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Experiences with
Urso
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Bloating and Things
My consultant knew about 300mg
Urso
being recalled he knew about a month again but didn't say why.
My consultant knew about 300mg
Urso
being recalled he knew about a month again but didn't say why.
Jude1
in
PBC Foundation
11 years ago
Hi, this is my first time on here. The question i want to ask is if the urso medication is not proven to work why do i have to take it?
Gemma01
in
PBC Foundation
11 years ago
Hi, Am wondering about this urso as I"m from nz and have been on ursosan 300 for the last 2 years. It is manufactured in czech republic.
Is there there any problem with this medication
Is there there any problem with this medication
Pils
in
PBC Foundation
11 years ago
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Concerns about liver biopsy
I seen my consultant recently, and even though my dosage of
Urso
had been increased to just about maximum of 1500mg per day, it seems my bloods have not settled so now I am facing having a biopsy.
I seen my consultant recently, and even though my dosage of
Urso
had been increased to just about maximum of 1500mg per day, it seems my bloods have not settled so now I am facing having a biopsy.
madmags
in
PBC Foundation
11 years ago
new and frightened!
My consultant wants to start me on
urso
asap which i am happy to do. I am just so frightened that this disease is going to mean i wont see my children grow up. They are only 8 3 and 1. I am young to be diagnosed and soooo worried that i am going to die..please help me!
My consultant wants to start me on
urso
asap which i am happy to do. I am just so frightened that this disease is going to mean i wont see my children grow up. They are only 8 3 and 1. I am young to be diagnosed and soooo worried that i am going to die..please help me!
devon_newbie
in
PBC Foundation
11 years ago
dear lord now what!!!
im going to docs next week.last time i saw dentist she said there was no reason for this and she didnt blame pbc.since then started
urso
altho can only tolerate 500 mg instead of 750 .looked on google and leukemia popped up.so far theyve reckond on cancer of womb/ pancreas .il be a nervous wreck soon
im going to docs next week.last time i saw dentist she said there was no reason for this and she didnt blame pbc.since then started
urso
altho can only tolerate 500 mg instead of 750 .looked on google and leukemia popped up.so far theyve reckond on cancer of womb/ pancreas .il be a nervous wreck soon
cazz22
in
PBC Foundation
11 years ago
some advice plz
have been prescribed
urso
seem to be doing ok on it just lately been feeling really tired exhausted horrible feeling not to good at all is it the
urso
or is it just pbc thanks Sadie xxx
have been prescribed
urso
seem to be doing ok on it just lately been feeling really tired exhausted horrible feeling not to good at all is it the
urso
or is it just pbc thanks Sadie xxx
sadie21
in
PBC Foundation
11 years ago
What a long three months !
biopsy confirmed early stages PBC, biopsy showed inflammation and fibrosis with lymphocytes etc. been on
urso
since march 2 x 300 per day( pleased to say no side effects!) and levels improved :-). Waiting now for a dexter scan and another scan on liver.
biopsy confirmed early stages PBC, biopsy showed inflammation and fibrosis with lymphocytes etc. been on
urso
since march 2 x 300 per day( pleased to say no side effects!) and levels improved :-). Waiting now for a dexter scan and another scan on liver.
jewelsspeak
in
PBC Foundation
11 years ago
a bit nervous
just been precribed
urso
and also alendronic acid just wondering any comments of side effects while using them any advice would be so grateful before i start them thank you sadie xxxx
just been precribed
urso
and also alendronic acid just wondering any comments of side effects while using them any advice would be so grateful before i start them thank you sadie xxxx
sadie21
in
PBC Foundation
11 years ago
sorry for being dense but can you explain
do you know and if it is why do we take
urso
to drop blood read outs.as youve prob guessed im on a downer day and part of me thinks why bother.felt so well before starting this.sorry to be a pain.x
do you know and if it is why do we take
urso
to drop blood read outs.as youve prob guessed im on a downer day and part of me thinks why bother.felt so well before starting this.sorry to be a pain.x
cazz22
in
PBC Foundation
11 years ago
Does anyone of you has problems with ammonia levels?
Hello, I only got diagnosed with PBC a month ago and was started on
Urso
straight away and my LFT's started to improve drastically after that.
