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EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
2 months ago
raised platelets
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
hi folks, I’ve been on the chat a few months now and I read everyone’s posts with great interest. I have developed great respect for the way you all support each other. I’ve had palindromic rheumatism for a few years which I managed with HRT (any change to this sends me into a flare that lasts till
Memaw21
in
NRAS
4 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
4 months ago
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Actemra
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
Larachez2102
in
NRAS
7 months ago
Struggling to make the best education choices
Hello, My 6-year-old son was diagnosed with ADHD about a year ago. Because of his age, we tried PCIT behavior therapy and while we saw some mild improvements there was no real change. I have homeschooled my son since he was 3. It started off as preschool working on language development in conjunction
Hello, My 6-year-old son was diagnosed with ADHD about a year ago. Because of his age, we tried PCIT behavior therapy and while we saw some mild improvements there was no real change. I have homeschooled my son since he was 3. It started off as preschool working on language development in conjunction
kt01513
in
CHADD's ADHD Parents Together
9 months ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
4 months ago
Long term results of high dose radiation and long term ADT
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
Don_1213
in
Advanced Prostate Cancer
4 months ago
Part Rant and Zoladex Question
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
Oh, the glamorous world of injections and their elusive promises! There I was declaring "No more injections for me!" But those consultants have a way of making you believe that they [i]"will help to shrink the fibroids so we can reach the endometriosis easier". [/i] The next line was basically [i]"It's
SimplyDeeDee
in
Endometriosis UK
4 months ago
AlteraAI test
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
7OaksTom
in
Advanced Prostate Cancer
4 months ago
New Mama
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
KR2022
in
Pregnancy and Parenting Support
7 months ago
PET Scan Results
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Murph256
in
Advanced Prostate Cancer
4 months ago
Mosaic Medical Functional Medicine
Hello! If anyone has had any experience of using Mosaic Medical for balancing HRT and Thyroid Medication please could you Private Message me your thoughts?
Hello! If anyone has had any experience of using Mosaic Medical for balancing HRT and Thyroid Medication please could you Private Message me your thoughts?
MissMonty
in
Thyroid UK
4 months ago
Exhausted and cold
I've not got a Thyroid diagnosis if you see my previous posts it went be hyper 2022. My cortisol levels was low on a slavia test which I don't know how to treat. My temperature has gone from being mild fever 38° to now 36.2° first thing in the mornings. I'm being treated for a embedded uti for 5 years
I've not got a Thyroid diagnosis if you see my previous posts it went be hyper 2022. My cortisol levels was low on a slavia test which I don't know how to treat. My temperature has gone from being mild fever 38° to now 36.2° first thing in the mornings. I'm being treated for a embedded uti for 5 years
France92
in
Thyroid UK
4 months ago
New data about ARASENS trial: it seems to work well after longer observation
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Maxone73
in
Advanced Prostate Cancer
4 months ago
Great paper on long-term side effects of various treatments for PCa..
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
Don_1213
in
Advanced Prostate Cancer
4 months ago
What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
4 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
2 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
4 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
2 months ago
HRT Patches Concern
I recently switched to transdermal HRT tablets from oral HRT, I'm not convinced, firstly because of my very abrupt menopause,mine was like falling off a tall building 🗼rather than a gentle decline. So I was taking 1mg estradiol and I femoston conti 1/10 tablet a day for 7 years making 2mg oestrogen
I recently switched to transdermal HRT tablets from oral HRT, I'm not convinced, firstly because of my very abrupt menopause,mine was like falling off a tall building 🗼rather than a gentle decline. So I was taking 1mg estradiol and I femoston conti 1/10 tablet a day for 7 years making 2mg oestrogen
Sparklingsunshine
in
Thyroid UK
4 months ago
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