New Trials Beginning on a new medication to help those whi dont respond well to URSo

[bartholomewpatri]

ksat.com/health/new-hope-fo...

there is a new trial on a medication to help those who dont respond well to URSODiol

[Karaliz]

Hi bartholomewpatri

I've been on this trial for nearly 4 years and the drug -OCA - is in fact about to become available, in USA at least. For those of us elsewhere- I'm in Australia- we hope to follow suit.

Cheers

Karaliz

[bartholomewpatri in reply to Karaliz]

Awesome..so This new medicine has proven to be helpful in your country Karaliz?

[kimphoebe in reply to bartholomewpatri]

I v just started a new trial for nonresponders different to the one karalitz is on but it early days

[bartholomewpatri in reply to kimphoebe]

Best wishes also try to avoid sugar salt and far as they all cause inflammation and we have enough liver inflammation now so no need to add fuel to quicken the expiration of our lovers I also am taking many antioxidants like n acetyl cysteine co q 10 and selenium to fight the scarring and prevent damage before it occurs I read good things about a acetyl glutathione and acetyl l carnitine as ways of making more glutathione internally to prevent scarring and damage I feel much more energetic on these and may try colostrum as well

[mollymom in reply to bartholomewpatri]

I disagree about the expiration of our livers.....recent studies have shown that unlike most of the older stories about PBC that are online, in fact PBC doesn't mean an automatic death sentence...all the best to you, yes sugar and salt and bad for many many conditions. I don't have any inflammation, thank goodness!! Urso works for me I am so lucky!! My Liver specialist said I will die from smoking not PBC. Obviously I must stop smoking...I don't how much inflammation etc or anything about your condition, I am just speaking generally, of course everyone's illnesss is different...best of luck.

[bartholomewpatri in reply to mollymom]

Thank you...best of luck to you as well. Quitting is tough.

[Karaliz in reply to bartholomewpatri]

I believe there are only a few of us on the trial in Australia and as I mentioned, it is not commercially available yet ( soon) but it definitely improved my LFTs. I had become a non responder to Urso after 7 years.

OCA is the first new drug for PBC in over 20 years which is wonderful.

[mollymom in reply to bartholomewpatri]

Yes it has in my country USA, worked so well in trials it is about to be released sooner than it would have been here in the USA

[bartholomewpatri in reply to mollymom]

Awesome.best wishes to you

[mollymom in reply to bartholomewpatri]

Thank goodness the URSO is keeping me asymptomatic....all the best to you to

[bartholomewpatri in reply to mollymom]

I wish you the best!