Hello, I only got diagnosed with PBC a month ago and was started on
Urso
straight away and my LFT's started to improve drastically after that.
littledragon23
in
PBC Foundation
11 years ago
GP will not prescribe Urso
Has anyone on here had the same problem, my GP won't prescribe
Urso
, even though the Consultant has written to her asking her to prescibe it. She has sent him a letter saying no.
Has anyone on here had the same problem, my GP won't prescribe
Urso
, even though the Consultant has written to her asking her to prescibe it. She has sent him a letter saying no.
highwood
in
PBC Foundation
11 years ago
urso
taken third tablet(only been taking two till now due to bloat and diaorreah).must admit i felt a whole lot better without it.now darent go far from house cos of above itching like crazy(didnt before) and have headache at night.slso lost 8 lbs.does anyone know if its ok to take immodium instants with
urso
taken third tablet(only been taking two till now due to bloat and diaorreah).must admit i felt a whole lot better without it.now darent go far from house cos of above itching like crazy(didnt before) and have headache at night.slso lost 8 lbs.does anyone know if its ok to take immodium instants with
urso
cazz22
in
PBC Foundation
11 years ago
an honest but useless Gastro consultant who needs to get educated on PBC
for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of
Urso
to weight ratio to him, but he was happy for me to up my dose but did not think i needed to.
for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of
Urso
to weight ratio to him, but he was happy for me to up my dose but did not think i needed to.
wendyh
in
PBC Foundation
11 years ago
ok HELP!!
should i try third
urso
? have i done right demanding lft and should i make follow up appointment with gp? starting back at work next week so as always any advice gratefully recieved.you people could show some doctors a thing or two
should i try third
urso
? have i done right demanding lft and should i make follow up appointment with gp? starting back at work next week so as always any advice gratefully recieved.you people could show some doctors a thing or two
cazz22
in
PBC Foundation
11 years ago
How do I put weight on!!!
I am on
URSO
900mg a day and loosing weight . I can eat loads during the day (good or naughty food) and still loose. Can anybody give me any ideas on how to put weight on? X
I am on
URSO
900mg a day and loosing weight . I can eat loads during the day (good or naughty food) and still loose. Can anybody give me any ideas on how to put weight on? X
gracesofia
in
PBC Foundation
11 years ago
Who has PBC / AIH overlap or 'probable overlap'? What did your biopsy show? How are you treating both simultaneously?
He would like my weight and labs to stabilize so he can look at baseline numbers and determine whether
URSO
, a low dose of Prednizone or both should be administered.
He would like my weight and labs to stabilize so he can look at baseline numbers and determine whether
URSO
, a low dose of Prednizone or both should be administered.
JennerLayne
in
PBC Foundation
11 years ago
starting urso
Hi everyone just back from hospital bloods slightly worse than last time so starting urso.not good with tablets it says to take my 250mg tablets x3 daily.can anyone recommend best way to take.All in one go? Spaced out?In evening?please advise also has anyone had side affects.As always grateful for any
Hi everyone just back from hospital bloods slightly worse than last time so starting urso.not good with tablets it says to take my 250mg tablets x3 daily.can anyone recommend best way to take.All in one go? Spaced out?In evening?please advise also has anyone had side affects.As always grateful for any
cazz22
in
PBC Foundation
11 years ago
urso ?
have to add had pbc for about a year heard about
urso
medication should u be given it when first diagnosed confused thanks sadie x
have to add had pbc for about a year heard about
urso
medication should u be given it when first diagnosed confused thanks sadie x
sadie21
in
PBC Foundation
11 years ago
Newly diagnosed with PBC
Nevertheless, since I have been browsing your blogs a lot of my anxiety evaporated and I found myself much more calm about the whole situation, which did help me immensly on my first appointment on Wednesday :) The liver specialist started me on
Urso
straight away at 15mg/kg 900 mg a day (also
Nevertheless, since I have been browsing your blogs a lot of my anxiety evaporated and I found myself much more calm about the whole situation, which did help me immensly on my first appointment on Wednesday :) The liver specialist started me on
Urso
straight away at 15mg/kg 900 mg a day (also
littledragon23
in
PBC Foundation
11 years ago
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