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Zofran ODT
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Well, three years in…..
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
Since initial DX of Gleason 4+4….. at that time was stage 4 high volume metastic disease. PSA can move up and down quickly. went up 10 points in a week went down 33 points in a month, without treatment. i went from NED of disease to PSA of 28.5 in six months. it’s a spunky little bastard. sorta like
FulThrotl
in
Advanced Prostate Cancer
3 months ago
Vitamins with ADT?
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
Hi Tall_Allen, You do not recommend vitamins when on ADT? I am on daily Casodex, has been for several years, and I am taking - Multivitamins, C-, D-, K- vitamins and magnesium daily. Should I stop this? Can you elaborate a bit on why you do not recommend taking vitamins? Thanks in advance!
PCPatient
in
Advanced Prostate Cancer
3 months ago
Disgusted with Healthcare
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
I had to request my PCP to do a PSA as it wasn't standard practice. I had to call the urologist, who I originally saw, after I joined this board and knew I should be starting ADT, even though they hadn't two months after my scans showed Stage IV. I saw the surgeon even though it was Stage IV and wasn't
Vangogh1961
in
Advanced Prostate Cancer
3 months ago
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Low Testosterone Linked With Mortality Risk in Aging Men - by Jeff Minerd , Contributing Writer, MedPage Today May 13, 2024
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
No way to know if this is applicable to those on ADT, but it would seem to be relevant for consideration. The highlighted portion is a useful guide on male sex hormone targets for those testing them. These results might also add support for Morgentaler's [i]"Saturation Model"[/i] for testosterone. Full
cujoe
in
Fight Prostate Cancer
3 months ago
Compression fracture or something worse?
Hello! My dad has been battling stage four prostate cancer for nearly nine years. He's done remarkably well, all things considered. He's had chemo, hormone therapy, immunotherapy, radiation, and second line hormone therapy. Along the way he has had heart issues and also CNS lymphoma (brain cancer).
Hello! My dad has been battling stage four prostate cancer for nearly nine years. He's done remarkably well, all things considered. He's had chemo, hormone therapy, immunotherapy, radiation, and second line hormone therapy. Along the way he has had heart issues and also CNS lymphoma (brain cancer).
Lynsi13
in
Advanced Prostate Cancer
3 months ago
Hair Loss on NDT
Hi can anyone shed some light on my continuous hair loss. It was one of my symptoms with my hypothyroidism. I started Thyroid-s and it eventually stopped but then started again about two months ago, otherwise I feel great, infact better than I have in years. I take 1. & 3/4 grains AM and 1 & 1/2 in PM
Hi can anyone shed some light on my continuous hair loss. It was one of my symptoms with my hypothyroidism. I started Thyroid-s and it eventually stopped but then started again about two months ago, otherwise I feel great, infact better than I have in years. I take 1. & 3/4 grains AM and 1 & 1/2 in PM
TheresaGreen1967
in
Thyroid UK
3 months ago
Penis after metastatic prostrate cancer and hormonal treatment
HelloI was diagnosed in September 2022. Was immediately put on ADT hormonal treatment. Had radiation to the prostrate and radiation to the spine where it spread. My issue is penis shrinkage. Because of the hormonal treatment I have issues with getting with errections. Also was told by many fellow journeymen
HelloI was diagnosed in September 2022. Was immediately put on ADT hormonal treatment. Had radiation to the prostrate and radiation to the spine where it spread. My issue is penis shrinkage. Because of the hormonal treatment I have issues with getting with errections. Also was told by many fellow journeymen
RWRB
in
Men's Health Forum (Penis Health)
3 months ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
3 months ago
Liothyronine (LT3) prescribing in England: Are cost constraints inhibiting guideline implementation?
Whatever else, this demonstrates beyond any doubt that the cost of the liothyronine Active Pharmaceutical Ingredient is but a minor part of the price charged to the NHS. I'd argue that the simple fact that the NHS agrees these prices strongly suggests something VERY wrong with medicines procurement.
Whatever else, this demonstrates beyond any doubt that the cost of the liothyronine Active Pharmaceutical Ingredient is but a minor part of the price charged to the NHS. I'd argue that the simple fact that the NHS agrees these prices strongly suggests something VERY wrong with medicines procurement.
