How long does URSO take to work PBC

[sezzey]

Looking for a guide to how long it can taje for LFTs to return to normal whwn starting URSO

[hells456]

I had my first set of bloods taken after six weeks on Urso and my ALP had dropped from 800 to around 400. They got to a level my consultant was happy with (under 200 was the goal) by about 7 months. I wasn't officially declared an Urso responder until a year, but it was clear from early on that it was working. I hope they work quickly for you.

[sezzey in reply to hells456]

Thank ypu so much fir tgis. Can i ask was ypur bilirubin normal. Mine is 25 down from 28. Sorry lots of questions but no one will really talk to me.

[hells456 in reply to sezzey]

You can ask anything, though I may not know much as I was only diagnosed 18 months ago. My bilirubin was 46 to start, dropped to 30 something at 6 weeks, and was within normal limits by 7 months. My itching went down as the bilirubin did.

[sezzey in reply to hells456]

Hey thank you so much. Just looked at your profile and can see you are in the South West of England! So am I - I live in Somerset - Combwich to be precise. This illness is so uncommon - feel quite isolated - no one seems to know much!

[hells456 in reply to sezzey]

You are quite close, I'm in Swindon, Wiltshire. Yeah, no one I know had heard of it either, luckily my GP is brilliant and had me diagnosed in a week. If you haven't already you should join the PBC Foundation, they have a page on here and they are so knowledgeable. They will send you free info packs, which are brilliant, even had one on how to explain it to the kids, newsletters, meet ups, and loads more.

[gillrich in reply to sezzey]

Become a member of the PBC FOUNDATION in UK and you will get all the best accurate advice you will ever need it is free but donations ready accept as it is a registered charity in fact it is 25vyears old this September I am classed as ab urso responder too after one year I have been diagnosed for over 18 years. Take care x