I’d like to thank everyone for all the support though the years of my PD. I have come quite a aways. Your kindness and support helped me get through the hardest years of my life. I will check back from time to time if I come up with something that can help others. I have chosen to let go of my Parkinson’s obsession, and live. One main ways is to cut out these boards. I believe my PD is more of a mental disorder. My PD, maybe yours too?? Maybe not? My symptoms were the same for years until I figured it out what the symptoms were, then I fell of a cliff.
The number 1 thing I would do suggest to do is WIM HOF method. It’s changed my life more than anything else. I’m driving home, my extended family was amazed on how well I’m doing. They haven’t seen me in about a year. It’s not meds. It’s the method. It so simple and effective, most will discount it . I will soon be off levodopa. My mao-b inhibitor may take longer to get off. Please read this book with an open mind. I’m not saying I’m cured. I just don’t need the c/l anymore. I’m back to my starting dose, 5.5 years ago.
My extremities were cold my whole life. The cold exercises your vascular system. My hands and feet are now always warm. More blood flow. Also more blood flow to the brain.
Vitamin B2, especially if your 2nd and third toenails are infected with athletes foot. MTHFR is key. B2 can overcome MTHFR genes. Look at my previous post. No side effects, no brainer.
Also, look into GylNAC. Read my previous posts about it.
Stay away from Sugar as much as possible. It’s terrible for the brain.
Look into fasting. It’s more of a path to your brain. Autophagy is crucial for fighting PD, fasting is a great way to induce it.
Nicotine is my substitute for c/l. Less is more. Try the gum. I believe the patch trial failed because it’s too much nicotine all the time. Like too much c/l can do the opposite. Read my previous posts.
Of coarse exercise. It’s a no brainer.
If anyone who reads this, wants to talk. My email is cameronhermansen@gmail.com
Maybe it’s all placebo. Maybe not. My PD never responded that great to c/l.
The best advice I’ve ever had with PD is act like you don’t have it. Live!
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38yroldmale
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Thank you for all you have shared. I’m very happy that you are in a position to go and live your life. Wishing you the best as you continue your journey.
Thank you for this! I agree that obsession over PD isn't helpful. I also think mindset is huge and feel trapped in fight flight freeze..
Before you take off can you answer this. I read whm book and downloaded the app. It's breathing and holding breath and cold exposure right? It's not more than that right? How often do you practice it daily and how long did it take to start noticeable improving your symptoms?
Yep, so simple. The cold and the breath gives you access the deepest part of the brain. I try to make the cold harder and harder. Started with cold showers. That got too easy so I got a cold plunge. It got to easy so I hacked the plunge to go down to 35 degrees. Making it progressively harder makes you more and more mentally strong. I say this not to brag but to say you can be mentally strong. I put myself in a safe place in my mind.
It took months to see effects. Little by little, only after seeing someone who hadn’t seen me in a while did I realize how much better I was. I want to live, I feel excited about things I used to. I am living in the moment. I would worry more about living than improving. Make it harder. Lean into the cold. Have your mind tell your body, I’m in charge.
Wim Hof is a miracle worker. Set goals. The day to day process will be hard to see improvements. Give yourself grace. I sucked at it at first . Little by little, you can change.
Ha! That’s awesome!! I just did my WHM for the day. I agree that it’s life changing. Been doing it for years and still on minimal meds. More power to you!!
All the best for your sabbatical and thank you so much for everything.
You have listed the major actions PWPs should take, Fasting/Autophagy, Wim Hof Breathing & Cood plunges, Exercise, B2, GlyNAC & Nicotine.
My only request is that instead of people searching your posts, if you would take some time to list the details of your exercise, medication and supplements in a single post along with your schedule it will be very helpful.
Clinical studies in older adults found that short-term GlyNAC supplementation for 2 wk begins to improve mitochondrial dysfunction, and a longer duration of GlyNAC supplementation for 24 wk fully corrects mitochondrial dysfunction."
Very inspiring post! Congratulations! Thank you so much. One question to you or to anybody else: where can I learn more about this “cold laser?” Somehow I’ve missed this in my investigations.
congratulations! It is always great to hear stories like this. I hope the changes to your body as a result of your efforts are permanent! I was given a cold plunge tub as a gift from my wife and have just started using it. I have following Wim Hof but not been consistent with his methods. That will soon change. You also mention nicotine gum. Several friends have recently mentioned if I use it(coincidence maybe?). Just learned our bodies have the ability to absorb/accept nicotine. I will need to learn more
One thing to watch out for with cold plunge is narrowing of your ear canals. Sounds crazy but it's true. My doc was commenting on the tori in my lower jaw (protrusion in your gums below your lower incisors). It's a thickening of the bone caused by years of clenching my jaw, and chewing/eating things that are hard/crunchy. I knew about that from my dentist but didn't know about the cold water effect on ear canals.
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Some questions for everyone.
