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Measuring Tourette's
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
sternj
in
Tourettes Action
14 years ago
Alcohol and TS medications - What's the effect?
Can I drink alcohol with all the medication I take, i.e. risperidone, concerta, clonidine? What effects will it have? Could it make me ill – the interaction of medication and alcohol? Question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010
Can I drink alcohol with all the medication I take, i.e. risperidone, concerta, clonidine? What effects will it have? Could it make me ill – the interaction of medication and alcohol? Question from Tourettes Action's Research Conference 'Understanding TS' 30 Nov 2010
Hidden
in
Tourettes Action
14 years ago
Trust Me to Open My Mouth
I was going to write this post tomorrow, but it is tomorrow, so I’ll write it anyway. Whilst on Facebook earlier today, I came across a little news article that somebody had posted, I did I bit of fishing around and came across this http://www.bbc.co.uk/news/uk-england-south-yorkshire-13589803 and had
I was going to write this post tomorrow, but it is tomorrow, so I’ll write it anyway. Whilst on Facebook earlier today, I came across a little news article that somebody had posted, I did I bit of fishing around and came across this http://www.bbc.co.uk/news/uk-england-south-yorkshire-13589803 and had
catherinem
in
Tourettes Action
13 years ago
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Trouble for Trumpets
I’m feeling quite tired as I often do after a day in London. In the morning I attended a policy group meeting at the Neurological Alliance (an umbrella that campaigns for a number of charities for people with neurological conditions, Tourette’s Action is a member). There’s nothing much to report on the
I’m feeling quite tired as I often do after a day in London. In the morning I attended a policy group meeting at the Neurological Alliance (an umbrella that campaigns for a number of charities for people with neurological conditions, Tourette’s Action is a member). There’s nothing much to report on the
catherinem
in
Tourettes Action
13 years ago
Aliens Ate My Buick
I haven’t really had my Buick eaten by aliens, so I have to take the train instead. I never had a Buick in the first place and this little chap on the train is way too nice to go around eating peoples cars. All this travelling on public transport reminds me that I should really get a wiggle on and do
I haven’t really had my Buick eaten by aliens, so I have to take the train instead. I never had a Buick in the first place and this little chap on the train is way too nice to go around eating peoples cars. All this travelling on public transport reminds me that I should really get a wiggle on and do
catherinem
in
Tourettes Action
13 years ago
my son has just been diagnosed with tourettes syndrome
my 7 year old has just been diagnosed with tourettes syndrome after a very long process and lots of appointments he was first seen at the age of 4 this was when i was taken seriously. But i had been persuing people for answers since he was roughly 5 months old! I now face a long ongoing battle with his
my 7 year old has just been diagnosed with tourettes syndrome after a very long process and lots of appointments he was first seen at the age of 4 this was when i was taken seriously. But i had been persuing people for answers since he was roughly 5 months old! I now face a long ongoing battle with his
Beckavx
in
Tourettes Action
13 years ago
ADHD diagnosis
Since watching a TV programme a couple of years ago I have suspected that I too have ADHD. I have researched it online and taken several online 'tests' which have scored me extremely likely to have ADHD. I feel a bit silly going to the doctor to try for a diagnosis at my age as it is thought of as a
Since watching a TV programme a couple of years ago I have suspected that I too have ADHD. I have researched it online and taken several online 'tests' which have scored me extremely likely to have ADHD. I feel a bit silly going to the doctor to try for a diagnosis at my age as it is thought of as a
taffy222
in
Tourettes Action
14 years ago
NOSI Mosey
For me at the moment one of the most distressing parts of my TS is my NOSI, that’s Non-Obscene Socially Inappropriate, that’s me shouting the most ridiculously, childish insults that anyone could ever dream up, usually I’d prefer to insult people in a more intelligent way. Having NOSI is like being constantly
For me at the moment one of the most distressing parts of my TS is my NOSI, that’s Non-Obscene Socially Inappropriate, that’s me shouting the most ridiculously, childish insults that anyone could ever dream up, usually I’d prefer to insult people in a more intelligent way. Having NOSI is like being constantly
catherinem
in
Tourettes Action
14 years ago
Why I now hate Cineworld
I like to go to the Cinema. It is something I do every two weeks as per my timetable. I enjoy watching films a lot. Now it seems I am no longer allowed to do this. On the 30th December (yes, it has taken me this long to stop FUMING!!!) I decided to go and watch Gulliver's travels at the Milton Keynes
I like to go to the Cinema. It is something I do every two weeks as per my timetable. I enjoy watching films a lot. Now it seems I am no longer allowed to do this. On the 30th December (yes, it has taken me this long to stop FUMING!!!) I decided to go and watch Gulliver's travels at the Milton Keynes
LittleClapham
in
Tourettes Action
14 years ago
But I only wanted a referral!
I got the letter today. I have to wait another 2 months before I see a neurologist at Addenbrookes. Frankly, I am pretty sure at this rate, without medication, that I will be either seriously injured or killed in the next two months because my tics are getting that bad that they are physically harming
I got the letter today. I have to wait another 2 months before I see a neurologist at Addenbrookes. Frankly, I am pretty sure at this rate, without medication, that I will be either seriously injured or killed in the next two months because my tics are getting that bad that they are physically harming
LittleClapham
in
Tourettes Action
14 years ago
Does anyone get blood in their urine?
Every time I get my urine tested, it shows I have blood. The urologist has checked and I have no kidney stones, he thinks it is something to do with lupus but rheumatologist doesn't seem worried by the blood and doesn't see a connection. Who do I believe?
