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My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
My wife has been a wonderful companion through my diagnosis and recent hospitalization from sepsis due to my 2nd biopsy. She almost lost me but I have returned to vigor and preparing for this journey through radiation and ADT next month. However, because I still work and am at a point where my business
Eadgbe
in
Prostate Cancer Network
10 months ago
Magnesium
Hello all, hope you are all ticking away nicely, I've been taking a teaspoon of magnesium citrate each morning for around a fortnight now on recommendation from Dr Sanjay Gupta please follow advice from your cardiac team mine said it was ok to try, i take it each morning after breakfast to try to calm
Hello all, hope you are all ticking away nicely, I've been taking a teaspoon of magnesium citrate each morning for around a fortnight now on recommendation from Dr Sanjay Gupta please follow advice from your cardiac team mine said it was ok to try, i take it each morning after breakfast to try to calm
Rachelanx50
in
AF Association
11 months ago
A Longevity Mindset is one in which you believe in the ability of science to extend your healthspan, perhaps by ten or twenty years.
I am shooting for 30+ The Tech Blog by Peter H. Diamandis, MD Presented by Untitled design (25)-1 My Longevity Practices Part 5: Mindset How long you live is a function of many factors, including your mindset. You can actually will yourself to death—or will yourself to a longer healthspan
I am shooting for 30+ The Tech Blog by Peter H. Diamandis, MD Presented by Untitled design (25)-1 My Longevity Practices Part 5: Mindset How long you live is a function of many factors, including your mindset. You can actually will yourself to death—or will yourself to a longer healthspan
Scout4answers
in
Advanced Prostate Cancer
1 year ago
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Testosterone
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
Hi everyone, I'm a long time ThyroidUK participant. Right now the thyroid replacement is good, vitamins, minerals, are all great. I'm very particular to ensure this. I use HRT (Triestrogen/progesterone) topical cream and have used since age 45 and I'm now 65. Here's the problem: in March
gabkad
in
Menopause and Perimenopause Support
10 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
8 months ago
Your cancer treatment record
Just before my o&v treatment commenced I was given ‘your cancer treatment record’ a little blue book, supplied by cancer research uk, as a place to jot treatments, questions, symptoms ect. I’d actually forgotten about it and wrote a small diary of my treatment. Yesterday I was reminded of it as I spoke
Just before my o&v treatment commenced I was given ‘your cancer treatment record’ a little blue book, supplied by cancer research uk, as a place to jot treatments, questions, symptoms ect. I’d actually forgotten about it and wrote a small diary of my treatment. Yesterday I was reminded of it as I spoke
Livingwith67
in
CLL Support
11 months ago
Questions about protocol changes regarding ADT from 2nd opinion.
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
I was diagnosed with PC about 2 months ago. I received a 2nd opinion from John's Hopkins today and all cores had a different (slightly lower) Gleason scores than my local testing gave. However I do have the evidence of adenocarcinoma in the prostate and am starting on this road through RT (with an OAR
Eadgbe
in
Prostate Cancer Network
10 months ago
Progression
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
My Oncologist says that after 4+ years of ADT, I am showing signs of castrative resistance. He also said that I am currently Low volume, low PSA Oligmatistic. Can someone translate. I had a PSMA scan a couple of weeks ago and the Radiation Oncologist said that I had a positive response. Thanks
NDJIM
in
Advanced Prostate Cancer
10 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
9 months ago
Progesterone: oestrogen ratio
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hi all I recently got my oestrogen and progesterone levels done by medichecks.I was hoping they worked out the actual ratio of oestrogen to progesterone but they don't so now I'm confused. The 2 results are calculated in different values (pmol/L Vs nmol/L) which makes it hard to interpret if one of
Hollybushroad
in
Menopause and Perimenopause Support
10 months ago
Ruxolitinib
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Hi all, I have PV and AB is high , around 81% , spleen size slightly increased but if I didn’t know I have PV I would think I am the healthiest person around as I have no symptoms. I was diagnosed end of 2018 but had it al least since 2015. I am considering taking a part in clinical trial for Ruxo and
Ameliav
in
MPN Voice
11 months ago
Armpits? Yeah, armpits.
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
18 months ADT and my armpit hair has slowly, but finally, gone 😫.True, it's not a dramatic loss compared to the sacred memory of a hard erection! But a symptom is a symptom, and they all seem to have complications. After the hair had mostly become a memory, I started having a strange sensation in there
Lewellen
in
Advanced Prostate Cancer
10 months ago
Specialty to start with?
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Originally joined group because 55 yr son diagnosed with stage 4 PCa. Been tracking my own PSA for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy. I had an
Billyeff
in
Advanced Prostate Cancer
1 year ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
9 months ago
Surgical Castration ?
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
Bigmaristuff
in
Advanced Prostate Cancer
10 months ago
ADT or not?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
Hi, i have Stage 4 PCA, Gleason 5+4 so I am on Degaralix and Enzalutamide. I tend to refer to this treatment as ADT as shorthand because to my mind they both reduce testosterone. I wonder if I’m misusing ADT or does it matter?
FortyWinks
in
Advanced Prostate Cancer
10 months ago
Introducing Myself
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Hi everyone, I wanted to introduce myself. I've been caring for my mum for several years now. She is 93 and she has arthritis and had heart surgery about 6 years ago. Recently she has deteriorated and, although I'm familiar with the care system and its limitations, I find myself struggling. I work
Simswim
in
Care Community
1 year ago
UserName Change Search Link
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
I just changed my username name from the impersonal "JHMX" to "JohnInTheMiddle". Among other things I liked the TV show Malcolm in the Middle. And when I signed up it was in that kind of crazy time of DX that many people here will recognize. But as I become familiar with the stories and exploration here
JohnInTheMiddle
in
Advanced Prostate Cancer
10 months ago
ADT duration data measures
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
odd query but when reading studies and research on ADT duration they refer to months or years - I am curious as the implants are often prescribed monthly or 3 monthly but that actually means 4 weekly or 12 weekly with such ADT as goserelin - so are the studies that say 4, 6, 18, 24, 36 months referring
SimMartin
in
Advanced Prostate Cancer
10 months ago
NHS agrees to roll out Olaparib (Lynparza) April 2023.
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
The NHS has agreed to Olaparib for advanced prostate cancer with mutations in the BRCA genes. ‘Hundreds of patients with advanced prostate cancer could benefit from a breakthrough targeted therapy after the NHS agreed a landmark commercial deal to roll-out the drug. The drug, olaparib (Lynparza®)
Sailing-Todd
in
Advanced Prostate Cancer
1 year ago
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