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Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
1 month ago
Hypo book recommendations please UK
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Fizzwhizz
in
Thyroid UK
5 months ago
This, that, all?
Hello everyone, Please do bear with me. I may have written a lot but I think it is important to get a proper picture and to help me make an informed decision. Main question at the end. Thank you. I was dx with hypothyroidism in 2016. Around the same ime I was dx with metabolic syndrome. (Cholestrol
Hello everyone, Please do bear with me. I may have written a lot but I think it is important to get a proper picture and to help me make an informed decision. Main question at the end. Thank you. I was dx with hypothyroidism in 2016. Around the same ime I was dx with metabolic syndrome. (Cholestrol
Demitria
in
Thyroid UK
6 months ago
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Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
5 months ago
Feeling helpless & hopeless
I dunno what to do anymore. I just turned 39, I was diagnosed around 18 months ago. Tried non-stimulant medication, didn't work, and made my ADHD and the associated depression worse, despite it being an anti-depressant treatment (Strattera/Atomoxatine). Went to adderall, seems to have a minimal effect
I dunno what to do anymore. I just turned 39, I was diagnosed around 18 months ago. Tried non-stimulant medication, didn't work, and made my ADHD and the associated depression worse, despite it being an anti-depressant treatment (Strattera/Atomoxatine). Went to adderall, seems to have a minimal effect
JB0205
in
CHADD's Adult ADHD Support
2 months ago
Generic Link?
I have historically been diagnosed with low B12 and now two of my children have been diagnosed with my son starting injections in new year. Is anyone aware of a genetic component to this condition? Thanks.
I have historically been diagnosed with low B12 and now two of my children have been diagnosed with my son starting injections in new year. Is anyone aware of a genetic component to this condition? Thanks.
EliTottie
in
Pernicious Anaemia Society
5 months ago
I could use some advice for my son's meds.
My eight-year-old son was diagnosed with ADHD about a year and a half ago. I strongly suspected as much for a couple years. He had every symptom. Anyway, we had him on Ritalin at first. I want to say we started at 5mg, which helped a little, but we moved him up to 10 a couple weeks after if I remember
My eight-year-old son was diagnosed with ADHD about a year and a half ago. I strongly suspected as much for a couple years. He had every symptom. Anyway, we had him on Ritalin at first. I want to say we started at 5mg, which helped a little, but we moved him up to 10 a couple weeks after if I remember
RandomNames43
in
CHADD's ADHD Parents Together
2 months ago
latest results…
TSH - 3.58 (0.27-4.2) T3 - 4.7 (3.1-6.8) T4 - 21.6 (12-22) Thyroglobulin 13.4 (0-115) Peroxide <9 (0-34) Vit D - 82.9 (50-250) Ferritin - 64.6 (30-150) Folate - 31.6 (>7) B12- 112 (37.5-188) Magnesium- 0.89 (0.66-0.99) I am having symptoms of an under active thyroid or fatigue like never before
TSH - 3.58 (0.27-4.2) T3 - 4.7 (3.1-6.8) T4 - 21.6 (12-22) Thyroglobulin 13.4 (0-115) Peroxide <9 (0-34) Vit D - 82.9 (50-250) Ferritin - 64.6 (30-150) Folate - 31.6 (>7) B12- 112 (37.5-188) Magnesium- 0.89 (0.66-0.99) I am having symptoms of an under active thyroid or fatigue like never before
Goinginsane1
in
Thyroid UK
5 months ago
vitamin d
can I ask what the ideal vitamin d level should be for thyroid patients please? mine is 82.9 nmol/L. I take an omega 3 which contains 400 iu vit d and I have just started taking another 1000iu supplement too. I am eating 2 eggs daily and eat salmon fairly often. Thanks in advance
can I ask what the ideal vitamin d level should be for thyroid patients please? mine is 82.9 nmol/L. I take an omega 3 which contains 400 iu vit d and I have just started taking another 1000iu supplement too. I am eating 2 eggs daily and eat salmon fairly often. Thanks in advance
Goinginsane1
in
Thyroid UK
5 months ago
Does The Thyroid Affect Potassium Levels?
Hi! A bit of a random question but I’ve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hi! A bit of a random question but I’ve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hidden
in
Thyroid UK
5 months ago
How to get help when my results are in range?
