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Good news!
Been to see my GP after only one month on ursofalk my LFT's are nearly back in normal range! Think my consultant will be happy with that result when I see him & hopefully by then they will be in the normal range!
Been to see my GP after only one month on ursofalk my LFT's are nearly back in normal range! Think my consultant will be happy with that result when I see him & hopefully by then they will be in the normal range!
Quilter1
in
PBC Foundation
7 years ago
Speechless
I have just been to my dentist for 1st check up since diagnosis 4 weeks ago, updated him with me now having PBC, told him what it was & he changed 'cholangitis' to 'cirrhosis' as he said it meant more to him if he used that term, when I said it wasn't associated with alcohol his comment was 'REALLY?'
I have just been to my dentist for 1st check up since diagnosis 4 weeks ago, updated him with me now having PBC, told him what it was & he changed 'cholangitis' to 'cirrhosis' as he said it meant more to him if he used that term, when I said it wasn't associated with alcohol his comment was 'REALLY?'
Quilter1
in
PBC Foundation
7 years ago
Differences in prescription
Hi. I'm sure I read on here somewhere that the different brands of URSO had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one. I'm thinking it probably doesn't make much difference
Hi. I'm sure I read on here somewhere that the different brands of URSO had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one. I'm thinking it probably doesn't make much difference
Angel_b
in
PBC Foundation
7 years ago
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Newly diagnosed
Morning, I have just been diagnosed with PBC this week, had raised LFT's in routine blood test, ultrasound showed ??cirrhosis so I was referred to hospital. First lot of results came back strongly positive forAMA's so I have been put on ursofalk 500mg twice day. I am having gastroscopy on Tuesday, waiting
Morning, I have just been diagnosed with PBC this week, had raised LFT's in routine blood test, ultrasound showed ??cirrhosis so I was referred to hospital. First lot of results came back strongly positive forAMA's so I have been put on ursofalk 500mg twice day. I am having gastroscopy on Tuesday, waiting
Quilter1
in
PBC Foundation
7 years ago
Outcome of my appointments.
Hi everyone just to let you know that my annual appointment I had some good news that in the three months trial period of being on ursofalk capsule 250 grams four a day . My liver improved ππ50 per cent which means the tablets r working for me. I am so pleased.ππ
Hi everyone just to let you know that my annual appointment I had some good news that in the three months trial period of being on ursofalk capsule 250 grams four a day . My liver improved ππ50 per cent which means the tablets r working for me. I am so pleased.ππ
Chocolate11
in
PBC Foundation
7 years ago
And another
I stared taking ursofalk ( liquid ) on the 1 st Feb 2017 but after a week I started developing headaches daily, and two weeks on it was unbearable, so I have stopped ( now 5 days) I have another batch of ursofalk I haven't stared yet ( tablets ). I'll start again tonight, has anyone else experienced
I stared taking ursofalk ( liquid ) on the 1 st Feb 2017 but after a week I started developing headaches daily, and two weeks on it was unbearable, so I have stopped ( now 5 days) I have another batch of ursofalk I haven't stared yet ( tablets ). I'll start again tonight, has anyone else experienced
Mrsfancypants
in
PBC Foundation
7 years ago
Ursofalk in pregnancy
Hi all, I gave birth in Nov 2015 to a baby boy after having obstetric cholestasis from 31 weeks. Since his birth my liver functioning has not gone back to normal and in the last few months I have been on ursofalk again to help my liver. My specialist thinks I have very early stage PBC but still have
Hi all, I gave birth in Nov 2015 to a baby boy after having obstetric cholestasis from 31 weeks. Since his birth my liver functioning has not gone back to normal and in the last few months I have been on ursofalk again to help my liver. My specialist thinks I have very early stage PBC but still have
lauralocks123
in
PBC Foundation
7 years ago
Spanish Urso
We have moved to Spain and my farmacia is not sure about getting Ursofalk. Is there anyone on here, who lives in Spain, has PBC and can tell me what brand I should be buying and how much it costs please.
We have moved to Spain and my farmacia is not sure about getting Ursofalk. Is there anyone on here, who lives in Spain, has PBC and can tell me what brand I should be buying and how much it costs please.
