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Vanishing White Matter (VWM) disease
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Post Cardioversion
In my previous post I explained that my 3rd carioversion did not work even after one hour I was back into afib. However something strange is happening or at least it seems strange to me but may be normal. Five days after my cardio I got up around 2:30-3:00 am to use the loo. I could feel my heart in
In my previous post I explained that my 3rd carioversion did not work even after one hour I was back into afib. However something strange is happening or at least it seems strange to me but may be normal. Five days after my cardio I got up around 2:30-3:00 am to use the loo. I could feel my heart in
dindy
in
Atrial Fibrillation Support
5 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
8 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
8 months ago
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Help confused with diagnosis of pbc
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start urso 2 weeks ago still not started, could they get it wrong? Wil urso cause me many other problems as right now I feel fine only got noticed during random blood test for something
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start urso 2 weeks ago still not started, could they get it wrong? Wil urso cause me many other problems as right now I feel fine only got noticed during random blood test for something
Misn
in
PBC Foundation
8 months ago
Has xtandi failed?
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
Echotango51
in
Advanced Prostate Cancer
8 months ago
amiodarone
Was admitted via A&E to hospital last October with fast AF, 174 bpm., Sob, high bp. Because of other underlying problems with CKD, doc put me on Amiodarone 200mg daily, along with Nebivolol bi-daily, replacing Bisoprolol. Was discharged after 6 days when heart rate was consistently below 80bpm. Now
Was admitted via A&E to hospital last October with fast AF, 174 bpm., Sob, high bp. Because of other underlying problems with CKD, doc put me on Amiodarone 200mg daily, along with Nebivolol bi-daily, replacing Bisoprolol. Was discharged after 6 days when heart rate was consistently below 80bpm. Now
mallet-head
in
Atrial Fibrillation Support
5 months ago
do I need my inhaler ?
hi all, I’m new to this forum and new to my illness which I haven’t really been informed of in much detail. I had a collapsed lung in September last year and they did a cat scan 3 weeks later. The results letter that they sent my doctor was also sent to me. I’ve gathered that I have emphysema and bronchial
hi all, I’m new to this forum and new to my illness which I haven’t really been informed of in much detail. I had a collapsed lung in September last year and they did a cat scan 3 weeks later. The results letter that they sent my doctor was also sent to me. I’ve gathered that I have emphysema and bronchial
50shadesofgrey
in
Lung Conditions Community Forum
5 months ago
The disease is in thought, environment, perception and inherited information. Then it goes into our body chemistry.
I had a fabulous summer. Living in a natural paradise, having a vegetable garden, bathing in the river, meditation, Chikung, electric bike rides in the mountains, fresh air and springs, redox molecule supplements, electro-stimulation with micro-currents, etc. have all made my Parkinson's "even better
I had a fabulous summer. Living in a natural paradise, having a vegetable garden, bathing in the river, meditation, Chikung, electric bike rides in the mountains, fresh air and springs, redox molecule supplements, electro-stimulation with micro-currents, etc. have all made my Parkinson's "even better
ManuCalma
in
Cure Parkinson's
8 months ago
increased urination
I’ve been on levothyroxine 75 approx 4 years - suddenly developed symptoms of underactive thyroid and after blood tests GP increased levo to 100 - I now am needing to urinate far more frequently- has anyone else had increased weeing after meds increase please? Be grateful for any advice - many thanks
I’ve been on levothyroxine 75 approx 4 years - suddenly developed symptoms of underactive thyroid and after blood tests GP increased levo to 100 - I now am needing to urinate far more frequently- has anyone else had increased weeing after meds increase please? Be grateful for any advice - many thanks
Purplepuffin
in
Thyroid UK
6 months ago
He lived a wonderful life
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
Merlot1
in
Advanced Prostate Cancer
8 months ago
blood test results
many thanks for the replies . Is there a test for pernicious anaemia ?
many thanks for the replies . Is there a test for pernicious anaemia ?
Tattlee
in
Pernicious Anaemia Society
6 months ago
AST/ALT Ratio
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
Mack89
in
British Liver Trust
4 months ago
One litre of fluids
After having pneumonia with fluid on the lung I have now developed heart failure.My recent x-ray was showing I still have fluid on my lung. I don't have any shortness of breath at the moment. I was surprised to hear this. Apparently it's worse than it was. A consultant from the hospital rang me to ask
After having pneumonia with fluid on the lung I have now developed heart failure.My recent x-ray was showing I still have fluid on my lung. I don't have any shortness of breath at the moment. I was surprised to hear this. Apparently it's worse than it was. A consultant from the hospital rang me to ask
Cosychair
in
Asthma Community Forum
5 months ago
Chostochondritus after cardioversion ?
Hi everyone, after a successful cardioversion I felt amazing. However, after six weeks I was told it has failed. I still felt alot better but recently it has been getting worse with some dizziness and more episodes. However, after being at A E 3 times since, the docs are sure that the chest pain on
Hi everyone, after a successful cardioversion I felt amazing. However, after six weeks I was told it has failed. I still felt alot better but recently it has been getting worse with some dizziness and more episodes. However, after being at A E 3 times since, the docs are sure that the chest pain on
Sailblue
in
AF Association
5 months ago
seeking more info with yet more questions
Hello. As I begin to write this it's 5:45 in the morning here. Trying to get at least some type of sleep. Still having loads of anxiety but trying to calm myself down to at least write this. Glancing over once in a while to check oxymeter, heart rate ranging from 92 to 104, oxygen steady at 96-97.
Hello. As I begin to write this it's 5:45 in the morning here. Trying to get at least some type of sleep. Still having loads of anxiety but trying to calm myself down to at least write this. Glancing over once in a while to check oxymeter, heart rate ranging from 92 to 104, oxygen steady at 96-97.
gbn_
in
Atrial Fibrillation Support
5 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
7 months ago
Hello
Introducing myself, as I'll be looking through posts in the coming weeks... I'm 61, recently diagnosed with AF, but reckon I've been suffering for about 2 years. Biosprolol, Apixaban and Digoxin. Due to do the 'zaps' in 8-12 weeks.
Introducing myself, as I'll be looking through posts in the coming weeks... I'm 61, recently diagnosed with AF, but reckon I've been suffering for about 2 years. Biosprolol, Apixaban and Digoxin. Due to do the 'zaps' in 8-12 weeks.
MausenMumma
in
AF Association
5 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
8 months ago
blood test results
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Hi all. I am age 24 male. History with excessive alcohol for the past 5 years. I recently got a full blood work carried out at my GP and my liver enzymes came back as ok, but I don’t really understand what any of it means. I tried calling my GP and it’s like trying to milk blood out of a stone
Uplight99
in
British Liver Trust
8 months ago
Nausea - Levo/Thyroid symptom?
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
I am at a complete and utter loss. Why as I optimise dose do I feel nauseated for days now? As of a few weeks ago I’ve been alternating doses of 75mcg own day, followed by 100mcg of Levothyroxine only for hypothyroidism (Hashimoto). Same brand throughout treatment thus far. Perhaps it’s nothing to
HealthStarDust
in
Thyroid UK
8 months ago
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