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Urso
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Had enough now
I take
urso
, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my get-up-and-go and my sex drive because of all my different meds.
I take
urso
, naltrexone, questran, rifampicin, antihistamines and clonazepam, I have lost my get-up-and-go and my sex drive because of all my different meds.
Jill68
in
PBC Foundation
11 years ago
Question re Urso.....
I have another question, about
Urso
this time . Maybe it is a coincidence but about two months ago I started with the bad itching, all over my body, slightly during the day but mostly morning and evening. Up til then I had only occasionally had itching on legs.
I have another question, about
Urso
this time . Maybe it is a coincidence but about two months ago I started with the bad itching, all over my body, slightly during the day but mostly morning and evening. Up til then I had only occasionally had itching on legs.
Annac
in
PBC Foundation
11 years ago
Does anyone know if absorption of Urso is reduced if taking bile acid sequestering agents, such as cholestyramine (for itching)?
Hidden
in
PBC Foundation
11 years ago
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Oh no not something else!!!!!!!!
Just wanted to ask if any one as got Kidney problems,just had some blood tests and they have come back just about border line,so feel quite worried, Liver tests looking better so that was good to hear,not having any symptom's of Kidney problems i just wondered if it could be
Urso
or Questran that is
Just wanted to ask if any one as got Kidney problems,just had some blood tests and they have come back just about border line,so feel quite worried, Liver tests looking better so that was good to hear,not having any symptom's of Kidney problems i just wondered if it could be
Urso
or Questran that is
cavi
in
PBC Foundation
11 years ago
Feeling crap.
I also take
urso
which bloats me so badly I look 9 months pregnant, and mercaptopurine. She has increased the dose of mercaptopurine, but I have noticed my head is itchy and my hair is falling, not a great deal, but my hair does not fall out except in the normal way everyone else's does.
I also take
urso
which bloats me so badly I look 9 months pregnant, and mercaptopurine. She has increased the dose of mercaptopurine, but I have noticed my head is itchy and my hair is falling, not a great deal, but my hair does not fall out except in the normal way everyone else's does.
Alley27
in
PBC Foundation
11 years ago
Advice please
I also take mercaptopurine and
urso
. These past 5 days I have felt extremely tired, thirsty and I can pee for England. It gets worse after I have done something like hoover the lounge, walk the dog, even washing up.
I also take mercaptopurine and
urso
. These past 5 days I have felt extremely tired, thirsty and I can pee for England. It gets worse after I have done something like hoover the lounge, walk the dog, even washing up.
Alley27
in
PBC Foundation
11 years ago
Just an update
Take
urso
twice a day, LFT normal, liver scan normal, liver biopsy normal, AMA was about 1:320 on last check and rising. Thats all folks
Take
urso
twice a day, LFT normal, liver scan normal, liver biopsy normal, AMA was about 1:320 on last check and rising. Thats all folks
hannah1973
in
PBC Foundation
11 years ago
PBC -it's all so confusing
Just had liver biopsy last week and started on
urso
2 x. 300m per day. Finally today got a copy of consultants letter to my doc updating them on diag. It states previously positive AMA, raised IGM, and positive ANA. I have the other symptoms of tiredness, slight itch, bloating.
Just had liver biopsy last week and started on
urso
2 x. 300m per day. Finally today got a copy of consultants letter to my doc updating them on diag. It states previously positive AMA, raised IGM, and positive ANA. I have the other symptoms of tiredness, slight itch, bloating.
jewelsspeak
in
PBC Foundation
11 years ago
URSO and itching
I read that
URSO
can cause itching to get worse. I started
URSO
on tuesday and my itching immediately became worse. I read that it helps release bile salts that can cause itching. Is this a good thing in regards to my response to the
URSO
and my PBC?
I read that
URSO
can cause itching to get worse. I started
URSO
on tuesday and my itching immediately became worse. I read that it helps release bile salts that can cause itching. Is this a good thing in regards to my response to the
URSO
and my PBC?
engasser
in
PBC Foundation
11 years ago
Itching
Can someone tell me if the
Urso
helped with the itching? I have only been on it about a week. Thanks
Can someone tell me if the
Urso
helped with the itching? I have only been on it about a week. Thanks
beckydyer
in
PBC Foundation
11 years ago
Does URSO help the immune system from attacking the bile ducts
My mother was diagnosed this past December with PBC, she is 81 and was immediately put on
URSO
and diuretics. Since then, the inflammation has decreased and liver function is quite good except for fatigue which remains.
