Brain Lipoma symptoms

[Flower589]

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help. I have a lipoma in the middle of my brain and have headaches, limb weakness and some other issues but can't find anyone to relate to..... I need your help, thank you. 🤕

[IMOPJF Community Champion Community Champion]

Hi there, I’m sorry I know you are looking for someone with the same diagnosis as you and I can’t help with that, but wondering whether the BRIAN app might be able to help you track your symptoms in case you are able to then share that with your doctor for ideas on managing the pain etc? Sorry not to be more help, it sounds like a difficult journey to be on 😞