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Confused and seeking wisdom !
I have been living with hypo type symptoms for decades but have been very unwell for the last 10 years. I have long suspected thyroid issues being a part of it. I had a diagnosis of M.E. in 2021 but likely would have had one earlier if I had gone to GP's. I am mostly home bound often bed/sofa bound.
I have been living with hypo type symptoms for decades but have been very unwell for the last 10 years. I have long suspected thyroid issues being a part of it. I had a diagnosis of M.E. in 2021 but likely would have had one earlier if I had gone to GP's. I am mostly home bound often bed/sofa bound.
Biba22
in
Thyroid UK
21 days ago
This protocol works for me
After thirteen months, my NAGALASE count .95 is in the high normal range and my final weekly Vit C/ hydrogen peroxide infusion was yesterday. I'll continue the Clioquinol +50mg zinc, 1000mg myomin, 5mg copper, 500mg quercetin 7/7 and 20mg Ivermectin 5/7 until Nag count gets to .5. NAGALASE is an enzyme
After thirteen months, my NAGALASE count .95 is in the high normal range and my final weekly Vit C/ hydrogen peroxide infusion was yesterday. I'll continue the Clioquinol +50mg zinc, 1000mg myomin, 5mg copper, 500mg quercetin 7/7 and 20mg Ivermectin 5/7 until Nag count gets to .5. NAGALASE is an enzyme
agnut
in
Fight Prostate Cancer
22 days ago
Hassles With GP Receptionist over B12 Jab
I just wondered if anyone else experienced this. I used to get a B12 jab every 3 months but this was changed due to the fact that in the run up to my next jab I get neuro symptoms, twitching legs, muscle twitches, and the pins and needles in my hands and feet which are always present, get worse. So now
I just wondered if anyone else experienced this. I used to get a B12 jab every 3 months but this was changed due to the fact that in the run up to my next jab I get neuro symptoms, twitching legs, muscle twitches, and the pins and needles in my hands and feet which are always present, get worse. So now
Sparklingsunshine
in
Pernicious Anaemia Society
22 days ago
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B12 sublingual advice
Hi, I was wondering if I could have some advice on sublingual B12. I know that most say injections are the only option for absorption issues but I really don't want another injection after a bad reaction. I know people say to get through the reversing out symptoms but I never had low B12 symptoms
Hi, I was wondering if I could have some advice on sublingual B12. I know that most say injections are the only option for absorption issues but I really don't want another injection after a bad reaction. I know people say to get through the reversing out symptoms but I never had low B12 symptoms
bollin
in
Pernicious Anaemia Society
22 days ago
non compliant with pills?
has anyone else had problem with nurse saying are you sure you’re taking your thyroid tablets I’ve been asked twice this week . It’s really upset me. Apparently the lab said non compliant or dose needs adjusted. why would anyone not take tablets I don’t want to feel this way. They said but you
has anyone else had problem with nurse saying are you sure you’re taking your thyroid tablets I’ve been asked twice this week . It’s really upset me. Apparently the lab said non compliant or dose needs adjusted. why would anyone not take tablets I don’t want to feel this way. They said but you
Thyroidmeg
in
Thyroid UK
22 days ago
Best way to take B12 chewable tablets?
