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Vanishing White Matter (VWM) disease
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"First ever successful experimental stem cell therapy for Parkinson's Disease"
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
MBAnderson
in
Cure Parkinson's
8 months ago
Ureteral cytosis
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
Started Jevtana in August hoping for more moderate side effects and efficacy than I'd had with three prior rounds of Docetaxel. First Jevtana round was without carboplatin. Second Jevtana round had carboplatin included. Hematuria got a bit more severe and then two weeks into the three-week cycle, I
CWT53
in
Advanced Prostate Cancer
8 months ago
Liver Disease
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Hi there - I have just joined this group - my husband has cirrhosis of the liver - alcohol related - his recent visit to see his liver consultant was grim - basically if he continues to drink we have been told death is imminent - He still continues to drink :( but last week actually joined AA - until
Uxori
in
British Liver Trust
8 months ago
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Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
6 months ago
My turn to go to A&E
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
sylvi
in
NRAS
5 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Post-Covid lung issues - what to expect?
Hi all, I had Covid in mid November and have been sick ever since, particularly (and perhaps only) breathlessness and fatigue. I was first diagnosed with asthma, but the meds only seemed to stave off a worse episode of breathlessness. So I went back to the docs and insisted on being seen, as I was
Hi all, I had Covid in mid November and have been sick ever since, particularly (and perhaps only) breathlessness and fatigue. I was first diagnosed with asthma, but the meds only seemed to stave off a worse episode of breathlessness. So I went back to the docs and insisted on being seen, as I was
Treetop33
in
Lung Conditions Community Forum
5 months ago
Folic acid and b12
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Angie10116
in
Pernicious Anaemia Society
6 months ago
Afib caused by low heart rate? Ectopics when exercising.
Good morning all,I've had some rather interesting observations over the last few weeks that I would like to share. As background, I had an ablation in July which helped me reduce my Flecainide dose from 2x100 to 2x50mg per day and reduced my Afib episodes to about once per week. My resting heart rate
Good morning all,I've had some rather interesting observations over the last few weeks that I would like to share. As background, I had an ablation in July which helped me reduce my Flecainide dose from 2x100 to 2x50mg per day and reduced my Afib episodes to about once per week. My resting heart rate
MisterMagoo
in
AF Association
5 months ago
Cough lozenges
I’ve got a tickly cough and want to suck a lozenge in the hope it will sooth it. I’ve got some Wilko lozenges that are Amylmetacresol. Does anyone know if they are ok to use with Warfarin and Bisoprolol - and of course Afib ! I can’t find this ingredient listed in drug interaction websites so I’m guessing
I’ve got a tickly cough and want to suck a lozenge in the hope it will sooth it. I’ve got some Wilko lozenges that are Amylmetacresol. Does anyone know if they are ok to use with Warfarin and Bisoprolol - and of course Afib ! I can’t find this ingredient listed in drug interaction websites so I’m guessing
Tellingfibs
in
Atrial Fibrillation Support
5 months ago
Cardiovascular issues
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
Anybody out there with extra-cranial GCA / LVV, have any cardiovascular issues? I was having some shortness of breath, sleepiness & lightheadedness. I'm in the middle of testing for that, but a CAT scan showed I have a dilated aortic root and pericardial effusion. Those explained my symptoms, but neither
winfong
in
PMRGCAuk
5 months ago
First ever phlebitis diagnosis...a few questions
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
6 days ago, I had a tenderness to the side of my right calf. This has got better, but I have a different red patch, which is very tender, and you can see a line going round from the patch (which is just above my inner ankle) to the top of my foot. It's very painful to walk. So I got an urgent appt
BFlying
in
Anticoagulation Support
5 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
5 months ago
Decision making
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
I am having a hard time justifying doing anything about my Afib since I feel really good most of the time. Even in Afib I'm pretty good except for the worrying and checking of my heart rate every little bit. I have recently backed out of an RF ablation and a Cryo ablation for fear of a poor outcome
joyelane
in
AF Association
5 months ago
had 4 treatments of Pluvicto is not dropping PSA
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
My Husband has had 4 treatments of Pluvicto 6 weeks apart. The first treatment dropped my PSA by over 100 points; however, the 2nd, 3rd, and 4th PSA climbed rapidly. My question is, Should he continue the treatment if it is not working for him?? Thank you, Concerned wife.
Areyoukiddingme
in
Advanced Prostate Cancer
8 months ago
Great Medical Oncologist in Seattle?
Hi everyone - After a removed lymph node was found to have cancer in it after my prostatectomy, I’ve migrated myself over to this Advanced Prostate Cancer group. I keep joining these new clubs. I must be popular. Does anyone know of a great Medical Oncologist specializing in prostate cancer in the
Hi everyone - After a removed lymph node was found to have cancer in it after my prostatectomy, I’ve migrated myself over to this Advanced Prostate Cancer group. I keep joining these new clubs. I must be popular. Does anyone know of a great Medical Oncologist specializing in prostate cancer in the
MakeItRainbows
in
Advanced Prostate Cancer
8 months ago
Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
8 months ago
Synacthen Test Result
Hi allJust recently got result from endo. Obviously it rules out Addisons which is good and I responded to the inj. The second blood draw was actually done 40 mins post administration but I'm assuming that wouldn't have affected the overall result too much. However I know my baseline blood cortisol is
Hi allJust recently got result from endo. Obviously it rules out Addisons which is good and I responded to the inj. The second blood draw was actually done 40 mins post administration but I'm assuming that wouldn't have affected the overall result too much. However I know my baseline blood cortisol is
Hollybushroad
in
Thyroid UK
8 months ago
Murpheys LAw
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
I was diagnosed with Paroxysmal after a year of episodes getting longer and longer . I had a cardio version Sept then a very mild Afib that was controlled with Metoprolol in November. I am overdue now according to my tracking since last Nov (every 4-10 weeks) and I finally got my date for ablation
Krissy55
in
Atrial Fibrillation Support
5 months ago
Peginterferon and nightmares
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Just wondering if anyone has experienced nightmares whilst take peginterferon alpha 2a. I have noticed some sleep disturbance and last week, my 8th injection, I was asked to increase dose to 90. My platelets had dropped since starting on 45 from 864 to 706 but still high. After my 2nd 90 dose I am experiencing
Lyndjs
in
MPN Voice
5 months ago
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