma?

Hi, Looking for input on a new suggested drug for patients with Anaplastic Astrocytoma. Anyone here familiar with this condition? T

Hi, Looking for input on a new suggested drug for patients with Anaplastic Astr...

travelzone

•1 year ago

2 Replies

Low Grade Brain Tumour diagnosis

Hi, my partner has recently been diagnosed with a 3cm, Grade 2 Low Grade Tumour of the temporal lobe. She had an MRI for other reasons, so it was picked up by...

Hi, my partner has recently been diagnosed with a 3cm, Grade 2 Low Grade Tumour ...

Discodai1980

•1 year ago

11 Replies

Support with mortgage payments?

Hey guys, Can anyone recommend a government scheme or grant that we could turn to, to help take the pressure off our struggle in making our mortgage payments...

Hey guys, Can anyone recommend a government scheme or grant that we could turn t...

Hammers67

•1 year ago

1 Reply

confused

I have this loud noise in my head from my acoustic neuroma and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background...

I have this loud noise in my head from my acoustic neuroma and sometimes, s as J...

Zombi4real

•1 year ago

2 Replies

Epodermoid cyst on watch and see,does it always need surgery

Hello everyone I am a 65 year old woman,diagnosed with a small epodrmoid cyst/tumor 3 years ago,last MRI said it is unchanged, does it ever not need...

Hello everyone I am a 65 year old woman,diagnosed with a small epodrmoid cyst/...

Dakoda14

•1 year ago

2 Replies

Recent brain tumour diagnosis

Hi all, Around 18 months ago I was referred to ENT by my GP because I’d been having headaches daily for around 9 years or so. My GP suspected chronic...

Hi all, Around 18 months ago I was referred to ENT by my GP because I’d been ha...

DogLover0

•1 year ago

2 Replies

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Posts - The Brain Tumour Charity | HealthUnlocked

The Brain Tumour Charity

Brain tumor

Cabergolin

2nd Opinion

Husband just been diagnosed with brain tumour

Introducing myself

Diagnosis

Questions

tomwills0420@gmail.com

Catmillieprincess22

Diagnosed with a Pituitary Macroadenoma

55 year old - 23 years + of Survival - Looking for Connection

New to this!

Family support

Haemangioblastoma

driving licence

Recovery from Temporal lobe resection

Anyone else have a DNET?

Post Craniotomy Symptoms

Sign our open letter

Employment Resources

Brain Lipoma symptoms

Brain tumors galore, cushings disease

Seeking input on new drug for Anaplastic astrocytoma - grade III

Support Team Christmas opening times

Anyone diagnosed with Anaplastic Astrocytoma?

Low Grade Brain Tumour diagnosis

Support with mortgage payments?

confused

Epodermoid cyst on watch and see,does it always need surgery

Recent brain tumour diagnosis

Search posts

Pinned Posts

Latest poll

Have you, or your loved one, had support from any of these specialists to help manage symptoms and aid aspects of rehabilitation?

Archive