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Urso
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AIH/PBC Overlap Anyone on urso & Mercap
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
Eternity6
in
British Liver Trust
1 year ago
Alkaline phosphatase is 161
Pbc, they put me on ocaliva earlier this year along with
urso
, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Pbc, they put me on ocaliva earlier this year along with
urso
, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Dunks72
in
PBC Foundation
1 year ago
Bloat
I've been taking
urso
for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
I've been taking
urso
for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
Casslucy
in
PBC Foundation
1 year ago
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ALP and when to add 2nd line therapy
Started
URSO
right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed.
Started
URSO
right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed.
Heaslea
in
PBC Foundation
1 year ago
foods to avoid and/or eat to help with itching?
I am on
urso
(about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!)
I am on
urso
(about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!)
Sister65
in
PBC Foundation
1 year ago
joint pain
I was diagnosed by an e-consult with gastro who said it was likely PBC & NASH and ordered
urso
. The funny thing is now I think back to all the times my hands and fingers would itch like crazy and realize that was actually a symptom.
I was diagnosed by an e-consult with gastro who said it was likely PBC & NASH and ordered
urso
. The funny thing is now I think back to all the times my hands and fingers would itch like crazy and realize that was actually a symptom.
AutumnWind
in
PBCers Organization
11 months ago
Hello
I am on
urso
. Bloodwork every 3 months. Sometimes I get tired of doing the bloodwork. And pause for a bit. As of late I am SUPER itchy. I can drive me insane! I get exhausted exhaustion!
I am on
urso
. Bloodwork every 3 months. Sometimes I get tired of doing the bloodwork. And pause for a bit. As of late I am SUPER itchy. I can drive me insane! I get exhausted exhaustion!
GWilliams76
in
PBC Foundation
1 year ago
low RBC and Hematocrit
I’ve had PBC for 14 years, doing well on
Urso
. LFTs good. However my last two CBCs have shown low RBC and hematocrit levels. Can PBC have an impact on these and create anemia? Seeing my regular doc next week, hepatic doctor in a few months.
I’ve had PBC for 14 years, doing well on
Urso
. LFTs good. However my last two CBCs have shown low RBC and hematocrit levels. Can PBC have an impact on these and create anemia? Seeing my regular doc next week, hepatic doctor in a few months.
CeeCee101
in
PBC Foundation
1 year ago
strange PBC , LFT back to normal before starting Urso- anyone with similar experience?
i have reached out to different specialists and they are not sure, one said might be or might not, two other said
urso
wont have any affect on you yet, is not
URSO
supposed to help prevent?
i have reached out to different specialists and they are not sure, one said might be or might not, two other said
urso
wont have any affect on you yet, is not
URSO
supposed to help prevent?
Tramezzini
in
PBC Foundation
1 year ago
PBCer with sudden Fatigue/Exhaustion
I’m in pretty good health and taking
Urso
. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where I have a high count on the norm so clinical trials have been tough to get into much to my and my specialists dismay.
I’m in pretty good health and taking
Urso
. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where I have a high count on the norm so clinical trials have been tough to get into much to my and my specialists dismay.
Joycie193
in
PBC Foundation
1 year ago
Urso Acid and headaches
hi everyone can I ask if anyone taking
Urso
has any problem with headaches? Thanks
hi everyone can I ask if anyone taking
Urso
has any problem with headaches? Thanks
Deemum
in
PBC Foundation
1 year ago
elevated bloods
I haven’t seen the doctor yet but I worry that this is the beginning of the end ..I mean can they stay elevated - with no real effects - maybe
urso
is not working for me anymore Worried. Thoughts
I haven’t seen the doctor yet but I worry that this is the beginning of the end ..I mean can they stay elevated - with no real effects - maybe
urso
is not working for me anymore Worried. Thoughts
boneytoys
in
PBC Foundation
1 year ago
worried no medication will help
hi my alp levels r still 529 after being on
urso
for 1 year. I’m so worried that no medications for work too get my levels normal, has anyone else had trouble getting there levels down too normal? Many thanks
hi my alp levels r still 529 after being on
urso
for 1 year. I’m so worried that no medications for work too get my levels normal, has anyone else had trouble getting there levels down too normal? Many thanks
Lena2011
in
PBC Foundation
1 year ago
liver levels
I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on
urso
for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on
urso
for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
Lena2011
in
PBC Foundation
1 year ago
Urso has to be the correct weight ratio. Mine was wrong for years make sure yours is correct. All the best!
Urso
.
Urso
.
VMcnK
in
PBC Foundation
1 year ago
iron tablets and raising lFT
4 years diagnosed, stopped responding to
Urso
. I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
4 years diagnosed, stopped responding to
Urso
. I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
Kingy68
in
PBC Foundation
1 year ago
Choice
My Hepatologist is giving me the choice if I want to take
Urso
. I have a fatty liver too. And my Alp is high again this month and was high last year for several months. He said I could take it now or lose weight and test again in two months. I'm not sure what to do. I am also Ama m2 positive.
My Hepatologist is giving me the choice if I want to take
Urso
. I have a fatty liver too. And my Alp is high again this month and was high last year for several months. He said I could take it now or lose weight and test again in two months. I'm not sure what to do. I am also Ama m2 positive.
Zelda5
in
PBCers Organization
1 year ago
Paxlovid
has anyone been prescribed this or taken it with having PBC and being on
Urso
? It doesn’t look like it conflicts with
URSO
but I also wonder if it’s safe with liver disease. My PCP gave me a prescription in case it was needed on an upcoming trip but I have not asked my lover doctor.
has anyone been prescribed this or taken it with having PBC and being on
Urso
? It doesn’t look like it conflicts with
URSO
but I also wonder if it’s safe with liver disease. My PCP gave me a prescription in case it was needed on an upcoming trip but I have not asked my lover doctor.
CeeCee101
in
PBC Foundation
1 year ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
5 months ago
hot hot hot
keep having hot &sweaty moments throughout the day is this normal/ side effect of
Urso
? Or just plan menopause Any advice appreciated And would also like to say this group has helped me so much ❤️
keep having hot &sweaty moments throughout the day is this normal/ side effect of
Urso
? Or just plan menopause Any advice appreciated And would also like to say this group has helped me so much ❤️
Eppy
in
PBC Foundation
1 year ago
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