Parkinsons & Prostate cancer: My husband is... - Cure Parkinson's

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Parkinsons & Prostate cancer

Jalia profile image
22 Replies

My husband is the PWP and has recently been diagnosed with Prostate cancer. He is having hormone therapy now in the form of Prostap injection every 3 months prior to Radiotherapy.He is now having more difficulty with walking , particularly turning, since the hormone treatment started and wondering if there is a connection.

I would be interested to hear if anyone on this treatment has noticed a connection.

Many thanks !

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Jalia profile image
Jalia
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22 Replies
JohnPepper profile image
JohnPepper

Join the club!

I was advised to have my testicles removed and since then I have had to take nothing in the way of medication or radiology.

I find it harder to fast walk now, but, do my best and am holding in there.

Jalia profile image
Jalia in reply toJohnPepper

Thank you for replying John. I don't think my husband would fancy your treatment.....I won't even suggest it ! I've just read your very interesting bio.....quite inspiring.

JohnPepper profile image
JohnPepper in reply toJalia

That is such a pity because it is THE ONLY WAY TO REVERSE PD! Why not let hime decide, when he has looked into it? What have you got to lose. Thousand of others are doing it with good results. If you email, me I will send you some of the many emails I have received from very happy people who have started doing it.

Jalia profile image
Jalia in reply toJohnPepper

I've ordered your book from Amazon John!

JohnPepper profile image
JohnPepper in reply toJalia

Thanks! I hope you get great benefit out of it!

Jalia profile image
Jalia in reply toJohnPepper

BTW John, the treatment I was referring to was to have his testicles removed as you have done for prostate cancer. I don't think he would take the suggestion too well😂😂

JohnPepper profile image
JohnPepper in reply toJalia

How old is he? If he is not sexually active it makes no difference, other than living longer. If he is and wants to survive, he has no option. It isn't even painful. I no longer get everything tangled up in some of my clothing!

JohnPepper profile image
JohnPepper in reply toJalia

One of us is confused and I think it is me. I recommend FAST WALKING to treat PD symptoms>

JohnPepper profile image
JohnPepper in reply toJalia

I am confused!. What trwatment did I recommend?

Jalia profile image
Jalia in reply toJohnPepper

Hello John...the treatment mentioned by you was for Prostate cancer which he has as well......removal of testicles!

I did buy your book for him and he has actually read it !! He is trying to go at a faster pace. The main thing he has come to realise is that he has to keep his mind completely on walking and not to think of anything else. Last week his mind wandered and he had a nasty fall in the road. Still recovering but back on the horse again.......not literally 😄. His balance is such that he really couldn't carry weights and walk.

We are going to.look into getting a treadmill......

JohnPepper profile image
JohnPepper in reply toJalia

Been there, done that! Exactly as you said, nor concentrating on what we are doing. I fine it harder and harder to do, but at 88 I can be forf=given for that. How old is he?

Jalia profile image
Jalia in reply toJohnPepper

He is 75 John.

JohnPepper profile image
JohnPepper in reply toJalia

Has he trid to do the fast walking yet?

janers profile image
janers

Hi Jalia, I was diagnosed with PD 6 years ago, and with ovarian cancer almost a year ago. I’ve been battling the ovarian cancer very seriously with chemo and recent surgery, I definitely have noticed that my PD symptoms have worsened during this time. I think the immune system is tied into both diseases and has been overtaxed fighting off two diseases at the same time. I believe/hope that as the cancer is cleaned out of my system my immune system can tackle the PD better. Best wishes to your husband for recovery! Julie

Jalia profile image
Jalia in reply tojaners

Thank you janers . Husband is due to see Neurology nurse shortly and Oncologist some weeks later. I will put this past them

Wishing you well with your recovery!

JayPwP profile image
JayPwP

Has anyone tried Turkey Tail or Maitake mushroom? It is touted to be very effective for cancer.

House2 profile image
House2

I personally know two men that reduced their PSA levels with artemisinin, an herb.

Chillla profile image
Chillla

My husband had prostate cancer prior to his Parkinson's diagnosis. He had a very successful prostate treatment with cyber knife therapy in 2012. It was non-invasive except for the four gold seeds that were implanted to guide the radiation arm to only radiate the affected area. He's doing great today.

Dagwoods profile image
Dagwoods

in May of 2021 I was diagnosed with Prostate cancer with a PSA score of 57. 9 of the 12 biopsies were 4+4=8. My urologist immediately prescribed 2 years of hormone therapy and 44 visits to radiation therapy over 9 weeks. I was also prescribed Tamsulosin. The radiation therapy did little to drag me down, but the Eligard hormone treatment really was tough. I think the combination of being diagnosed a year later to the month as a PWP, along with Eligard and Tamsulosin (Flowmax) had pretty devastating effects on bodily blood pressure control, often very low causing severe fatigue and temperature control. Today two years later, my PSA is .11, I've been comfortably off of Tamsulosin for three weeks . My immediate hopes is for my testosterone level which is at 7.7, will start to climb back to a normal range, between 170 and 720. I walk 8000 steps a day, work out at the gym three days a week and to small weights at home every day. I do 16/8 intermittent fasting five days a week and seriously watch my carbs.

Jalia profile image
Jalia in reply toDagwoods

Thank you for an interesting reply. Sounds like you are doing the right thing with your exercise routine . I wish you well !

Husband has decided to stop hormone treatment as it was compounding his Parkinsons symptoms and making his life pretty grim. He will start Radiotherapy next month.

Mil2002 profile image
Mil2002

Hello Jalia,

My husband has Parkinson after the hormonal therapy for hos prostate cancer. He used Eligard for one year. He needed to put the injection each 3 months. After the second injection, he started with a movement in one hand, and getting worse and worse. The last October he was diagnosticated with Parkinson. I know that medicine was the cause.

Now, we need to deal with this disease that was injected... very sad.

I hope it helps,

Thank you,

Mil2002

Jalia profile image
Jalia in reply toMil2002

Thank you for your reply. I'm really sorry to hear this, particularly as you weren't aware of his Parkinson's beforehand. My husband is convinced that the injections hastened him along the Parkinson's path.

It is a truly awful disease and seems to affect everyone differently. I do hope that your husband's symptoms do not escalate unduly and that you have a good team treating him.

Best wishes.

J

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