Six months into treatment

[Homebody123]

I am now 40% of the way through 15 months of Ibrutinib and Venetoclax and continue to do well. All my counts are in the normal range and the attached shows the speed of change in my wbc. I feel very well and have much more energy than before treatment. I hope this gives optimism to others about to embark on a similar journey.

[lankisterguy Administrator]

Hi Homebody123,

We suggest that you track your ALC / Lymph# and your ANC / Neut# separately, instead of the WBC. The sum of those 2 are most of the WBC. But the Neut# can go too low during treatment. Any ANC / Neut# below 1.0 should get attention from your medical team, a value below 0.5 can be dangerous for blood infections. Your ALC / Lymph# may vary but those variations don't need urgent actions

Len

[Homebody123 in reply to lankisterguy]

Thank you

[Skyshark in reply to Homebody123]

You can add Platelets and Haemoglobin if they were affected by the CLL.

Chemistry sodium, potassium calcium, creatine.

Urea was important during Venetoclax ramp-up when TLS risk was high.

[Coldplaybest]

That's good to know. As I have mentioned before, I am 2 months behind you on the same treatment but 18 years older. The change in my blood count and lymph nodes has been really positive and side effects have been minimal. So far so good!

[Homebody123 in reply to Coldplaybest]

Good to hear and long may it continue!