Hi, Do I take them with food? In the morning/evening? Thanks
Hi, Do I take them with food? In the morning/evening? Thanks
LifeintheMed
in
Pernicious Anaemia Society
22 days ago
strange horrendous pain
Hi, I’m wondering if any of you lovely lot have had a similar experience please? I got very ill in January , extreme tiredness, stumbling, having visions, breathlessness , poor memory and pain and parathesia down right side of body . Long story short I was diagnosed with pernicious anaemia in February
Hi, I’m wondering if any of you lovely lot have had a similar experience please? I got very ill in January , extreme tiredness, stumbling, having visions, breathlessness , poor memory and pain and parathesia down right side of body . Long story short I was diagnosed with pernicious anaemia in February
Karenedawson
in
British Heart Foundation
22 days ago
B12 ampoules
Could someone take a look at this link for me before I order as I don't want to make a mistake... I'd be grateful of all advice.Thanks in advance Allywales https://www.arzneiprivat.de/product/vitamin-b12-depot-hevert-ampullen.245042.html
Could someone take a look at this link for me before I order as I don't want to make a mistake... I'd be grateful of all advice.Thanks in advance Allywales https://www.arzneiprivat.de/product/vitamin-b12-depot-hevert-ampullen.245042.html
Allywales8663
in
Pernicious Anaemia Society
22 days ago
Help with test results
Hi,I'm hoping to get insights into my latest test results and symptoms I continue to have. I had my thyroid out in 2012 (Graves), I'm located in Australia and currently taking 100mcg of Eltroxin and 16mcg of slow release (compounded) t3 daily. Around 2yrs ago I got quite sick, I had extremely heavy fatigue
Hi,I'm hoping to get insights into my latest test results and symptoms I continue to have. I had my thyroid out in 2012 (Graves), I'm located in Australia and currently taking 100mcg of Eltroxin and 16mcg of slow release (compounded) t3 daily. Around 2yrs ago I got quite sick, I had extremely heavy fatigue
Miso_soup
in
Thyroid UK
22 days ago
Colonoscopy/gastroscopy
Hello, me again! Or should I say “g’day”? I’ve just had my first ever hospital procedure with sedation - A colonoscopy and gastroscopy (top and tail) to check why I might not be absorbing B12 and iron. I’ve been terrified about it for so long and it was a complete non-event. The hospital staff were
Hello, me again! Or should I say “g’day”? I’ve just had my first ever hospital procedure with sedation - A colonoscopy and gastroscopy (top and tail) to check why I might not be absorbing B12 and iron. I’ve been terrified about it for so long and it was a complete non-event. The hospital staff were
PlatypusProfit8077
in
Pernicious Anaemia Society
22 days ago
blood test results help please
hi everyone I hope you don’t mind me asking for help again. I had a blood test request from my endocrinologist last January and was very disappointed he hadn’t requested T4 let alone T3. He’s only interested in TSH and my cholesterol. He also tells me to Jake my Levothyroxine just before a blood test
hi everyone I hope you don’t mind me asking for help again. I had a blood test request from my endocrinologist last January and was very disappointed he hadn’t requested T4 let alone T3. He’s only interested in TSH and my cholesterol. He also tells me to Jake my Levothyroxine just before a blood test
Boohooby
in
Thyroid UK
23 days ago
Sally Pacholok tonight 7pm UK time (Daylight Savings Time) in 90 minutes. Monday 9 Sept
I know it's been mentioned before but we have a very important speaker tonight. Meeting URL: https://us02web.zoom.us/j/84471004296?pwd=ZDlLV0JZdEZsNllCcjlMUnRVK1RtZz09 Meeting ID: 844 7100 4296 Passcode: 656898 Sally Pacholok doesn’t need an introduction – she’s one of the most courageous and longstanding
I know it's been mentioned before but we have a very important speaker tonight. Meeting URL: https://us02web.zoom.us/j/84471004296?pwd=ZDlLV0JZdEZsNllCcjlMUnRVK1RtZz09 Meeting ID: 844 7100 4296 Passcode: 656898 Sally Pacholok doesn’t need an introduction – she’s one of the most courageous and longstanding
HugoMinney
in
Pernicious Anaemia Society
23 days ago
T3 is high
I had my annual thyroid function test last week and it looks as if my Vitamin D, B12, Folate and Fe4rritin are all a bit on the low side. As I haven't been taken any supplements this year because they were mostly very high when they tested last year, this isnt surprising and I will now begin topping
I had my annual thyroid function test last week and it looks as if my Vitamin D, B12, Folate and Fe4rritin are all a bit on the low side. As I haven't been taken any supplements this year because they were mostly very high when they tested last year, this isnt surprising and I will now begin topping
