Hi all,
I have been in Australia for almost a year and have been doing very well lately. I have steadily been reducing SLOWLY. No flares that I can remember for a very very long time.
My Mast Cell Activation Syndrome / Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle. And of course trying to get off of the Cortisone.
I was convinced that the PMR was in total remission.
But about 3 plus weeks ago I got really sore shoulders and figured it was the way I was sleeping. Then the muscles in my neck starting hurting both sides - so stiff. Bought new pillows, did exercises etc….. nothing helped.
Something made me wonder if it could be a PMR flare because I was also feeling so tired and fatigued after doing minor exercise and just a bit under the weather as if I have a low grade fever.
So I went up to 7 mg (from 5.25 that I’d been on for a month) for three days - on day three felt a bit better. So took 6mg today - but quite sore again today and with pain in hips and buttocks and back of thighs.
Do you think it is likely PMR resurfacing?
Should I go up to 10mg for a few days - and how many days? Then how should I reduce?
Would appreciate any input.
Thank you