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Vanishing White Matter (VWM) disease
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Boston Scientific I/v cardioverter) defibrillator question
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Hi looking for first experiences of having the above device fitted. I'm one week on from the implant and the soreness from the operation is settling down. I am still sleeping on my right side which is fine. But when I am lying flat the box starts firing off, I guess in cardioverter mode. It's set
Chinkoflight
in
Atrial Fibrillation Support
3 months ago
holter monitor
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
Deltrot53
in
Atrial Fibrillation Support
3 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
3 months ago
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Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
3 months ago
What to do.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
3 months ago
hypertension stage 2 plus enlarged heart - is this linked to underactive thyroid? Help appreciated please
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
Mumsie22
in
Thyroid UK
4 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
4 months ago
help - prostate cancer with bone metastasis in bones - patient 70 years old - PERU
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
DiegoFerruaPE
in
Advanced Prostate Cancer
7 months ago
Prednisolone for Lupus Flare
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Chris5530
in
LUPUS UK
4 months ago
hydroxychloroquine and stuffy itchy nose with occasional bleeding.
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
Apm2626
in
NRAS
4 months ago
Ablation
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
Midnight2022
in
Atrial Fibrillation Support
3 months ago
Advice post ablation
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
afhanhound
in
Atrial Fibrillation Support
3 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
4 months ago
cutaneous lupus
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Beryl2485
in
LUPUS UK
4 months ago
Answer's at last for my deficiency.
Some will already know from my previous posts I went for an ultrasound scan today on my intestines. When I arrived home I had recieved rather a lot of post. I waded through the various bills and then opened one from the hospital, it was from the endocrine dept. Some of you will know I have both hypothroidism
Some will already know from my previous posts I went for an ultrasound scan today on my intestines. When I arrived home I had recieved rather a lot of post. I waded through the various bills and then opened one from the hospital, it was from the endocrine dept. Some of you will know I have both hypothroidism
Jillymo
in
Pernicious Anaemia Society
7 months ago
Flecainide without Beta-Blocker
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Hello everyone. I am worried about my Husband and the choices being offered to him for the treatment of his AF and I would welcome members thoughts and opinions on the matter. My husband is 75. His heart history as follows. 1. Palpitations, attributed to short salvoes of supraventricular tachycardia
Peg99
in
Atrial Fibrillation Support
3 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
4 months ago
Very low blood sugar - anyone had anything similar ?
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Sleepman
in
Thyroid UK
4 months ago
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