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A little update
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Decant
in
Thyroid UK
3 months ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
3 months ago
An Enlightening Endocrine Adventure
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
After appeasing an endocrinologist worried about my suppressed TSH by a cunning lab trick -- withholding NDT for three days before going for the blood work -- I realized I needed to titrate up the dose. Many thanks to those who replied with their NDT experience. I cranked it up to nearly double what
RockyPath
in
Thyroid UK
3 months ago
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any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
3 months ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
3 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
3 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
3 months ago
Switching to NDT – How to build up dose?
After many years on levothyroxine 100mg, I have now been prescribed Armour thyroid 60mg (1 grain) to be taken twice a day, but starting at ½ grain twice a day. How quickly should I build up from this to 1 ½ grains per day, and then to 2 grains per day? After one week, two weeks ..? What are the side
After many years on levothyroxine 100mg, I have now been prescribed Armour thyroid 60mg (1 grain) to be taken twice a day, but starting at ½ grain twice a day. How quickly should I build up from this to 1 ½ grains per day, and then to 2 grains per day? After one week, two weeks ..? What are the side
Hipp0cratix
in
Thyroid UK
3 months ago
Does urinary frequency/urgency diminish after cessation of ADT?
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
I’m on the last month of a one year course of Orgovyx/Nubeqa for 4+3, 4.7PSA (now .006), Decipher .88. Brachyboost with pelvic SBRT 8/23 at UCLA My bladder volume at baseline was 500-600 ml (even hit 700 once). But over the months it has steadily decreased to currently 200-300ml. 350 if I really torture
SongofFred
in
Prostate Cancer Network
3 months ago
High risk Decipher score, what now?
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Hello, Im a 61 year old man, IIB, T2c, no mo, classified as unfavorable intermediate. I just finished my last day of 28 days of VMAT, ( total 70gy) ,last Weds day on May 15. Minimal SE so far. I also have 5 months in on ADT , Lupron, 1month, 1month , and 3 month shot. So I was feel pretty good
Surfer33
in
Prostate Cancer Network
3 months ago
ADT effectiveness duration for 80 plus age ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
For how long have those over 80 years with mets to bones , been able to keep their psa low with just ADT treatment ?
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Need doctor in EU who can prescribe NDT..
Hello! My previous doctor from Germany is not available now to prescribe me NDT. Can you please advise the doctor who can do it.
Hello! My previous doctor from Germany is not available now to prescribe me NDT. Can you please advise the doctor who can do it.
Elmiral
in
Thyroid UK
3 months ago
Has anyone heard of trial DB-1311-O-1001?
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Hi all, I’m wondering whether anybody has heard of the above trial? My Dad had been put forward for this and was advised yesterday he got through onto the trial but the paperwork says “first trial on humans”. They aren’t sure of the side effects and we are all feeling a bit apprehensive… My Dad has
Stefciaa
in
Advanced Prostate Cancer
3 months ago
Death from other-than PCa is not a "success"
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
A tongue-in-cheek stated goal by many here with PCa (including myself for the past 17 years since dianosis) has been to live to die of "anything other" than prostate cancer. Of course that does not bear up to close scrutiny. Many alternative causes of death, including the "big 4" of Cardiovascular Disease
MateoBeach
in
Fight Prostate Cancer
3 months ago
ADT Side Effects and Supplements.
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Ok I just read some comments about Lupron and ADT side effects and felt I had to ask the members a question. Yesterday I saw my urologist for my 6 month routine follow up. He looked at my labs and commented on how good they were for a guy on adt for two years. When he got to my kidney function his comment
Professorgary
in
Advanced Prostate Cancer
3 months ago
Zoladex injection
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
I began the zoladex injection in January of this year, I then had a laparoscopy in March which diagnosed my endometriosis. I had light bleeding for a couple of weeks after and then it completely stopped. Since then, I've had 2 episodes of heavy bleeding lasting 10 is days. No hormonal treatment has helped
CornwallHenleygirl
in
Endometriosis UK
3 months ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
3 months ago
Ped5i/Tadalafil etc as a benefit to SE of ADT?
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
Tadalafil , etc is prescribed for ED, BPH and PAH (pulmonary arterial hypertension). It is pretty much agreed upon that Tadalafil increases insulin sensitivity thus improving lean body mass, particularly around the gut, improves Testosterone/estrogen relationship and is good for heart and vascular health
pj1121
in
Advanced Prostate Cancer
3 months ago
Forgetfulness on ADT
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
Are there any ways to help with the side effect of forgetfulness / mild cognitive impairment while on ADT? My Dad (stage 4 PC) started on ADT 2 only months ago, but there have been a few moments of mild cognitive impairment since starting - forgetting shopping list, trying to return stuff at the wrong
LDC2024
in
Advanced Prostate Cancer
3 months ago
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