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If I Knew what I know now
69 year old male with CLL--began treatment 3 years ago-Imbruvica {3x140 mg}-Learning as I go-- I believe I did the W&W longer than I needed --I should of been lobbying for treatment perhaps a year before-I of course didn't know that I would do as well with Imbruvica--now better than a year in Remission
69 year old male with CLL--began treatment 3 years ago-Imbruvica {3x140 mg}-Learning as I go-- I believe I did the W&W longer than I needed --I should of been lobbying for treatment perhaps a year before-I of course didn't know that I would do as well with Imbruvica--now better than a year in Remission
wilhoitaz
in
CLL Support
3 years ago
Post vaccine Pericarditis and Corona
Hi All, Just a simple question is there anyone here who got pericarditis or myocarditis from their vaccine who has since been sick with corona? Im obviously worried considering my health is not improving what other peoples experiences have been with getting corona after being vaccinated and getting a
Hi All, Just a simple question is there anyone here who got pericarditis or myocarditis from their vaccine who has since been sick with corona? Im obviously worried considering my health is not improving what other peoples experiences have been with getting corona after being vaccinated and getting a
Ruru83
in
British Heart Foundation
3 years ago
LLS Ciitizen USA Study Shows Most Blood Cancer Patients Benefit from an Additional (3rd) COVID-19 Vaccine Dose
It is for this reason that the ACR Task Force suggested that optimizing the timing of
vaccination
for rheumatology patients on rituximab may yield an improved response to primary
vaccination
and supplemental (booster) dosing.”
It is for this reason that the ACR Task Force suggested that optimizing the timing of
vaccination
for rheumatology patients on rituximab may yield an improved response to primary
vaccination
and supplemental (booster) dosing.”
lankisterguy
Volunteer
in
CLL Support
3 years ago
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How I got my 3rd primary and acknowledgment of my booster
health care providers nationally asking GP’s/ consultants to identify those eligible and arrange for vaccines My consultant did this and wrote to my GP All GPs have guidance regarding 3rd primary eligibility of immune compromised patients to follow in the Green Book They then should identify the local
vaccination
health care providers nationally asking GP’s/ consultants to identify those eligible and arrange for vaccines My consultant did this and wrote to my GP All GPs have guidance regarding 3rd primary eligibility of immune compromised patients to follow in the Green Book They then should identify the local
vaccination
Piwacket
in
NRAS
3 years ago
Feeling apprehensive
Feeling some what apprehensive, about going on a cruise tomorrow ,wish now we had never of booked it .I keep reassuring myself that it will be safe as everyone will be doubled vaccinated otherwise you are not accepted, and of course we have to show the proof ,it has been quite an ordeal filling in the
Feeling some what apprehensive, about going on a cruise tomorrow ,wish now we had never of booked it .I keep reassuring myself that it will be safe as everyone will be doubled vaccinated otherwise you are not accepted, and of course we have to show the proof ,it has been quite an ordeal filling in the
Alice70
in
Lung Conditions Community Forum
3 years ago
New Here! Completely Lost! Any Help Appreciated!
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Orange915618
in
Living with Reflux - Babies & Children
3 years ago
New Here! Completely Lost! Any help appreciated!
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Orange915618
in
Living with Asthma
3 years ago
New Here! Any help appreciated! Complete Lost!
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Hello, I'm new here. My 3 year old has had numerous different diagnoses thrown at her during her short life--born with hip dysphasia and hypotonia, has been extremely sick and in drs and hospitals more than out these past 3 years, history of asthma and unexplained stopping breathing, autism spectrum
Orange915618
in
Children with Allergies
3 years ago
Influenza (flu) vaccine?
While this can appear to make sense, there are also plenty of arguments to do the
vaccination
as early as possible, and the answer can really differ by individual circumstances. How about us with CLL? Should we get influenza vaccine as soon as it's available? Should we wait?
While this can appear to make sense, there are also plenty of arguments to do the
vaccination
as early as possible, and the answer can really differ by individual circumstances. How about us with CLL? Should we get influenza vaccine as soon as it's available? Should we wait?
mantana
in
CLL Support
3 years ago
Vaccine exemption FNd
Has anyone with FND been able to obtain an exemption pass? I gave the form to my GP but they said that FND was not in their list of exemptions advised me to get a second opinion in a private clinic. My question was if most doctors in The NHS do not know about FND how they expect the private to know?
Has anyone with FND been able to obtain an exemption pass? I gave the form to my GP but they said that FND was not in their list of exemptions advised me to get a second opinion in a private clinic. My question was if most doctors in The NHS do not know about FND how they expect the private to know?
Keeponfighting
in
Functional Neurological Disorder - FND Hope
3 years ago
Sweet Syndrome after Oxford-AstraZeneca COVID-19 vaccine (AZD1222) in an elderly female, SEPT 2021
After the
vaccination
, the patient had developed fever on the second day followed by the rash after about 7-days. The rash had started acutely on the hands and progressed rapidly over 1-2 days to involve her feet as well.
