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How do I defeat extreme tiredness?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Nucleusman
in
CLL Support
4 months ago
Vitamin K2
Trying to find best vitamin K2 supplement. I can’t take calcium but lots of dairy and take D3 on its own daily. I take methotrexate, steroids and other meds so I don’t want the strongest K2 but one I can absorb without a problem. I have been on risedronate for two years but dexa scan had not improved
Trying to find best vitamin K2 supplement. I can’t take calcium but lots of dairy and take D3 on its own daily. I take methotrexate, steroids and other meds so I don’t want the strongest K2 but one I can absorb without a problem. I have been on risedronate for two years but dexa scan had not improved
5lupins
in
PMRGCAuk
4 months ago
recurring illnesses
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
I’ve been trying to get stable on t3/4 combination, still a way to go as last results after increasing to 10 mcg liothyronine in 2 doses were the worst yet, t3 and t4 both at bottom of range, vitamin D draining away again despite supplements. I’ve increased levothyroxine back up to 75 ( I was advised
Mag999
in
Thyroid UK
4 months ago
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Needles for B12 self injection
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Mariemcdo
in
Pernicious Anaemia Society
4 months ago
Vital Role of B12 and Folate
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
B12life
in
Pernicious Anaemia Society
4 months ago
Folate when SI?
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
Hi everyone, How much folate is recommended when injecting B12? The folate tablets I have are 400µg. Also, can anyone kindly comment on my sudden lip problems? I awoke 4 mornings ago to blistered lips, they were slightly worse the next morning. The blistering seems to have stopped but my lips are
J972
in
Pernicious Anaemia Society
4 months ago
is this a sign my meds are struggling or just how it is now?
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Newbie73
in
NRAS
4 months ago
Getting myself in a hell of a muddle!
I have been on levothyroxine for 10+ years and never had a problem (well not since the early years) - I have been getting along nicely on a dose of 75 for the last few years. I was at the GP's a few weeks ago about something not related to my thyroid and happened to mention in the conversation that
I have been on levothyroxine for 10+ years and never had a problem (well not since the early years) - I have been getting along nicely on a dose of 75 for the last few years. I was at the GP's a few weeks ago about something not related to my thyroid and happened to mention in the conversation that
Loobs39
in
Thyroid UK
4 months ago
Early signs of PA
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
Sailinglady
in
Pernicious Anaemia Society
4 months ago
Interesting article on more sustainable B12 production
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
Technoid
in
Pernicious Anaemia Society
4 months ago
Hubby and his heart
My husband had bad flu over Christmas and since then has had huge issues with breathlessness, bloating, fluid retention and fatigue. He's had ECG's, MRI , chest x-ray and bloods. This has shown up that he has fluid around his heart as it's just not pumping properly, is severely anaemic and his vitamin
My husband had bad flu over Christmas and since then has had huge issues with breathlessness, bloating, fluid retention and fatigue. He's had ECG's, MRI , chest x-ray and bloods. This has shown up that he has fluid around his heart as it's just not pumping properly, is severely anaemic and his vitamin
Muzzyduck
in
British Heart Foundation
4 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
4 months ago
Update and latest results
Hello again lovely people. I thought I’d come back and update having been on Levo 50mcg since diagnosis 3 months ago. In early January the GP asked me to retest and only TSH was done (big let down but not unexpected)! I was amazed that after only 2 months on Levo 50mcg that my TSH had dropped to 0.44
Hello again lovely people. I thought I’d come back and update having been on Levo 50mcg since diagnosis 3 months ago. In early January the GP asked me to retest and only TSH was done (big let down but not unexpected)! I was amazed that after only 2 months on Levo 50mcg that my TSH had dropped to 0.44
Gardeningaddict
in
Thyroid UK
4 months ago
Ducks in a row
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
Whiteways4711
in
Pernicious Anaemia Society
4 months ago
Do I just learn to live with thinning hair?
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
I was diagnosed with Hashimotos in 1997 & was on thyroxine for 17 years.Then on T3-only for about 4 years,after testing positive for the D102 variant from both parents. I have been on NDT for a few years now-THIROID at first until its supply issues.I got on very well with TR MANN & was very disappointed
Naomi8
in
Thyroid UK
4 months ago
Newly diagnosed and confused
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Opposite
in
Thyroid UK
4 months ago
supplements
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
I am on various medication and unsure when the best time to take each are, any ideas? Levothyroxine B12 injections Starting iron heme tablets shortly Vitamin d Folate
Lilymayjean
in
Thyroid UK
16 days ago
low b12 - When will this improve?
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet and hands and some fatigue, some headaches and waves of sadness . Suspected it was low Vitamin d or b12 as I had low b12 back in 2021 ( 101)
Damacian
in
Pernicious Anaemia Society
17 days ago
Help with latest bloods please!
hi everyone I’m on 50mcg of Levothyroxine for Hashimotos and my original test results are in my profile. I’ve just had some bloods done with the GP and they’ve said no further action is required. I’m conscious that there is a difference between being within range and optimal, so I thought I’d come on
hi everyone I’m on 50mcg of Levothyroxine for Hashimotos and my original test results are in my profile. I’ve just had some bloods done with the GP and they’ve said no further action is required. I’m conscious that there is a difference between being within range and optimal, so I thought I’d come on
Smartypants1
in
Thyroid UK
4 months ago
So new results.
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
Dshadzz07
in
Thyroid UK
4 months ago
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