June9961
in
PBC Foundation
8 years ago
Pregnancy and pbc
Hi all, I am hoping to try for another baby soon. I am on ursofalk for elevated liver enzymes. I am AMA negative but my consultant believes I am very early stage PBC. My issues started during my last pregnancy when I was diagnosed with obstetric cholestasis. After that my liver enzymes did not go back
Hi all, I am hoping to try for another baby soon. I am on ursofalk for elevated liver enzymes. I am AMA negative but my consultant believes I am very early stage PBC. My issues started during my last pregnancy when I was diagnosed with obstetric cholestasis. After that my liver enzymes did not go back
lauralocks123
in
PBC Foundation
8 years ago
Ursofalk reassurance needed
Hi guys, I have been on ursofalk for 2 weeks now and been taking 3 capsules at night, 750mg total. It's causing me to have bad cramping and loose stools/ diarrhea every morning, sometimes during the day aswell. I was on it when I was pregnant and took 1 tablet with each meal, so 3 times a day at spaces
Hi guys, I have been on ursofalk for 2 weeks now and been taking 3 capsules at night, 750mg total. It's causing me to have bad cramping and loose stools/ diarrhea every morning, sometimes during the day aswell. I was on it when I was pregnant and took 1 tablet with each meal, so 3 times a day at spaces
lauralocks123
in
PBC Foundation
8 years ago
Ursofalk and other medication question
Hi guys, I have just started ursofalk and I'm wondering is there any OTC medications that I cannot take with it? I currently have a chest infection and want to take some benylin 4 flu which has paracetamol and decongestant meds in it. From those who take ursofalk - are there any meds I need to avoid
Hi guys, I have just started ursofalk and I'm wondering is there any OTC medications that I cannot take with it? I currently have a chest infection and want to take some benylin 4 flu which has paracetamol and decongestant meds in it. From those who take ursofalk - are there any meds I need to avoid
lauralocks123
in
PBC Foundation
8 years ago
Evie 53
Hi my name is Yvonne I'm 63 years young and have recently diagnosed with PBC. I have nodules throughout the liver, high enzymes, itching, joint pain and fever. I'm on 900mg Ursofalk and will have a blood test in January before seeing my specialist hopefully the medication might slow down the progress
Hi my name is Yvonne I'm 63 years young and have recently diagnosed with PBC. I have nodules throughout the liver, high enzymes, itching, joint pain and fever. I'm on 900mg Ursofalk and will have a blood test in January before seeing my specialist hopefully the medication might slow down the progress
yvonnero
in
PBC Foundation
8 years ago
feeling sick
morning sorry to ask again but i have now only been taking Ursofalk for 2 weeks and every morning i feel so ill and sick it starts to go by lunchtime anyone any ideas the feeling of being ill starts before i even take my first tablet. thank you
morning sorry to ask again but i have now only been taking Ursofalk for 2 weeks and every morning i feel so ill and sick it starts to go by lunchtime anyone any ideas the feeling of being ill starts before i even take my first tablet. thank you
tinajohnston
in
PBC Foundation
8 years ago
Fatigue and Muscle pain
Hi all i got diagnosed with pbc 2 months ago when a routine blood test showed raised liver enzymes. Everything else came back perfect, normal blood pressure, good cholesterol healthy heart and no signs of diabetes or thyroid problems. I was sent to see a consultant and to have an ultrasound where it
Hi all i got diagnosed with pbc 2 months ago when a routine blood test showed raised liver enzymes. Everything else came back perfect, normal blood pressure, good cholesterol healthy heart and no signs of diabetes or thyroid problems. I was sent to see a consultant and to have an ultrasound where it
CazK
in
PBC Foundation
8 years ago
Pbc?
Hi all, so the consultant I met with a few weeks ago thought I had Pbc due to elevated liver functioning AST ALT and ALP. I had a screening done for various antibodies AMA included and all came back negative. I then had a fibroscan done and score was v low at 4.8. I also had an ultrasound done with no
Hi all, so the consultant I met with a few weeks ago thought I had Pbc due to elevated liver functioning AST ALT and ALP. I had a screening done for various antibodies AMA included and all came back negative. I then had a fibroscan done and score was v low at 4.8. I also had an ultrasound done with no
lauralocks123
in
PBC Foundation
8 years ago
Sad and depressed
Hello everyone ...I have multiple gallbladder stones the biggest is 1cm and I'm on Ursofalk 250mg. 3x a day..I just want to ask if can ursofalk really dissolve the gallstones? My doctor wanted me to have an operation to remove it but I have hypothyroidism too.so it's not possible for now..
Hello everyone ...I have multiple gallbladder stones the biggest is 1cm and I'm on Ursofalk 250mg. 3x a day..I just want to ask if can ursofalk really dissolve the gallstones? My doctor wanted me to have an operation to remove it but I have hypothyroidism too.so it's not possible for now..
joevie
in
PBC Foundation
8 years ago
Long road and still no diagnoses
Dear all, Writing to see if someone can shed some light on my huband's issues. His siuation is further complicated by the fact that we have lived in 3 different countries since he first got sick. It all started in 2012 when he got very fatigued, with headaches and body aches. He could hardly get off
Dear all, Writing to see if someone can shed some light on my huband's issues. His siuation is further complicated by the fact that we have lived in 3 different countries since he first got sick. It all started in 2012 when he got very fatigued, with headaches and body aches. He could hardly get off
ingestedt
in
PBC Foundation
8 years ago
Confused
I was diagnosed with PBC last year been taking ursofalk twice daily. Anyway after 4 cancelled appointments I got to see him today got really confused I told him about feeling tired the forgetness and other things he told me point blank that none of this is to doing with the liver ok I said. He then said
I was diagnosed with PBC last year been taking ursofalk twice daily. Anyway after 4 cancelled appointments I got to see him today got really confused I told him about feeling tired the forgetness and other things he told me point blank that none of this is to doing with the liver ok I said. He then said
Dese
in
PBC Foundation
8 years ago
Weight gain
Hi I was diagnosed with pbc in June but been on ursofalk since April in June my dose was higered to 500mg twice a dau and I weighed 10 stone but since then my weight has been going up very quickly and im now 11 stone I do litslitsif walking and lifting abd running around 4/5 days a week as I'm a nursery
Hi I was diagnosed with pbc in June but been on ursofalk since April in June my dose was higered to 500mg twice a dau and I weighed 10 stone but since then my weight has been going up very quickly and im now 11 stone I do litslitsif walking and lifting abd running around 4/5 days a week as I'm a nursery
Lilbear89
in
PBC Foundation
8 years ago
Questions for Gp - newly diagnosed
Hello Diagnosed with pbc within last two weeks. Had gall bladder removed in March 2016, and blood tests pre and prior to op have identified condition. Have discovered the pbc foundation so have joined as member today. Consultant who gave diagnosis very matter of fact prescribed Ursofalk 3 times a day
Hello Diagnosed with pbc within last two weeks. Had gall bladder removed in March 2016, and blood tests pre and prior to op have identified condition. Have discovered the pbc foundation so have joined as member today. Consultant who gave diagnosis very matter of fact prescribed Ursofalk 3 times a day
jemlola
in
PBC Foundation
8 years ago
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