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Steroid purpura~ not to worry
I took it upon myself to see a hematologist. The only thing I can't deal with is the unknown. These blotches, large and small, are constantly on my legs and arms in places where I knew it wasn't a bruise; all kinds of shapes and sizes. They stay for at least three days and then appear in other spaces
I took it upon myself to see a hematologist. The only thing I can't deal with is the unknown. These blotches, large and small, are constantly on my legs and arms in places where I knew it wasn't a bruise; all kinds of shapes and sizes. They stay for at least three days and then appear in other spaces
Grammy80
in
PMRGCAuk
2 years ago
I feel dreadful I am wailing through my usual dreadful medical disorders, but was not aware that my wee sister had PTSD for ten years!
I was laying on for years about my health laying it on thick, getting her to solve my legal and background matters, I have my ups and downs like herself, I have had blank periods whereby nothing goes or comes out due to an especially bad time, epilepsy, early dementia, prostate cancer, etc, it could
I was laying on for years about my health laying it on thick, getting her to solve my legal and background matters, I have my ups and downs like herself, I have had blank periods whereby nothing goes or comes out due to an especially bad time, epilepsy, early dementia, prostate cancer, etc, it could
Adlon57
in
Anxiety and Depression Support
2 years ago
The PSP-CBD Ice Cream Challenge Day 29
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
Day 29 - Picking Strawberries Maple Crunch ice cream covered with strawberry tops and pieces. I made the picker from three different sized strawberries. The 'blue' jeans get their colour from a mixture of flour and blue food colouring, belt from Smucker's chocolate magic shell (hair also), shoes - chocolate
daddyt
in
PSP Association
2 years ago
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Dry eyes
I have Raynards from birth. With very. Dry skin that l oil every day with baby oil or almond oil and a layer of lock in moisture cream.. Over the past two years lve had problums with my eyes being so dry and blurred lve had drops and jell creams thats not really helped.. Is this natural having Raynards
I have Raynards from birth. With very. Dry skin that l oil every day with baby oil or almond oil and a layer of lock in moisture cream.. Over the past two years lve had problums with my eyes being so dry and blurred lve had drops and jell creams thats not really helped.. Is this natural having Raynards
Liz2beth22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
Recently diagnosed with myopic CNV
Hello all, very newly diagnosed with myopic CNV in my right eye (I’m 41 years old) and had my first injection last Tuesday. I have distortion in my central vision. I’m desperately trying to remain positive but it all came on so quickly I didn’t ask any questions nor really understand the condition. Will
Hello all, very newly diagnosed with myopic CNV in my right eye (I’m 41 years old) and had my first injection last Tuesday. I have distortion in my central vision. I’m desperately trying to remain positive but it all came on so quickly I didn’t ask any questions nor really understand the condition. Will
Anagramme
in
Macular Society
2 years ago
Waking up gasping for air when first falling asleep? Help!
Why is this happening to me? I had a near head-on collision with a wrong way driver on the interstate in June and haven’t slept well since. It was a terrifying experience and brought back many memories of nearly dying a few times growing up. I was kidnapped in a foreign country at 8 years old. I was
Why is this happening to me? I had a near head-on collision with a wrong way driver on the interstate in June and haven’t slept well since. It was a terrifying experience and brought back many memories of nearly dying a few times growing up. I was kidnapped in a foreign country at 8 years old. I was
SkySnake22
in
Anxiety Support
2 years ago
Any advice for first Pegasys injection?
Tomorrow will be my first Pegasys injection. I realize I may have some flu type symptoms afterwards but wondered if anyone has any advice on the best way to limit the side effects, if any? Thanks! Kim
Tomorrow will be my first Pegasys injection. I realize I may have some flu type symptoms afterwards but wondered if anyone has any advice on the best way to limit the side effects, if any? Thanks! Kim
Wewo01
in
MPN Voice
2 years ago
Some help needed.