Hello all I have posted before and nothing has changed much. I had some recent tests via my GP and the surgery is on my case as my cholesterol is quite high (7) and there are mutterings about statins which I have refused, I have had very bad hair loss in the past 2 years with no obvious cause. I have
Hello all I have posted before and nothing has changed much. I had some recent tests via my GP and the surgery is on my case as my cholesterol is quite high (7) and there are mutterings about statins which I have refused, I have had very bad hair loss in the past 2 years with no obvious cause. I have
karlek
in
Thyroid UK
5 months ago
Vit E, B 12, CoQ10?
Hi there, has anyone got or knows someone that has ataxia caused by deficiencies of:Vitamin E Vitamin B12 Or CoQ10 I have often seen these mentioned on the Internet but have never actually known anyone whose cerebeller ataxia is caused by any of them. Or maybe another supplement essential to the body
Hi there, has anyone got or knows someone that has ataxia caused by deficiencies of:Vitamin E Vitamin B12 Or CoQ10 I have often seen these mentioned on the Internet but have never actually known anyone whose cerebeller ataxia is caused by any of them. Or maybe another supplement essential to the body
penelope2
in
Ataxia UK
5 months ago
Blood Test Results.
Just a quick question. I had my monthly B12 injection two days before having a blood test. Could this make my b12 levels abnormally high? TIA
Just a quick question. I had my monthly B12 injection two days before having a blood test. Could this make my b12 levels abnormally high? TIA
Clare_oxo
in
Pernicious Anaemia Society
5 months ago
How to wean off omeprazole
I’ve just had some blood tests done prior to some surgery and the results show there may be a problem with vitamin B12 levels. Hmm, I take 20mg omeprazole daily, in capsule form. Anyone any idea of the best way to come off this? I believe I’ll have to gradually wean off it?
I’ve just had some blood tests done prior to some surgery and the results show there may be a problem with vitamin B12 levels. Hmm, I take 20mg omeprazole daily, in capsule form. Anyone any idea of the best way to come off this? I believe I’ll have to gradually wean off it?
SuziElley
in
Atrial Fibrillation Support
5 months ago
Healing slowed due to lack of sun energy.
I am still healing but it is slower and I need more sleep to heal. It became definitive when there was stronger February sun and there happened to be fewer clouds. I got "good sun" and needed a lot of sleep. The sun is doing its part it is the peskey clouds fault. 🙂 I do take 1000 IU of D3, 3 IU of
I am still healing but it is slower and I need more sleep to heal. It became definitive when there was stronger February sun and there happened to be fewer clouds. I got "good sun" and needed a lot of sleep. The sun is doing its part it is the peskey clouds fault. 🙂 I do take 1000 IU of D3, 3 IU of
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
Loading dose reactions
Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Hi all, so happy to have found this forum. I was diagnosed as B12 deficient just a couple of weeks ago after being unable to attribute my weird collection of symptoms to either a busy life (fatigue, brain fog) or spinal nerve inpingement (cramp, twitches, bone pain). It was the lip twitching that finally
Myoldcat
in
Pernicious Anaemia Society
5 months ago
Results advice please
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Good morning, I would really welcome some advice from this amazing community about my latest results. Due to advice from this group I have been increasing my Levothyroxine dose since July as I was under medicated for a long time (25mg daily). I increased to 50mg on 25th July and retested in Sept, I
Flamingo60
in
Thyroid UK
5 months ago
Latest test results
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Hello I have been taking 75mcg of Levothyroxine (50mcg Accord and 25mcg of Mercury Pharma) for 7 weeks. I had a blood test on Monday 18.12 following all the advised protocols. My GP (8.45am) result is TSH 1.01 (0.27 - 4.2) Monitor My Health (7.30am) results from the same day are TSH 1.19 (0.27
Amtired
in
Thyroid UK
5 months ago
Serum T3 too low? (Combo therapy)
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
Hi, I have been stable on 150mcg T4 + 12.5mcg T3 for about 10 weeks (gradually dropped the levo and added the T3), I did this test the other week and was surprised to see such low serum T3. - I did the test fasted at 9.20am - The 12.5mcg T3 was taken the previous night at 9.20pm (12 hours before
cody_lamonica
in
Thyroid UK
5 months ago
Best way of treatement?
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Hi, all dear B12 def sufferers, After one year of sc injections EOD my bloods are still not excellent. Low Hb, low count of erytrocytes and MCV is high. My neurological spts are much improved comparing to my situation one year back. I still have some spts of subacute degeneration of spinal cord,
Annaunge
in
Pernicious Anaemia Society
5 months ago
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