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Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
4 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
5 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
4 months ago
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Need Advice on Labs - Long
I’m Desperately trying to get my health/life back…. And failing miserably! Most people here know I lost my thyroid 7 years ago to thyroid cancer which a short 2 weeks after the surgery I developed debilitating pains after a year and half of suffering finally diagnosed with psoriatic arthritis which
I’m Desperately trying to get my health/life back…. And failing miserably! Most people here know I lost my thyroid 7 years ago to thyroid cancer which a short 2 weeks after the surgery I developed debilitating pains after a year and half of suffering finally diagnosed with psoriatic arthritis which
Batty1
in
Thyroid UK
4 months ago
Cracked it .... and then it came back !
Hi everyone, A while ago I posted about how my RLS had virtually gone following the use of vitamin B1, in addition to the usual magnesium. Fennel also appeared to help. I am diabetic (type 2) and appear to have some form of neuropathy in the feet which can feel numb sometimes but not to the touch
Hi everyone, A while ago I posted about how my RLS had virtually gone following the use of vitamin B1, in addition to the usual magnesium. Fennel also appeared to help. I am diabetic (type 2) and appear to have some form of neuropathy in the feet which can feel numb sometimes but not to the touch
Summer194
in
Restless Legs Syndrome
5 months ago
Levothyroxine and B12 possible interactions
I have been taking Levothyroxine for many years and believe that the symptoms I experience for both too much or too little Levothyroxine are identical. When I experience an increased pulse rate that can be because of either too much of too little Levothyroxine but keeping my dose fixed this problem is
I have been taking Levothyroxine for many years and believe that the symptoms I experience for both too much or too little Levothyroxine are identical. When I experience an increased pulse rate that can be because of either too much of too little Levothyroxine but keeping my dose fixed this problem is
yorkshiregirl4
in
Pernicious Anaemia Society
4 months ago
Taking Urso
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Good morning, everyone! I have a question about Urso. Is it fine to take your Urso in one dose instead of two? I never forget mornings. I also have no reactions to taking it so far after two and a half months. I also have a question about bone density tests. I have found a former student who
Gaspereaux
in
PBC Foundation
4 months ago
Money saving
I’ve never posted on here before as I’ve been really lucky with my surgery and treatment of my B12. However, on 05/01/24 I was informed that this would be my last injection, I would need a blood test to confirm if my injections were to be continued. Quite open about the fact that everyone in the surgery
I’ve never posted on here before as I’ve been really lucky with my surgery and treatment of my B12. However, on 05/01/24 I was informed that this would be my last injection, I would need a blood test to confirm if my injections were to be continued. Quite open about the fact that everyone in the surgery
raye-12
in
Pernicious Anaemia Society
4 months ago
Looking for comments on this opening info sheet.
I am a doctor who got interested in RLS over 6/12 ago when my wife's RLS went crazy when she was trying to use Phenergan (sedating antihistamine) to sleep. After a couple of sleepless night she was a mess and complained "And there is no treatment for restless legs!!". I thought that could not be right
I am a doctor who got interested in RLS over 6/12 ago when my wife's RLS went crazy when she was trying to use Phenergan (sedating antihistamine) to sleep. After a couple of sleepless night she was a mess and complained "And there is no treatment for restless legs!!". I thought that could not be right
RLSLearner
in
Restless Legs Syndrome
4 months ago
Nerves
Hi been taking b12 now 3 years I inject every 4 weeks over the last couple of months notices tingling pain in feet and knees and arm and tightness in my knuckles when I wake up.also back pain and bladder pain don't know if I'm not getting enough or my nerve endings slowly waking up
Hi been taking b12 now 3 years I inject every 4 weeks over the last couple of months notices tingling pain in feet and knees and arm and tightness in my knuckles when I wake up.also back pain and bladder pain don't know if I'm not getting enough or my nerve endings slowly waking up
Mozza127
in
Pernicious Anaemia Society
4 months ago
Latest Private Blood Test Results.