Every time I get my urine tested, it shows I have blood. The urologist has checked and I have no kidney stones, he thinks it is something to do with lupus but rheumatologist doesn't seem worried by the blood and doesn't see a connection. Who do I believe?
Yols
in
LUPUS UK
13 years ago
No gerbils. Lots of screaming.
So I got an answer today. There are no indoor pets allowed apart from goldfish. While that is great news for Mr. Fry (my gender confused goldfish), it is not such great news for the gerbil I planned to adopt. I'm not too upset though because I can now save up for Mr. Fry's new aquarium and friend (he's
So I got an answer today. There are no indoor pets allowed apart from goldfish. While that is great news for Mr. Fry (my gender confused goldfish), it is not such great news for the gerbil I planned to adopt. I'm not too upset though because I can now save up for Mr. Fry's new aquarium and friend (he's
LittleClapham
in
Tourettes Action
13 years ago
Piggies
Recently I’ve re-acquired some tics, I find these vocal tics more distressing than coprolalia, maybe it’s because coprolalia is more stereotyped to almost continuously swallow your own saliva and make awful snotty, grunting sounds is just horrible, can you just imagine it getting close and personal with
Recently I’ve re-acquired some tics, I find these vocal tics more distressing than coprolalia, maybe it’s because coprolalia is more stereotyped to almost continuously swallow your own saliva and make awful snotty, grunting sounds is just horrible, can you just imagine it getting close and personal with
catherinem
in
Tourettes Action
13 years ago
Hanging on the Telephone
I’m in quite good spirits today, I think the new meds are perhaps now having an effect on me, also I have taken my own advice and got myself a Wii Fit from Cash Generators (I couldn’t afford a new one). I thought I might share this little incident with you, some might get a bit uptight about it and have
I’m in quite good spirits today, I think the new meds are perhaps now having an effect on me, also I have taken my own advice and got myself a Wii Fit from Cash Generators (I couldn’t afford a new one). I thought I might share this little incident with you, some might get a bit uptight about it and have
catherinem
in
Tourettes Action
13 years ago
Listen Up!!!
Listen Up!!! Right, listen up everybody, this is important. Today in the House of Lords they are discussing the planned changes to Disability Living Allowance, if it gets through and the government get their way many of us will lose our DLA. So listen very carefully, I will say this only once,
Listen Up!!! Right, listen up everybody, this is important. Today in the House of Lords they are discussing the planned changes to Disability Living Allowance, if it gets through and the government get their way many of us will lose our DLA. So listen very carefully, I will say this only once,
catherinem
in
Tourettes Action
13 years ago
So much pain I am annoyed!
I have had a [sarcasm] brilliant [/sarcasm] few weeks. Since my last blog, my eye tics have got worse and have, as Tourettes does expertly, added several new and old ones back into my long list of tics. My eyes have been rolling around so much that they have gone very red and I look like I have not slept
I have had a [sarcasm] brilliant [/sarcasm] few weeks. Since my last blog, my eye tics have got worse and have, as Tourettes does expertly, added several new and old ones back into my long list of tics. My eyes have been rolling around so much that they have gone very red and I look like I have not slept
LittleClapham
in
Tourettes Action
13 years ago
J'ai ne suis pas misérables!
Last night was one of the greatest nights of my life. I have been VERY depressed recently but we went to see Les Misérables at the Queen's theatre in London. This was only the second time I had been to the old smoke for theatre... well third if you count the time we had to go back to Chitty Chitty Bang
Last night was one of the greatest nights of my life. I have been VERY depressed recently but we went to see Les Misérables at the Queen's theatre in London. This was only the second time I had been to the old smoke for theatre... well third if you count the time we had to go back to Chitty Chitty Bang
LittleClapham
in
Tourettes Action
13 years ago
Dear Mark
I think in my encroaching old age I’m beginning to turn into a bit of a Daily (Hate) Mail reader, I might have done this before but I can’t remember off the top of my head – I’m about to write to a journalist in response to an article that I’ve read. So here goes. Dear Mark, As I was sitting in Euston
I think in my encroaching old age I’m beginning to turn into a bit of a Daily (Hate) Mail reader, I might have done this before but I can’t remember off the top of my head – I’m about to write to a journalist in response to an article that I’ve read. So here goes. Dear Mark, As I was sitting in Euston
catherinem
in
Tourettes Action
13 years ago
Secrets and lies
The first thing I tell new staff who have come to work at my home is: 'Don't tell me anything secret' Although we are not talking secrets like I learnt at my previous and less well run care home... I knew who was having you know what with which staff :S just an innocent statement followed by 'don't
The first thing I tell new staff who have come to work at my home is: 'Don't tell me anything secret' Although we are not talking secrets like I learnt at my previous and less well run care home... I knew who was having you know what with which staff :S just an innocent statement followed by 'don't
LittleClapham
in
Tourettes Action
13 years ago
18 months down the line of a diagnosis
OK here goes. My name is Stacey Rudd and I am the proud parent of 2 girls- Charlie and Lily. Charlie is nine and is beautiful but 18 months ago we were shocked by a diagnosis that changed our lives. Our story begins when Charlie was about 3 years old and she seemed to
OK here goes. My name is Stacey Rudd and I am the proud parent of 2 girls- Charlie and Lily. Charlie is nine and is beautiful but 18 months ago we were shocked by a diagnosis that changed our lives. Our story begins when Charlie was about 3 years old and she seemed to
staceyrudd
in
Tourettes Action
12 years ago
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