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Stopping Orgovyx after six months
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
My brother has PCa as well. We keep it in the family... He had a PT ten years ago but his PSA rose so he got salvage radiation and went on Orgovyx. His MO said he would be on it for 18 months, as is SOC. He didn't like his MO so he switched to a GU MO. That MO said the research showed six months of ADT
gsun
in
Advanced Prostate Cancer
3 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
3 months ago
Internet Myths about Red Meat
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
I know that many men, egged on by well-meaning caregivers and sometimes doctors, deprive themselves of red meat. Some (non-Hindus) have an almost religious attachment to plant-based diets. I expect they will object to this article. For that reason, it goes into the weeds of what constitutes Internet
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Strong negative reaction to first Docetaxel treatment
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
I am participating in an NIH study combining Docetaxel with an immunotherapy. I had my first treatment of only Docetaxel this Tuesday. I lasted 2 minutes and 7cc before I had a severe reaction - severe flushing (glowing red from head to toe), difficulty breathing, sweating, uncontrollable shivering.
4tunate1
in
Advanced Prostate Cancer
3 months ago
New research. Linking Amiodarone inhibiting levothyroxine just published.
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
I'm a little staggered this is new!! But it is.... And I've experienced a lot of problems with ndt tolerance level even 7 months since Amiodarone was stopped. Beginning to wonder whether Amiodarones had a permenant effect. In Vivo Evaluation of the Pharmacokinetic Interaction between Levothyroxine
waveylines
in
Thyroid UK
3 months ago
Update on prognosis for my husband with stage 4 A cancer.
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
I met with the Cornell team and the oncologist was against surgery and now they are suggesting radiation for two weeks 5 times a day by MRI guided machine and ADT for two years. Have a consult with Memorial Sloane Kettering next week then will make our decision. Feeling confused as want hubby to make
SherryKahn
in
Advanced Prostate Cancer
3 months ago
Reactive hypoglycemia (suspected): low carb/ high protein diet.
Hello everyone. : I have suspected reactive hypoglycemia ( Hashis, MCAS, ME/ CFS, Fibromyalgia, amongst other diagnoses, as well as perimenopausal). Thyroid Meds: Armour NDT. The RH has not yet been confirmed by a medical professional, but due to the ongoing and worsening symptoms, and extreme carb
Hello everyone. : I have suspected reactive hypoglycemia ( Hashis, MCAS, ME/ CFS, Fibromyalgia, amongst other diagnoses, as well as perimenopausal). Thyroid Meds: Armour NDT. The RH has not yet been confirmed by a medical professional, but due to the ongoing and worsening symptoms, and extreme carb
Swissgirl
in
Thyroid UK
3 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
3 months ago
Advice on raising NDT
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
Following on from my post on 26/02/24, my symptoms got worse (increased number of anxiety attacks and unable to cope with pain in head/neck and upper back) and the GP didn't have any ideas, so I saw a thyroid specialist recommended by thyroid UK in April. The doctor had my blood tests done and these
SarrahMay
in
Thyroid UK
3 months ago
Trying to interpret my results
Hi I was wondering if I could ask some advice regarding my latest results. I've just had bloods done so anticipating the usual conversation with my GP about my TSH being too low.... I've screen shot my results since 2015 basically as I've been tracking them as my TSH rarely changes, even with a reduction
Hi I was wondering if I could ask some advice regarding my latest results. I've just had bloods done so anticipating the usual conversation with my GP about my TSH being too low.... I've screen shot my results since 2015 basically as I've been tracking them as my TSH rarely changes, even with a reduction
Bellsonit
in
Thyroid UK
3 months ago
Prostrate Cancer treatment ADT
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
HiI am being treated for PC. After diagnose I was put on ADT treatment. This stops testosterone production. Had a bone scan and found I have osteopenia. I am taking a calcium citrate with vitamin D. Also once per week Alendronate 70mg. Has anyone else been in the same boat? Thanks
RWRB
in
Osteoporosis Support
3 months ago
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