Neurology appointment today! - Pernicious Anaemi...

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Neurology appointment today!

Chickens44 profile image
7 Replies

I have a follow up appointment with the NHS neurologist today. Saw her over 18 months ago when I had some tingling nerve pain in my abdomen/hip/groin. (Follow up was supposed to be 12 months, but not surprised it’s longer). At the time she didn’t know what was causing it so referred me to Birmingham Orthopaedic Hospital for ‘further evaluation’. It was a 45 week wait at the time for an appointment so went private. Didn’t really get to the bottom of what was causing it, despite numerous scans, MRIs, consultant appointments and pain block injections. Also physio and osteopath treatment.

My theory is - I had ‘pulled’ something in my lower back in Sept 21 and although my back seem to get better, this pain started about three months after and got worse ever since. I now wonder whether a nerve got trapped and damaged, and low B12 didn’t help it repair properly.

So will be interesting to see what she has to say …..? 🤨

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Chickens44
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7 Replies
Nackapan profile image
Nackapan

Hope it goes well. Did they do an mri scan at the time ?

They may well repeat that?

My mum fractured her pelvis with thst sort of pain .

No treatment.

Healed.

Chickens44 profile image
Chickens44 in reply to Nackapan

I had MRIs, ultrasounds and X-rays last year, just all showed wear and tear, no breaks or anything. Some scoliosis, which was put down to age related, I’m 64. So just trapped nerve causing the trouble it appears.

luckymaria profile image
luckymaria

HiI've been recovering from similar, also now one leg which ppl associated with sciatica trapped nerve. It went on since oct last year, I finally got mri, was sent for emergency gp appoint. Weird gp questioned the 'emergency ' and told me it was normal wear and tear, then scared me saying if it got worse I could have an op. but risk of paralysis. There was a 77 week wait for osteopath, but I'd already been on pain worsening from Oct- May. Many pain killers at one point antiinflammatoroes that made me feel sick had to stop. I wondered if id EVER be pain free again it was constant unless I did lots of work

Good news is, I went private chiropractor- turns out I had x3 slipped discs hes done around 8 sessions spread from may- aug and I'm pain free apart from overdoing it at gardening last week so I've booked another appt.

Long story short -.chiropractor might be worth a go.

Good luck!

Chickens44 profile image
Chickens44 in reply to luckymaria

Thanks. She thinks I have had a trapped nerve that hasn’t healed and probably won’t now. I don’t have any slipped discs, just some wear and tear. She says only strong painkillers may help (gabapentin or pregabalin, which I refuse to take, horrible drugs), or some more nerve block injections. So she’s referring me to pain management. I don’t think it helped the healing with low in Vitamin B12 and D. I do see a cranial osteopath who is working on straightening my spine and hopefully easing the pain. Last time I went I didn’t get pain the next day.

luckymaria profile image
luckymaria

Hmmm. If the nerve is trapped, couldn't it be untrapped? It is a chiropractor specialist area.... Anyway, good luck hope it gets sorted!

Chickens44 profile image
Chickens44 in reply to luckymaria

I am hoping so, but the neurologist thinks that as I trapped it three years ago, that it probably won’t heal now. But never say never …. 🤞

grandmacutler profile image
grandmacutler in reply to Chickens44

All the best, when the end of my finger was nearly severed at age 17 it took 24 years and one day I awoke to the finger being healed. I suddenly became aware that the feeling of numbness had disappeared.

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