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CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
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next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
1 year ago
Sister likely has endometrial cancer
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
fell
in
SHARE Uterine Cancer Support
1 year ago
Oral NT-0796 for Parkinson’s shows promise in early clinical trials
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
Farooqji
in
Cure Parkinson's
1 year ago
OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
1 year ago
My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
1 year ago
Reminder: The virtual LiveLung SCLC group meeting is TONIGHT, June 20th at 7 pm ET.
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
Facebook message received anyone heard Of this group
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Tryfan
in
AF Association
1 year ago
Clinical trial for Mesothelioma patients
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Will I be offered surgery?
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Guilane
in
My Ovacome
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
The 2023 update of "Parkinson’s Disease Drug Therapies in the Clinical Trial Pipeline" is now available.
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
jeffreyn
in
Cure Parkinson's
1 year ago
Where do I go from here?
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Guilane
in
My Ovacome
1 year ago
Clinical Trials
Hello Just wondering if anyone has considered clinical trials? I volunteered for this one vhttps://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=31552&location=&distance= One more visit then back in a year's time to repeat again, the information is on the MSA webpage. Truthfully
Hello Just wondering if anyone has considered clinical trials? I volunteered for this one vhttps://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=31552&location=&distance= One more visit then back in a year's time to repeat again, the information is on the MSA webpage. Truthfully
esj20
in
Multiple System Atrophy Trust
1 year ago
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