Hey all. Just joined. Am 44 and been diagnosed with glaucoma after a steroid reaction after a vitrectomy and the pressure in my left eye going to 55!! The outside glare is terrible but indoors I am relatively normal. I just need some advice in general about what to do and how to stop feeling so rubbish
Hey all. Just joined. Am 44 and been diagnosed with glaucoma after a steroid reaction after a vitrectomy and the pressure in my left eye going to 55!! The outside glare is terrible but indoors I am relatively normal. I just need some advice in general about what to do and how to stop feeling so rubbish
Oneurope
in
Glaucoma UK
2 years ago
Just joined
Hi everyone, I haven't been diagnosed with macular degeneration yet but its highly likely that I will develop it. My Dad had both wet & dry, he ended up having to be registered blind. My DNA shows that I have varients that put me at a higher risk of developing it. Yesterday my optician told me the the
Hi everyone, I haven't been diagnosed with macular degeneration yet but its highly likely that I will develop it. My Dad had both wet & dry, he ended up having to be registered blind. My DNA shows that I have varients that put me at a higher risk of developing it. Yesterday my optician told me the the
Villagelife
in
Macular Society
2 years ago
Anyone on Lexapro
I started taking Lexapro 5mg. My head feels hard , I have no concentration and I am so sleepy.. Anyone ever take this med ? Will it go away?? I have PTSD with depression and anxiety. Seems the anxiety has only gone away.
I started taking Lexapro 5mg. My head feels hard , I have no concentration and I am so sleepy.. Anyone ever take this med ? Will it go away?? I have PTSD with depression and anxiety. Seems the anxiety has only gone away.
Hidden
in
Anxiety and Depression Support
2 years ago
Sulphasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
I saw both rheumatologist and ophthalmologist last week. Good news - I'm having cataract surgery under general anaesthetic. Apparently its high risk hence general. I'm also down on prednisolone from 15mg to 12.5mg. I'm hoping to be symptom free reducing by 2.5mg. Bad news - I'm now have to take sulpasazine
PSAWarrior28
in
NRAS
2 years ago
For those that were interested in PEP BUDDY
Just a heads up for anyone that is interested in trying out the new breathing device Pep Buddy, it is now available on Amazon American site and they post to GB . You can also purchase direct from them . Here is the link they sent me https://pepbuddy.com/products/pep-buddy-breathing-device
Just a heads up for anyone that is interested in trying out the new breathing device Pep Buddy, it is now available on Amazon American site and they post to GB . You can also purchase direct from them . Here is the link they sent me https://pepbuddy.com/products/pep-buddy-breathing-device
Piper21
in
Lung Conditions Community Forum
2 years ago
Sad Times 😞
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
We lost our beautiful Brodie Bear two weeks ago. I haven’t posted about it because we have been trying to keep busy but we are truly heartbroken. He was only off his food for a few days then violently sick over the Easter weekend and we took him to the emergency vets. To our horror he was in kidney failure
CecilyParsley
in
LUPUS UK
2 years ago
Bloodshot eye from a scratch now seems to be more bloodshot.
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Hello all, A week ago I scratched the lower part of the white of my eye. The blood seemed to be diminishing, but several days ago when waking up the eye was painful, like very bad dry eye. Cool eye drops helped, but it is still sore and veins around the eye are more red. My vision doesn’t
Mstiles
in
PMRGCAuk
2 years ago
NHS and 2nd potential anti vegf
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Hello all even though I work for the NHS I still despair at the appointment system sometimes! I paid to go privately for my first anti vegf injection and the consultant said he would slot me into his nhs clinic for the second but due to probably the jubilee BH my second one will be 5 weeks 2 days after
Deepbluesea2022
in
Macular Society
2 years ago
6 top tips for controlling seasonal allergies
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
As temperatures start to rise on the build-up to summer, so does the pollen count. However, the warmer weather also typically lessens joint pain for those with RA which puts many in a predicament! Here's our top 6 tips to take advantage of the Great British summer, without the bloodshot eyes. Read our
Aribah-NRAS
NRAS
in
NRAS
2 years ago
Thiamine Tetrahydrofurfuryl Disulfide (TTFD) requires methylation
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Excellent write up on Thiamine Tetrahydrofurfuryl Disulfide (TTFD) but I am unsure if it is a Methyl Donor or requires a Methyl Donor. https://www.eonutrition.co.uk/post
Gcf51
in
Cure Parkinson's
2 years ago
Traveling with Pegasys on airplane.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
Any suggestions on traveling with Pegasys prefilled syringe? I know it needs to be stored at 36-46 degrees Fahrenheit.
JeanieRN
in
MPN Voice
2 years ago
Any eye problems?
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
Hi My husband who has PV has had sore, itchy eyes for a couple of weeks, with painful spots appearing on the edges of his eye lids. He went to the GP 2 weeks ago and was given a couple of different eye ointments (an antibiotic and a lubricant). However, the problems haven’t gone away so I’ve persuaded
MarybellM
in
MPN Voice
2 years ago
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