My mother was diagnosed this past December with PBC, she is 81 and was immediately put on
URSO
and diuretics. Since then, the inflammation has decreased and liver function is quite good except for fatigue which remains.
Hidden
in
PBC Foundation
11 years ago
ACE results
After about 7 years still not have been put on
urso
or any other meds. The thinking seems to be the less meds you take the less the liver has to cope with. When I read about all of you being on
Urso
I get very confused.
After about 7 years still not have been put on
urso
or any other meds. The thinking seems to be the less meds you take the less the liver has to cope with. When I read about all of you being on
Urso
I get very confused.
Ellanvannin
in
PBC Foundation
11 years ago
memory loss
since been diagnosed with PBC I have struggled with memory I didn't know if it was a side effect of the illness or the
urso
medication. The doctors aren't much help so anyone else's experiences would be good to know?
since been diagnosed with PBC I have struggled with memory I didn't know if it was a side effect of the illness or the
urso
medication. The doctors aren't much help so anyone else's experiences would be good to know?
jess1990
in
PBC Foundation
11 years ago
just started on urso
Hi, I was diagnosed last November with PBC and AIH I have just started on
Urso
this last month. Is it quite a while before it starts to kick in or take any effect ? Also how long should it be til I go to see my specialist again as they did not say.
Hi, I was diagnosed last November with PBC and AIH I have just started on
Urso
this last month. Is it quite a while before it starts to kick in or take any effect ? Also how long should it be til I go to see my specialist again as they did not say.
sandgroundergirl
in
PBC Foundation
11 years ago
Happy day
Just had my first blood test done today after only being on
urso
for four weeks now and my LFTs have. All gone down and nearly in normal range . . . How happy was I . . Even if it only for today and next four weeks I am happy. Some good news after a rough couple of months .
Just had my first blood test done today after only being on
urso
for four weeks now and my LFTs have. All gone down and nearly in normal range . . . How happy was I . . Even if it only for today and next four weeks I am happy. Some good news after a rough couple of months .
gracesofia
in
PBC Foundation
11 years ago
Hooray - a very happy day :)
All I need to do is ......... up my vit D intake - a bit difficult in the UK with our lack of sun, so I guess it'll be supplements as I can't get a foreign holiday on prescription, lol ...... continue the
Urso
......see a rheumotologist re: aches & pains.....
All I need to do is ......... up my vit D intake - a bit difficult in the UK with our lack of sun, so I guess it'll be supplements as I can't get a foreign holiday on prescription, lol ...... continue the
Urso
......see a rheumotologist re: aches & pains.....
Soos125
in
PBC Foundation
11 years ago
Hi has anyone gained weight since starting on the urso I've gained 1 and half stone can't decide what's causing the weight gain xxx
karenlesley
in
PBC Foundation
11 years ago
I have now been off the Urso for nearly 8 months but despite feeling better off it than did on it my Liver is not responding so well.
My LFTS are rising steadily since being off it and slowly but surely all the other symptoms apart from the dreaded itch (though not so sure way things are going that it will not return with vengence soon hope not as was my only reason for going off the
Urso
!) are starting to return.
My LFTS are rising steadily since being off it and slowly but surely all the other symptoms apart from the dreaded itch (though not so sure way things are going that it will not return with vengence soon hope not as was my only reason for going off the
Urso
!) are starting to return.
littlemo
in
PBC Foundation
11 years ago
pbc and sore gums
I have heard you can wheen taking
urso
,but i am currently on no medication. My mouth inside is so so sore and gums bleeding in parts.I have got in to the dentist tomorrow.Would appreciate any answers .Thanks
I have heard you can wheen taking
urso
,but i am currently on no medication. My mouth inside is so so sore and gums bleeding in parts.I have got in to the dentist tomorrow.Would appreciate any answers .Thanks
shakira10
in
PBC Foundation
11 years ago
Anyone every been told in years how much the Urso can slow down the progression of PBC?
I certainly do not want to go back on
Urso
as my itch is so much less and more controllable since coming off it last Aug than in the 12 yrs since I was diagnosed with just taking the Questran Light 2-4 sachets a day.
I certainly do not want to go back on
Urso
as my itch is so much less and more controllable since coming off it last Aug than in the 12 yrs since I was diagnosed with just taking the Questran Light 2-4 sachets a day.
littlemo
in
PBC Foundation
11 years ago
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