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Miss Forgetful
I am terrible for remembering to take my medication! It’s beside my bed with a bottle of water to take before bedtime. I try to take my 2 ursofalk at night, best time to take medication. So when I sleep it can go to work. I’ve NEVER been a pill-popper but now I have this medication to take for the
I am terrible for remembering to take my medication! It’s beside my bed with a bottle of water to take before bedtime. I try to take my 2 ursofalk at night, best time to take medication. So when I sleep it can go to work. I’ve NEVER been a pill-popper but now I have this medication to take for the
Coco21
in
PBC Foundation
6 years ago
Blood Donaton
I have PBC and take Ursofalk. I went to donate blood tonight but they said I was not suitable due to PBC. is this correct?
I have PBC and take Ursofalk. I went to donate blood tonight but they said I was not suitable due to PBC. is this correct?
stevie1
in
PBC Foundation
6 years ago
Lost on the medical system
Hi everyone. I didn’t write posts for a long time, may be I have nothing to say! May be you know from before or not that 17 years ago I was diagnosed with autoimmune hepatitis/ PBC. After using Ursofalk for 15 years developed allergic reaction for me and body rejected it. Back to my gastrointestinal
Hi everyone. I didn’t write posts for a long time, may be I have nothing to say! May be you know from before or not that 17 years ago I was diagnosed with autoimmune hepatitis/ PBC. After using Ursofalk for 15 years developed allergic reaction for me and body rejected it. Back to my gastrointestinal
Evaibrahim60
in
PBC Foundation
6 years ago
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Used Ursofalk for too long but...
Today I’m very sure as since I have stopped taking the Ursofalk last January this itch has gone. May be a little not as much nor as horrible any way I have been on it for very long time and I believe my body has developed antibodies against it. Thanks everyone for replying and I happen that all get the
Today I’m very sure as since I have stopped taking the Ursofalk last January this itch has gone. May be a little not as much nor as horrible any way I have been on it for very long time and I believe my body has developed antibodies against it. Thanks everyone for replying and I happen that all get the
Evaibrahim60
in
PBC Foundation
6 years ago
Lonely
I became very sick in 2008 with acute renal failure and raised LFT Very high. I had temp confusion difficulty with so each and walking. Not to mention my vision. I went undiagnosed until 2012 when l went to a city specialist Gastro. I had an intersusseption of my bowel which needed an operation She
I became very sick in 2008 with acute renal failure and raised LFT Very high. I had temp confusion difficulty with so each and walking. Not to mention my vision. I went undiagnosed until 2012 when l went to a city specialist Gastro. I had an intersusseption of my bowel which needed an operation She
Colryan
in
PBC Foundation
6 years ago
Indigestion and pantoprazole
Have been suffering with terrible acid indigestion and I have just given in to taking a ppi. Is this safe with pbc. I am also on 4 x 250 ursofalk per day.
Have been suffering with terrible acid indigestion and I have just given in to taking a ppi. Is this safe with pbc. I am also on 4 x 250 ursofalk per day.
mel16
in
British Liver Trust
6 years ago
Atrovastine
Hello, all those who have experience with atrovastine because of high cholesterol, can this together with Ursofalk and what does it do for the liver?
Hello, all those who have experience with atrovastine because of high cholesterol, can this together with Ursofalk and what does it do for the liver?
marianne349
in
PBC Foundation
6 years ago
Many medical conditions
I wonder if my body is rejecting most of my medications. I have on and off skin rashes for more than two years now. Ursofalk is my main suspension that is responsible for it. I had to stop Ursofalk without my doctor advice! Anyone else has this problem?
I wonder if my body is rejecting most of my medications. I have on and off skin rashes for more than two years now. Ursofalk is my main suspension that is responsible for it. I had to stop Ursofalk without my doctor advice! Anyone else has this problem?
Evaibrahim60
in
PBC Foundation
6 years ago
Just diagnosed with PBC
Hi just been diagnosed with PBC which was a complete shock as started with routine blood test for something else.. trying to understand what this means and how I will be affected , worrying about how it might progress , have started on ursofalk 250mg twice a day ... will be 60 next month !! Is there
Hi just been diagnosed with PBC which was a complete shock as started with routine blood test for something else.. trying to understand what this means and how I will be affected , worrying about how it might progress , have started on ursofalk 250mg twice a day ... will be 60 next month !! Is there
Jnuttall
in
PBC Foundation
6 years ago
PBC and now Polymyalgia Rheumatica (PMR)
Hi I am new to this site but not to PBC, I have been living with PBC for 10 years, my journey has been mostly uneventful on Ursofalk, I enjoy my very active 6 grandchildren, I travel and worked fulltime until earlier than planned retirement 18mths ago due to fatigue and brain fog. 6 months ago was
Hi I am new to this site but not to PBC, I have been living with PBC for 10 years, my journey has been mostly uneventful on Ursofalk, I enjoy my very active 6 grandchildren, I travel and worked fulltime until earlier than planned retirement 18mths ago due to fatigue and brain fog. 6 months ago was
mtrafter
in
PBC Foundation
6 years ago
Ppi and urso
Hi all I am sure it has been asked before but ny acid indigestion has got worse. I have had pbc for about 5 years and take 1000 mg ursofalk capsules daily. Is it okay to take 20 mg pantoprazole daily and if so, when is best time to take it.
