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Your best adjunct therapy pick
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
Dabaa
in
Cure Parkinson's
1 month ago
Advice on medication
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Callymac
in
PMRGCAuk
8 months ago
Has anyone found Mebeverine/Buscopan helpful?
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Mindfullness4791
in
Endometriosis UK
10 months ago
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any wind tips?
Hi, I have shocking wind when I have an IBS flare up, I’ve tried peppermint oil capsules and peppermint tea but they don’t seem to help for long. Does anyone have any suggestions what to try? Thanks
Hi, I have shocking wind when I have an IBS flare up, I’ve tried peppermint oil capsules and peppermint tea but they don’t seem to help for long. Does anyone have any suggestions what to try? Thanks
1230753
in
IBS Network
10 months ago
Mirena and Estrogen patches
Hi there, I was diagnosed with Endo at 47 (my pain was undiagnosed for years) and had an oophorectomy (1 ovary) a year later and been trying different hormone combinations since to get me through menopause. After a year on prostap injections with hrt Tibolone, which made me feel very depressed, I've
Hi there, I was diagnosed with Endo at 47 (my pain was undiagnosed for years) and had an oophorectomy (1 ovary) a year later and been trying different hormone combinations since to get me through menopause. After a year on prostap injections with hrt Tibolone, which made me feel very depressed, I've
Ruthie72
in
Endometriosis UK
1 year ago
Stopping Prostap, How do I stop Hrt? Do I wean off slowly? I'm unsure and scared xxx
I've had Prostap injections twice now and really struggling mentally, I'm not having a third injection and therefore unsure how to manage the hrt side of things, I have Tibelone, has anyone had experience in weaning off when my injection has run its course, I struggle with depression and anxiety bad
I've had Prostap injections twice now and really struggling mentally, I'm not having a third injection and therefore unsure how to manage the hrt side of things, I have Tibelone, has anyone had experience in weaning off when my injection has run its course, I struggle with depression and anxiety bad
Victoria101986
in
Endometriosis UK
1 year ago
Pain 4 weeks after oophorectomy
Hello all, I'm just posting in the hopes that someone else has also experienced something similar and that I'm not alone! A quick timeline of my endo journey for background: -Diagnosed in October 2017 after 8 years of suffering at the age of 23. I also had an ovary that had burst due to a very large
Hello all, I'm just posting in the hopes that someone else has also experienced something similar and that I'm not alone! A quick timeline of my endo journey for background: -Diagnosed in October 2017 after 8 years of suffering at the age of 23. I also had an ovary that had burst due to a very large
AGI1994
in
Endometriosis UK
1 year ago
Prostap or is it Prostrap!!!
I had a 6 month injection course of Prostap or was it Prostrap when i was 32. It helped me no end in my end to heavy long periods. I've been reading some posts and am feeling sad that its not seemed to be working for them. I noticed a drop in my periods 2nd injection in, and have not had a period
I had a 6 month injection course of Prostap or was it Prostrap when i was 32. It helped me no end in my end to heavy long periods. I've been reading some posts and am feeling sad that its not seemed to be working for them. I noticed a drop in my periods 2nd injection in, and have not had a period
valgal76
in
Menopause and Perimenopause Support
1 year ago
anyone had prostap without Tibolone?
Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pre hysterectomy) .. I didn’t take the Tibolone due to my fears for the first 3 months , but tried it on a half dose for about a month when I started the second 3month injection . Then I hated the side effects and they made
Hi I’m nearly 5 months in on the 3monthly prostap ( for fibroid shrinkage and pre hysterectomy) .. I didn’t take the Tibolone due to my fears for the first 3 months , but tried it on a half dose for about a month when I started the second 3month injection . Then I hated the side effects and they made
Batwoman3
in
Endometriosis UK
1 year ago
prostap injection
hi, I just wanted to know when you’re periods stop while your on the prostap injection? As I’m worried, I’ve been on it for 4 months and I’m still having my periods! But thankfully no pain!
hi, I just wanted to know when you’re periods stop while your on the prostap injection? As I’m worried, I’ve been on it for 4 months and I’m still having my periods! But thankfully no pain!
Ru1989
in
Endometriosis UK
1 year ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
3 months ago
Does anyone on similar meds to me for RA have Irritable Bowel Syndrome?
I've been on rituximab and Lefludomide for about ten years and all is reasonably stable. However over about five years I've developed IBS symptoms - wont repeat them here. They do limit what I can do and wonder if anyone else has suffered from them. I'm not convinced the meds are to blame incidentally
I've been on rituximab and Lefludomide for about ten years and all is reasonably stable. However over about five years I've developed IBS symptoms - wont repeat them here. They do limit what I can do and wonder if anyone else has suffered from them. I'm not convinced the meds are to blame incidentally
cathie
in
NRAS
10 months ago
Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
3 months ago
Found something that is helping so far!
I was diagnosed at age 35 with ADHD by my therapist who recognized the life patterns I had. My therapist disclosed they also have ADHD and recognized the same struggles they had dealt with when they were younger. I had two kids pretty close together in 2021 and 2022 and due to covid started working from
I was diagnosed at age 35 with ADHD by my therapist who recognized the life patterns I had. My therapist disclosed they also have ADHD and recognized the same struggles they had dealt with when they were younger. I had two kids pretty close together in 2021 and 2022 and due to covid started working from
BlessedNeuroDiverse
in
CHADD's Adult ADHD Support
1 year ago
tips to convince gynaecologist to give me a hysterectomy
Hello I need some effective tips to convince my gynaecologist to give me a hysterectomy I have had laps in the past to remove endo I have had two children I do not want anymore I have been on prostap injections for the past 16 to 18 months and cannot tolerate the side-effects anymore Mood
Hello I need some effective tips to convince my gynaecologist to give me a hysterectomy I have had laps in the past to remove endo I have had two children I do not want anymore I have been on prostap injections for the past 16 to 18 months and cannot tolerate the side-effects anymore Mood
Prettythings1
in
Endometriosis UK
1 year ago
Ropinirole, Pramipexole and etc
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
kika82
in
Restless Legs Syndrome
11 months ago
Parkinsons & Prostate cancer
My husband is the PWP and has recently been diagnosed with Prostate cancer. He is having hormone therapy now in the form of Prostap injection every 3 months prior to Radiotherapy.He is now having more difficulty with walking , particularly turning, since the hormone treatment started and wondering if
My husband is the PWP and has recently been diagnosed with Prostate cancer. He is having hormone therapy now in the form of Prostap injection every 3 months prior to Radiotherapy.He is now having more difficulty with walking , particularly turning, since the hormone treatment started and wondering if
Jalia
in
Cure Parkinson's
1 year ago
Rampril
Hi there dose anyone know if its OK to take omega 3 fish oil while taking rampril
Hi there dose anyone know if its OK to take omega 3 fish oil while taking rampril
Tay99
in
British Heart Foundation
11 months ago
Joint Pain months after Prostap
I had my last prostap injection in January and from December throughout including now I’ve been suffering with joint and pelvic pain spread in across into my lower back, hips and legs. Does anyone have any suggestions on how to breach this with the consultants? Or how to manage it? Daily struggles
I had my last prostap injection in January and from December throughout including now I’ve been suffering with joint and pelvic pain spread in across into my lower back, hips and legs. Does anyone have any suggestions on how to breach this with the consultants? Or how to manage it? Daily struggles
victoriaat1611
in
Endometriosis UK
1 year ago
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