After the
vaccination
, the patient had developed fever on the second day followed by the rash after about 7-days. The rash had started acutely on the hands and progressed rapidly over 1-2 days to involve her feet as well.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
3 years ago
Covid boosters and pregnancy
Hi all, I was lucky enough to have both pfizer shots before getting pregnant earlier this year. I'm now 26 weeks and have been invited to get the booster. I'll be honest, before Omicron rocked up, I thought I'd wait until giving birth. I'm light years away from being an antivaxxer, I wanted the jabs
Hi all, I was lucky enough to have both pfizer shots before getting pregnant earlier this year. I'm now 26 weeks and have been invited to get the booster. I'll be honest, before Omicron rocked up, I thought I'd wait until giving birth. I'm light years away from being an antivaxxer, I wanted the jabs
Bella_Bee
in
Pregnancy and Parenting Support
3 years ago
Lupus and COVID-19 Vaccination - UPDATED 23/09/2021 - Third doses, booster doses and flu vaccines
Hi everyone, We have published an update to our information and guidance about the COVID-19 vaccines. https://www.lupusuk.org.uk/covid19-
vaccination
/ This latest update discusses the third primary doses for people with suppressed/weakened immune systems, the booster doses and flu vaccines.
Hi everyone, We have published an update to our information and guidance about the COVID-19 vaccines. https://www.lupusuk.org.uk/covid19-
vaccination
/ This latest update discusses the third primary doses for people with suppressed/weakened immune systems, the booster doses and flu vaccines.
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Covid vaccination and migraines - some good news!
Hi all, I just wanted to come on with some positive news if anyone is worried about the side effects of getting a covid jab, as I was until now! I had mine done early yesterday and today I am feeling normal, with no severe attack. I usually have a least one severe migraine attack per week, lasting at
Hi all, I just wanted to come on with some positive news if anyone is worried about the side effects of getting a covid jab, as I was until now! I had mine done early yesterday and today I am feeling normal, with no severe attack. I usually have a least one severe migraine attack per week, lasting at
Loulou1922
in
National Migraine Centre
3 years ago
Scottish Chief Medical Officer letter re 3rd primary vaccines specifically
Many Scottish health boards are already booking in patients for these, with appointments showing up initially on the Scottish Covid
vaccination
booking website, with letters (that are delayed) to follow for patients.
Many Scottish health boards are already booking in patients for these, with appointments showing up initially on the Scottish Covid
vaccination
booking website, with letters (that are delayed) to follow for patients.
vivdunstan
Volunteer
in
Vasculitis UK
3 years ago
3rd Primary Dose - Covid 19 Vaccinations
Our situations are covered mostly in paragraph 3. https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
It was also mentioned that my
Our situations are covered mostly in paragraph 3. https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
It was also mentioned that my
Roltuba
in
PMRGCAuk
3 years ago
Moderna and third vaccine
I had the third vaccine at a mass
vaccination
centre outside Edinburgh yesterday evening. The admin lady who checked my appointment said it was going to be Moderna so I showed her the copy of the Blood Cancer UK letter- she checked with her supervisor who said I must discuss it withe vaccinator.
I had the third vaccine at a mass
vaccination
centre outside Edinburgh yesterday evening. The admin lady who checked my appointment said it was going to be Moderna so I showed her the copy of the Blood Cancer UK letter- she checked with her supervisor who said I must discuss it withe vaccinator.
DJK12
in
MPN Voice
3 years ago
3rd vaccination
Last week I got a letter from the local NHS commissioning group confirming that abatacept drops me into the severely immune suppressed group which gave me a real wobble.Today my amazingly efficient GP surgery texted offering me a 3rd covid
vaccination
on 23rd September with a booster to follow 6 months
Last week I got a letter from the local NHS commissioning group confirming that abatacept drops me into the severely immune suppressed group which gave me a real wobble.Today my amazingly efficient GP surgery texted offering me a 3rd covid
vaccination
on 23rd September with a booster to follow 6 months
rounder
in
NRAS
3 years ago
THIS IS WHAT THE NHS SAYS ABOUT THE BOOSTER COVID DOSE
https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-
vaccination
/book-coronavirus-
vaccination
/book-or-manage-a-booster-dose-of-the-coronavirus-covid-19-vaccine/
https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-
vaccination
/book-coronavirus-
vaccination
/book-or-manage-a-booster-dose-of-the-coronavirus-covid-19-vaccine/
piglette
in
PMRGCAuk
3 years ago
3.30pm 14th October webinar - Immunisations and living with the challenges of a compromised immune system with CLL
This webinar coincides with the latest annual flu
vaccination
and COVID -19
vaccination
programme. The aim of this webinar is to explore challenges that may be experienced when living with a compromised immunity, why these occur and how this may impact on the patient and their family.
This webinar coincides with the latest annual flu
vaccination
and COVID -19
vaccination
programme. The aim of this webinar is to explore challenges that may be experienced when living with a compromised immunity, why these occur and how this may impact on the patient and their family.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
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