Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,384 public posts
Filter results
previous question
Someone recently asked me about taking
Urso
after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken
Urso
since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily.
Someone recently asked me about taking
Urso
after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken
Urso
since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
ALT and AST
I have been
URSO
for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
I have been
URSO
for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
Gaspereaux
in
PBC Foundation
2 months ago
Ursofalk
Has anyone else been given a guilt trip about
Urso
?
Has anyone else been given a guilt trip about
Urso
?
Oidra
in
PBC Foundation
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Please join!
Make sure you are on the right dose of
Urso
. This is SO important. On the PBC Foundation website there is a very informative link and use of the calculator. Please take the time to look at this.
Urso
dosage is ONLY based on your body weight - NEVER on lab results or symptoms.
Make sure you are on the right dose of
Urso
. This is SO important. On the PBC Foundation website there is a very informative link and use of the calculator. Please take the time to look at this.
Urso
dosage is ONLY based on your body weight - NEVER on lab results or symptoms.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Urso stopped working
hi everyone Can anyone help
Urso
has stopped working and being put onto Ocaliva. i have been on
Urso
since diagnosed in 2012. Not sure what to expect ?? Thank you
hi everyone Can anyone help
Urso
has stopped working and being put onto Ocaliva. i have been on
Urso
since diagnosed in 2012. Not sure what to expect ?? Thank you
MrsFlee
in
PBC Foundation
6 months ago
overlap RA, medication?
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
CeeCee101
in
PBC Foundation
2 months ago
Take all Urso dose at once?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
DebatDG9
in
PBC Foundation
3 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
5 months ago
urso / stomach issues
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
Samanthaann
in
PBCers Organization
6 months ago
Joint/Muscle Pain
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
Gaspereaux
in
PBC Foundation
4 months ago
prescription
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
Lena2011
in
PBC Foundation
4 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
2 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Skypony
in
PBC Foundation
4 months ago
Elevated Vitamin B 12
i am embarrassed to write this ,,,my bloods cam back after six months of
Urso
and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day!
i am embarrassed to write this ,,,my bloods cam back after six months of
Urso
and my ALP went from 385 to 175, AST and ALT are now normal. I was so excited…..then i saw my Vitamin V 12 result. ULN here is 652…mine was 1101. I was taking a very high supplement of 10 000 mcg/day!
Gaspereaux
in
British Liver Trust
3 days ago
Wednesday Word
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in
Urso
non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol.
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in
Urso
non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol.
DonnaBoll
Administrator
in
PBC Foundation
17 days ago
Terrible joint pains
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Elkol
in
PBC Foundation
6 months ago
Rheumatoid?
So….because I was suffering from lower back pain (not sure if it is from PBC,
URSO
or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle.
So….because I was suffering from lower back pain (not sure if it is from PBC,
URSO
or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle.
Gaspereaux
in
British Liver Trust
25 days ago
Seladelpar update
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
DonnaBoll
Administrator
in
PBC Foundation
29 days ago
New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Toddyboo
in
PBC Foundation
3 months ago
1
2
3
...
70
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1252 results
British Liver Trust
75 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest