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Urso
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Altermative to a liver biopsy???
I have not formally been diagnosed with PBC but am responding well to
urso
. I had a liver biopsy which went wrong and resulted in a perforrated gallbladder and I really dont want another one. Does a fibroscan do the same job as a biopsy?
I have not formally been diagnosed with PBC but am responding well to
urso
. I had a liver biopsy which went wrong and resulted in a perforrated gallbladder and I really dont want another one. Does a fibroscan do the same job as a biopsy?
ElviralovesFashion
in
British Liver Trust
3 years ago
Anyone's iron level low?
I'm currently on
Urso
twice a day for PBC
I'm currently on
Urso
twice a day for PBC
ElviralovesFashion
in
British Liver Trust
3 years ago
Gymnast1234
I have been diagnosed with PBC and have been on
Urso
twice daily (500mg per dose) for over 2 months. Side effects nausea and having diarrhea at minimum 6x a day. Looking for types of food that can help with these problems. There are so many “to keep away from”, but not many to help.
I have been diagnosed with PBC and have been on
Urso
twice daily (500mg per dose) for over 2 months. Side effects nausea and having diarrhea at minimum 6x a day. Looking for types of food that can help with these problems. There are so many “to keep away from”, but not many to help.
Gymnast1234
in
PBCers Organization
3 years ago
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Hair loss and PBC
Has anyone suffered hair loss as a result ot PBC or
Urso
?
Has anyone suffered hair loss as a result ot PBC or
Urso
?
MsLibra
in
PBC Foundation
3 years ago
PRE-Habilitation Questions for Transplanted and Transplant Listed People
I am starting treatment for the first time ever and while my docs are hopeful they can ease progression with
Urso
, Budesonide, and Aza, they are keeping me on their radar for if/when my MELD score starts rising.
I am starting treatment for the first time ever and while my docs are hopeful they can ease progression with
Urso
, Budesonide, and Aza, they are keeping me on their radar for if/when my MELD score starts rising.
JennerLayne
in
British Liver Trust
3 years ago
ALT and AST?
I have been on 900 milligrams per day of
Urso
for 4.5 years. Numbers all went down. Now with this stronger strange pain in liver and bloating, I went to the internist, had blood drawn and my ALT and AST are creeping back up, not doubled but not good, and my protein was a little elevated again.
I have been on 900 milligrams per day of
Urso
for 4.5 years. Numbers all went down. Now with this stronger strange pain in liver and bloating, I went to the internist, had blood drawn and my ALT and AST are creeping back up, not doubled but not good, and my protein was a little elevated again.
claygi
in
PBC Foundation
3 years ago
PBC and Autoimmune Hepatitis
Labs not improving over the years dispite using
Urso
and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with both PBC and Auto-immune hepatitis?
Labs not improving over the years dispite using
Urso
and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with both PBC and Auto-immune hepatitis?
Q8Cooper
in
PBC Foundation
3 years ago
Is my PBc causing all this or is it the medication ?
hi all, since being diagnosed with the pbc and taking the
Urso
tablets, my hair is falling out so badly, i have pretty longish hair and is now so thin i dread washing it and is upsetting me i also have psoriasis so i use special shampoo, is it the pbc or medication causing this and will it eventually
hi all, since being diagnosed with the pbc and taking the
Urso
tablets, my hair is falling out so badly, i have pretty longish hair and is now so thin i dread washing it and is upsetting me i also have psoriasis so i use special shampoo, is it the pbc or medication causing this and will it eventually
Jennied66
in
PBC Foundation
3 years ago
Newbie - Hello
I am taking
URSO
- will this help? I find it really difficult for friends and family to understand how unwell I feel. It is assumed by some as me being lazy. When I have the energy I try and do yoga and meditate to help me. Anyone suffering and have ways of how they cope would be appreciated.
I am taking
URSO
- will this help? I find it really difficult for friends and family to understand how unwell I feel. It is assumed by some as me being lazy. When I have the energy I try and do yoga and meditate to help me. Anyone suffering and have ways of how they cope would be appreciated.
Fredbare13
in
PBCers Organization
3 years ago
PBC itch
Hi I have PBC for past 4 years, non responder to
urso
but still take with bezafibrate.
Hi I have PBC for past 4 years, non responder to
urso
but still take with bezafibrate.
Rozm2004
in
PBC Foundation
3 years ago
PBC itch and bruising
I currently take
urso
daily and I’ve started taking the sachets more often as I was just told to take them as and when needed but this is almost every day at the moment. Does anyone else take different medication to help with the itching? TIA
I currently take
urso
daily and I’ve started taking the sachets more often as I was just told to take them as and when needed but this is almost every day at the moment. Does anyone else take different medication to help with the itching? TIA
Cookie712
in
PBC Foundation
3 years ago
I’ve just started taking Urso
Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my prescription for
Urso
. So I’ve been on it for 2 days now and to be honest I feel really quite rough today. My tummy is really sore and I’ve felt like I have a real bad dose of hay fever and just feel groggy.
Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my prescription for
Urso
. So I’ve been on it for 2 days now and to be honest I feel really quite rough today. My tummy is really sore and I’ve felt like I have a real bad dose of hay fever and just feel groggy.
Darcy2608
in
PBC Foundation
3 years ago
Ache on right side?
Hi, I was diagnosed with Pbc 11 months ago and I’m on
Urso
,but keep getting an ache and bloated feeling on my right side, about level with belly button. Is this a known effect of
Urso
?
Hi, I was diagnosed with Pbc 11 months ago and I’m on
Urso
,but keep getting an ache and bloated feeling on my right side, about level with belly button. Is this a known effect of
Urso
?
2009gardener
in
PBC Foundation
3 years ago
URSO and fluctuating results
Hi... my wife was diagnosed with PBC last year and started on
URSO
9 months ago. Her first results were excellent, but her recent blood test showed a small elevation in her ALK/ALT. IS it normal for your readings to fluctuate on
URSO
?
Hi... my wife was diagnosed with PBC last year and started on
URSO
9 months ago. Her first results were excellent, but her recent blood test showed a small elevation in her ALK/ALT. IS it normal for your readings to fluctuate on
URSO
?
dlagasse
in
PBC Foundation
3 years ago
Cost of Urso
I went to the pharmacy to get my first prescription of
Urso
and the copay was $600.00 for a 3 month supply!! Has anyone found a less expensive way to get this needed medication? Don't get me started on the US health care system's flaws...
I went to the pharmacy to get my first prescription of
Urso
and the copay was $600.00 for a 3 month supply!! Has anyone found a less expensive way to get this needed medication? Don't get me started on the US health care system's flaws...
sjt58
in
PBC Foundation
3 years ago
ALP
I was diagnosed with PBC in 2016 and have been on
Urso
since. Does anyone know if 164 is really high. My Dr has said no action needed? Thank you, Jules
I was diagnosed with PBC in 2016 and have been on
Urso
since. Does anyone know if 164 is really high. My Dr has said no action needed? Thank you, Jules
Jules-S
in
PBC Foundation
3 years ago
Medication
Among my Meds pI take
Urso
and Sulfazalzaline. My pharmacy is struggling to get these for me . I am having to phone other pharmacies to see if they have them as these meds come from abroad. I have managed to get One months supply instead of two..
Among my Meds pI take
Urso
and Sulfazalzaline. My pharmacy is struggling to get these for me . I am having to phone other pharmacies to see if they have them as these meds come from abroad. I have managed to get One months supply instead of two..
lorac
in
PBC Foundation
3 years ago
PBC & HRT
I am taking
urso
and as I couldn’t use hormonal contraception, does anyone know if I can still take hormone replacements when the time comes to needing it?
I am taking
urso
and as I couldn’t use hormonal contraception, does anyone know if I can still take hormone replacements when the time comes to needing it?
Cookie712
in
PBC Foundation
3 years ago
Does hair loss slow down once you adjust to Urso?
I started
Urso
a two months ago and my hair is falling out. I know others have had problems with hair loss too. Does the hair loss slow down once your body gets used to the medication? How bad did the hair loss get? I don't mind thinner hair but is there a chance that I will lose most of my hair?
I started
Urso
a two months ago and my hair is falling out. I know others have had problems with hair loss too. Does the hair loss slow down once your body gets used to the medication? How bad did the hair loss get? I don't mind thinner hair but is there a chance that I will lose most of my hair?
sjt58
in
PBC Foundation
3 years ago
Bladder pain
Has anyone had this while taking
Urso
as well as frequent urination? Test are all over the place with UTI I was treated for one but still in so much pain. Some docs say that my culture is negative others say positive
Has anyone had this while taking
Urso
as well as frequent urination? Test are all over the place with UTI I was treated for one but still in so much pain. Some docs say that my culture is negative others say positive
Jennyhadenough
in
PBC Foundation
3 years ago
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