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Lupus Diagnosis
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
KeepingUpBeat
in
LUPUS UK
4 months ago
Any readers?
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Pawsedagain
in
Thyroid UK
4 months ago
biopsy report, still waiting to see consultant.
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
hi all, had an email with the below conclusion of my biopsy, I have a very minuscule left lobe which they want to biopsy but were unable to due to the size. So the right lobe was biopsied. Until I see the consultant I don’t really understand the results, I know none of you are specialist or doctors
Goneinsixtyseconds
in
British Liver Trust
7 months ago
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After a routine lung screening CT scan I was diagnosed with mild emphysema and some calcification of my heart arteries. I was also referred for a further high definition CT Scan to confirm bronchiectasis. My GP prescribed Salamol which did nothing to help the breathlessness and chest tightness I'd been
After a routine lung screening CT scan I was diagnosed with mild emphysema and some calcification of my heart arteries. I was also referred for a further high definition CT Scan to confirm bronchiectasis. My GP prescribed Salamol which did nothing to help the breathlessness and chest tightness I'd been
Roxdale
in
Lung Conditions Community Forum
3 months ago
Cryo ablation 6 days ago..am I back in AF?
I've been for an ECG this afternoon the results of which are being passed to the arrhythmia nurse team at the JR in Oxford, where I had a cryo ablation last Friday. AF symptoms of breathlessness and feeling faint and then some for a couple of days and now a bit more settled but irregular and fast pulse
I've been for an ECG this afternoon the results of which are being passed to the arrhythmia nurse team at the JR in Oxford, where I had a cryo ablation last Friday. AF symptoms of breathlessness and feeling faint and then some for a couple of days and now a bit more settled but irregular and fast pulse
JoDogBlue
in
Atrial Fibrillation Support
3 months ago
Update on heart problems
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
Thank you all for your input last week re my 2 leaky valves and pulmonary hypertension diagnosis. Forgot to mention also have very low heart beat, low 40s , of which I was already aware but thought that was healthy, however, bradycardia at my age is apparently not good.I did a lot of phoning around
JP1952
in
MPN Voice
3 months ago
Help and advice for mum
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
Hey All, My mum has hidden her drinking, liver issues and cirrorsis for 15 years as I’ve been living in a different country. She was taken into hospital last winter, and I was told it was related to her liver, but no real further detail. Attending a consultant appointment with her last week has unearthed
PerpetuallySad
in
British Liver Trust
7 months ago
Obesity Associated With Faster MS Disease Progression
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
[i]
Obesity in multiple sclerosis (MS) was tied to faster worsening of disability and an increased risk of physical, psychological, and cognitive decline, a prospective cohort study showed.
[/i] [i]
[/i]
https://www.medpagetoday.com/meetingcoverage/actrims/108992?xid=nl_mpt_DHE_2024-03
BettysMom
in
My MSAA Community
4 months ago
Compensated liver
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed
Oasisman
in
British Liver Trust
7 months ago
Confused and seeking clarification
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
Hi folks . . . I have attached a letter from Hepatology which (to me anyway!) appears to contradict itself? In summary . . . a US in September 2021 showed increased parenchymal echogenicity (PE) due to fatty liver. Follow up bloods and a CT in April 2022 revealed nothing further. I then had a telephone
HouseHead
in
British Liver Trust
7 months ago
TSH creeping up !
I am on 125mg Levo, but on my last test showed 2.5 TSH ! Should I be worried ? GP also informed me my cholesterol was high. Serum cholesterol level 5.6 mmol/L Serum HDL cholesterol level 1.0 mmol/L Serum cholesterol/HDL ratio 5.6 [0.0 - 5.0]; Outside reference range Serum non high density lipoprotein
I am on 125mg Levo, but on my last test showed 2.5 TSH ! Should I be worried ? GP also informed me my cholesterol was high. Serum cholesterol level 5.6 mmol/L Serum HDL cholesterol level 1.0 mmol/L Serum cholesterol/HDL ratio 5.6 [0.0 - 5.0]; Outside reference range Serum non high density lipoprotein
Bigsi
in
Thyroid UK
3 months ago
Cholesterol test results?
Hi just got a call from my GP about the above test and,was advised to alter my diet -Serum cholesterol level 5.6 mmol/L Serum HDL cholesterol level 1.0 mmol/L Serum cholesterol/HDL ratio 5.6 [0.0 - 5.0]; Outside reference range Serum non high density lipoprotein cholesterol level 4.6 mmol/L Should
Hi just got a call from my GP about the above test and,was advised to alter my diet -Serum cholesterol level 5.6 mmol/L Serum HDL cholesterol level 1.0 mmol/L Serum cholesterol/HDL ratio 5.6 [0.0 - 5.0]; Outside reference range Serum non high density lipoprotein cholesterol level 4.6 mmol/L Should
Bigsi
in
Weight Loss Support
3 months ago
JAK2 V617F Allele Burden and Thrombotic Events in Patients w/ JAK2 V617F Positive PCV/ET @ High Risk of Thrombosis
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
Background
: The goal of therapy of polycythemia vera (PV) and essential thrombocythemia (ET) is primarily to prevent vascular events that are the leading cause of morbidity and mortality. Patients older than 60 years or with a previous history of thrombotic complications are considered at high
PhysAssist
in
MPN Voice
3 months ago
5 Days Post Ablation and getting an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
After three days of being extremely breathless and light headed following a cryo ablation at the JR last Friday I'm now feeling more settled, my pulse still fast and irregular but not as extreme. I had a call from an arrhythmia nurse (at last) at the JR who was very helpful. The next step is an ECG
JoDogBlue
in
Atrial Fibrillation Support
3 months ago
New study indicates that taxifolin "could" reduce chronic inflammation, promote healthy aging and improve healthspan of lupus sufferers.
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
[i]Linda May-Zhang, PhD, VP Innovation at Blue California and an author on the study told Longevity.Technology that taxifolin shows promise in addressing oxidative stress and alleviating lupus symptoms by inhibiting NETosis. Photographs courtesy of Ramadan Ali and Linda May-Zhang[/i] New study indicates
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
No one died from A F
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
I posted earlier today . I am not now being negative , I am trying to be pragmatic . On this brilliant forum we are constantly told “ no one dies of AF “. I was wondering what actually brought on the first bout of A F to people here. Mine came on years after Mitral Valve repair . 2 long ablations
Luludean
in
Atrial Fibrillation Support
3 months ago
What is a cardioversion?
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
If you have AF you may have been offered a cardioversion, but may be unsure of what to expect? A
cardioversion
is a procedure to convert your heart from AF back into normal (sinus) rhythm. This is achieved by administering a rhythm control medication (antiarrhythmic drug) by mouth or through
TracyAdmin
Partner
in
Atrial Fibrillation Support
3 months ago
Lopressor dose titration
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
Permanent afib 100mgm of Lopressor am & 50 pm plus eliquis. Decided to cut back to 50 in am because of blurred vision and now have had upset stomach times 1 week plus HR back up to low 100's. Thought I felt better on lower dose but maybe not??
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Rhupus
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
I have rhupus which is lupus and severe rheumatoid. arthritis having both and it being aggressive there r only 1% to 2% in the world that ever have both I guess I was just the lucky one lol unfortunately this is the most painful disease in the world you get never get over less your bones hurt so bad
Buglove22
in
LUpus Patients Understanding and Support
4 months ago
Too Much Omega 3 triggering AFib?
I care for a family member with an AFib history. It has recently reared its head again after several years without an issue. I have been trying to find a possible trigger. One of the possible things I suspect is that it may be the overhaul in her diet the last couple of months. I noticed one day
I care for a family member with an AFib history. It has recently reared its head again after several years without an issue. I have been trying to find a possible trigger. One of the possible things I suspect is that it may be the overhaul in her diet the last couple of months. I noticed one day
Mulan1
in
Atrial Fibrillation Support
3 months ago
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