mstp
in
Thyroid UK
23 days ago
Latest blood test - advice please
I would welcome thoughts from the community on my latest blood tests please? I had these taken in August results via Medichecks. I have Hashimotos and the bloods were taken first thing in the morning. Interestingly, my Thyroglobulin antibodies are slightly down from 362 in 2022 to 287 in 2024. Not sure
I would welcome thoughts from the community on my latest blood tests please? I had these taken in August results via Medichecks. I have Hashimotos and the bloods were taken first thing in the morning. Interestingly, my Thyroglobulin antibodies are slightly down from 362 in 2022 to 287 in 2024. Not sure
Mantras131
in
Thyroid UK
23 days ago
Iron info
Iron and RLS - and you There is by now no question that iron therapy helps many if not most RLS patients. This has been proven in numerous studies, dating back to the 1950's. Yet nearly all physicians have never heard of the RLS-Iron connection, let alone how to treat it. Many patients who have
Iron and RLS - and you There is by now no question that iron therapy helps many if not most RLS patients. This has been proven in numerous studies, dating back to the 1950's. Yet nearly all physicians have never heard of the RLS-Iron connection, let alone how to treat it. Many patients who have
fritzb43
in
Restless Legs Syndrome
23 days ago
RLS and iron
HOW TO HAVE YOUR IRON STATUS CHECKED IRON INFORMATION FOR RLS PATIENTS As we know, low iron in the brain is one of the two major causes of Restless Leg Syndrome. (The other is a dopamine imbalance in the brain. In any event, RLS occurs in the brain - it is manifested in the limbs.) With regard
HOW TO HAVE YOUR IRON STATUS CHECKED IRON INFORMATION FOR RLS PATIENTS As we know, low iron in the brain is one of the two major causes of Restless Leg Syndrome. (The other is a dopamine imbalance in the brain. In any event, RLS occurs in the brain - it is manifested in the limbs.) With regard
fritzb43
in
Restless Legs Syndrome
23 days ago
Neurology appointment today!
I have a follow up appointment with the NHS neurologist today. Saw her over 18 months ago when I had some tingling nerve pain in my abdomen/hip/groin. (Follow up was supposed to be 12 months, but not surprised it’s longer). At the time she didn’t know what was causing it so referred me to Birmingham
I have a follow up appointment with the NHS neurologist today. Saw her over 18 months ago when I had some tingling nerve pain in my abdomen/hip/groin. (Follow up was supposed to be 12 months, but not surprised it’s longer). At the time she didn’t know what was causing it so referred me to Birmingham
Chickens44
in
Pernicious Anaemia Society
23 days ago
Update on neurology appointment
Saw the local consultant here in Aberdeen (not a RLS specialist) had a thick pile of paperwork, journals etc to give him. However, these were not needed (yet!) I gave him my last week symptom severity scale and monitor (from RLS-UK.ORG) which he will scan into my notes and encouraged me to bring new
Saw the local consultant here in Aberdeen (not a RLS specialist) had a thick pile of paperwork, journals etc to give him. However, these were not needed (yet!) I gave him my last week symptom severity scale and monitor (from RLS-UK.ORG) which he will scan into my notes and encouraged me to bring new
Islay9
in
Restless Legs Syndrome
23 days ago
Insights on 4 years of results?
Hello to everyone on here. Does anyone have any insights to share on my results, please? I'm due another blood test with my GP next week and I have asked for a full thyroid panel, but so far they haven't agreed to that. I asked last year too, but they were only willing to measure TSH. I have read on
Hello to everyone on here. Does anyone have any insights to share on my results, please? I'm due another blood test with my GP next week and I have asked for a full thyroid panel, but so far they haven't agreed to that. I asked last year too, but they were only willing to measure TSH. I have read on
FrancesD
in
Thyroid UK
24 days ago
Hypo crash after going too fast with T3, saliva cortisol readings
Hi, community. So I’ve been on a bit of a wild run over the past 2.5 months trying to get my thyroid therapy back in good shape. To give you a bit of the context, I am a 25 yo female, have been diagnosed with Hashimoto and subclinical hypothyroidism since 2018, started combo therapy (T4+T3) around
Hi, community. So I’ve been on a bit of a wild run over the past 2.5 months trying to get my thyroid therapy back in good shape. To give you a bit of the context, I am a 25 yo female, have been diagnosed with Hashimoto and subclinical hypothyroidism since 2018, started combo therapy (T4+T3) around
anakondratenko
in
Thyroid UK
24 days ago
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