Hi all I am sure it has been asked before but ny acid indigestion has got worse. I have had pbc for about 5 years and take 1000 mg ursofalk capsules daily. Is it okay to take 20 mg pantoprazole daily and if so, when is best time to take it.
mel16
in
PBC Foundation
7 years ago
Doctor
Hello, All I have been for a doctor at the clinic! Luckily, I'm good at the Ursofalk, so the values have fallen well. I've reported that my fatigue persists and my forgetfulness. However, the doctor says that this has nothing to do with partial disease. I have to say that, fortunately, I've only had
Hello, All I have been for a doctor at the clinic! Luckily, I'm good at the Ursofalk, so the values have fallen well. I've reported that my fatigue persists and my forgetfulness. However, the doctor says that this has nothing to do with partial disease. I have to say that, fortunately, I've only had
marianne349
in
PBC Foundation
7 years ago
Budenofalk
Hello everybody, I recently visited my doctor and seems that things are not going well :( ...she said that my body didn't react very good by Ursofalk and she decided to add a new medicine, named Budenofalk! Is anybody here who is taking this medicine and how is working? As far as I know is something
Hello everybody, I recently visited my doctor and seems that things are not going well :( ...she said that my body didn't react very good by Ursofalk and she decided to add a new medicine, named Budenofalk! Is anybody here who is taking this medicine and how is working? As far as I know is something
katim
in
PBC Foundation
7 years ago
My Mom diagnosed with PBC just couple of days back.
My Mom she is 61 yrs and she recently got diagnosed with PBC. Doctor said she having this from last 15 yrs approximately. She had water retention issues which got subsided with the medicines prescribed by the doctor Mr. Praveen Mathews in Bangalore INDIA. M went through all the blogs but still very
My Mom she is 61 yrs and she recently got diagnosed with PBC. Doctor said she having this from last 15 yrs approximately. She had water retention issues which got subsided with the medicines prescribed by the doctor Mr. Praveen Mathews in Bangalore INDIA. M went through all the blogs but still very
VickyVirdi
in
PBC Foundation
7 years ago
Tummy pain after eating
Hi. I have been getting sharp pains in my stomach around my belly button after eating just lately. Is this a symptom? Or a side effect from the ursofalk?
Hi. I have been getting sharp pains in my stomach around my belly button after eating just lately. Is this a symptom? Or a side effect from the ursofalk?
SharonM69
in
PBC Foundation
7 years ago
Diagnosed today with PBC
I was diagnosed with pbc today, they have caught it early by chance. As went to doc for something else. I don't have any symptoms yet. I have been given Ursofalk. Will this halt the disease so that I won't get any symptoms or will the symptoms come in time. I feel great at the moment I'm worried that
I was diagnosed with pbc today, they have caught it early by chance. As went to doc for something else. I don't have any symptoms yet. I have been given Ursofalk. Will this halt the disease so that I won't get any symptoms or will the symptoms come in time. I feel great at the moment I'm worried that
SharonM69
in
PBC Foundation
7 years ago
TIA or Stroke - medication ?
Has anyone had a TIA or stroke after being diagnosed with PBC and if so have you had any success in receiving statins and blood thinners that don't make you feel really ill. I was diagnosed with PBC in 2013. A month ago I was taken to hospital with Stroke symptoms, after ct and mri scans I was told
Has anyone had a TIA or stroke after being diagnosed with PBC and if so have you had any success in receiving statins and blood thinners that don't make you feel really ill. I was diagnosed with PBC in 2013. A month ago I was taken to hospital with Stroke symptoms, after ct and mri scans I was told
EiJo
in
PBC Foundation
7 years ago
PBC Cholurso and rapid weight gain
Hello I was taking Ursofalk after being diagnosed 4 months ago, dosage 750mg When picked up repeat prescription received another brand of urso called Cholurso. My Dr also increased dose to 1000mg even though my levels had dropped to 297 (previously 659) ...i instantly started to swell up - gained
Hello I was taking Ursofalk after being diagnosed 4 months ago, dosage 750mg When picked up repeat prescription received another brand of urso called Cholurso. My Dr also increased dose to 1000mg even though my levels had dropped to 297 (previously 659) ...i instantly started to swell up - gained
TOMOLLIE
in
PBC Foundation
7 years ago
Diet
Hi all not been on here for a long time. I had my hospital appointment on Wednesday of this week had more blood tests done after taking ursofalk for a year. Got my scan results told me I had fatty liver so need to try and lose some weight which I am overweight this is very hard as I like my sweet things
Hi all not been on here for a long time. I had my hospital appointment on Wednesday of this week had more blood tests done after taking ursofalk for a year. Got my scan results told me I had fatty liver so need to try and lose some weight which I am overweight this is very hard as I like my sweet things
Cherry69
in
PBC Foundation
7 years ago
Ursofalk and itching
Hi! I dont have pbc but i am taking Ursofalk 3 capsules a day beacuse my liver problem and i hope you can help me. I have asimptomatic liver disease (criptogenic), my AST,ALT was 4, 5 times upper level, my GGT is never below 200 and ALP is also above 200. I have liver tests like this for 3 and a half
Hi! I dont have pbc but i am taking Ursofalk 3 capsules a day beacuse my liver problem and i hope you can help me. I have asimptomatic liver disease (criptogenic), my AST,ALT was 4, 5 times upper level, my GGT is never below 200 and ALP is also above 200. I have liver tests like this for 3 and a half
Ana1806
in
PBC Foundation
7 years ago
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