Hi, I’m just looking for thoughts on my latest blood test results. I’m feeling ok, but still get tired. currently on (Levothyroxine 75mgs and T3 10mgs ). Daily. I also take vitamins c, magnesium, folate, omega 3,6,7&9. I also take HRT progesterone & Estrogel
Hi, I’m just looking for thoughts on my latest blood test results. I’m feeling ok, but still get tired. currently on (Levothyroxine 75mgs and T3 10mgs ). Daily. I also take vitamins c, magnesium, folate, omega 3,6,7&9. I also take HRT progesterone & Estrogel
Bright-eyes
in
Thyroid UK
5 months ago
Friends thyroid results, please can anyone advise?
Hi! A fellow Pernicious Anaemia sufferer and friend of mine needs some thyroid help please! I'm also hypothyroid / hashi and still 18 months into my journey and not quite there yet so feel the need for advice!. She had some bloods taken this week and the results to me look less than optimal, while being
Hi! A fellow Pernicious Anaemia sufferer and friend of mine needs some thyroid help please! I'm also hypothyroid / hashi and still 18 months into my journey and not quite there yet so feel the need for advice!. She had some bloods taken this week and the results to me look less than optimal, while being
Opal79
in
Thyroid UK
5 months ago
iron supplements
hello! I wondered if anyone could recommend an iron supplement that has no nasties in? The GP suggested I go on it because I’m slightly anaemic. I am very careful with other supplements to not have additives that might trigger the AF (like B12, Vit D etc) but can’t seem to find an iron supplement that
hello! I wondered if anyone could recommend an iron supplement that has no nasties in? The GP suggested I go on it because I’m slightly anaemic. I am very careful with other supplements to not have additives that might trigger the AF (like B12, Vit D etc) but can’t seem to find an iron supplement that
Green_pink
in
Atrial Fibrillation Support
5 months ago
Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
1 day ago
B12 and Folate
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
wolthebuilder
in
Thyroid UK
4 days ago
Male fertility & Advice
When I was 15 (2008) I was diagnosed with Stage 4 Hodgkins Lymphoma Disease and required chemotherapy. I was told it could impact on fertility with the chances being 50/50. I was asked to provide a sample but chose not to. Now in my 30s I am trying for a baby with my partner. We’ve been trying for
When I was 15 (2008) I was diagnosed with Stage 4 Hodgkins Lymphoma Disease and required chemotherapy. I was told it could impact on fertility with the chances being 50/50. I was asked to provide a sample but chose not to. Now in my 30s I am trying for a baby with my partner. We’ve been trying for
JonathanL
in
Fertility Network UK
5 months ago
advice please
I posted before my trial off B12 and now I’m posting recent bloods and diary of symptoms. I hope that someone can look over them to help me. I fear that they aren’t going to reinstate my b12 injections. hope it all makes sense History Diverticulitis diagnosed 2018 Hashimoto’s diagnosed 2019
I posted before my trial off B12 and now I’m posting recent bloods and diary of symptoms. I hope that someone can look over them to help me. I fear that they aren’t going to reinstate my b12 injections. hope it all makes sense History Diverticulitis diagnosed 2018 Hashimoto’s diagnosed 2019
Fluffyone
in
Pernicious Anaemia Society
5 months ago
What is supplies run out?
Hello all. I use Methylcobalamin and was wondering if the place I buy mine from goes out of business, what I would do. I've tried finding a backup or two, but so far the place I buy from is $55.00 for a vial (10 shots/vial). I mean I have no reason to think they will go out of business, but with things
Hello all. I use Methylcobalamin and was wondering if the place I buy mine from goes out of business, what I would do. I've tried finding a backup or two, but so far the place I buy from is $55.00 for a vial (10 shots/vial). I mean I have no reason to think they will go out of business, but with things
MrJustatip
in
Pernicious Anaemia Society
5 months ago
Recent blood tests
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Colvic
in
Thyroid UK
5 months ago
B12 Side effects
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
At my last blood take the Serum & Folate B12 reading was 278 ng/L and have been prescribed Cyanoco B12 100mcg tablets one per day Since taking B12 my skin has been alive with irritation, in particular my back - is this usual?
LONGEATON
in
Thyroid UK
11 days ago
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