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Well I finally got my 15 minutes of fame.
Good day gentlemen. As some of you may know I am involved in a phase 1 clinical trial. Harpoon at OHSU. I finished my 3rd infusion and was anxiously awaiting going home after 9 hours at a outpatient facility. Unfortunately I had a 103 fever and a very low pressure. So I waited and waited, finally they
Good day gentlemen. As some of you may know I am involved in a phase 1 clinical trial. Harpoon at OHSU. I finished my 3rd infusion and was anxiously awaiting going home after 9 hours at a outpatient facility. Unfortunately I had a 103 fever and a very low pressure. So I waited and waited, finally they
Costarica1961
in
Advanced Prostate Cancer
4 years ago
Provenge
Thursday I will be getting my venous access so I can start Provenge. Have been on Zytiga and a clinical trial with Xtandi. PSA is up to 18 Does anyone have any details of their experience with Provenge to share with me? I’m nervous
Thursday I will be getting my venous access so I can start Provenge. Have been on Zytiga and a clinical trial with Xtandi. PSA is up to 18 Does anyone have any details of their experience with Provenge to share with me? I’m nervous
Peterd110
in
Advanced Prostate Cancer
4 years ago
clinical trial UK
Husband diagnosed with APC in 2017 aged 49 yrs. Been through chemo, casodex, abiterone. PSA now rising after 10 months on Xtandi. Oncologist has suggested he is a good candidate for a clinical trial where his original samples are sent to USA for profiling. Unfortunately I was not able to be at this appointment
Husband diagnosed with APC in 2017 aged 49 yrs. Been through chemo, casodex, abiterone. PSA now rising after 10 months on Xtandi. Oncologist has suggested he is a good candidate for a clinical trial where his original samples are sent to USA for profiling. Unfortunately I was not able to be at this appointment
Jojoberries
in
Advanced Prostate Cancer
4 years ago
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Trials and Retribution?
I have not posted for some time as more pressing matters have needed my attention. Those who remember past posts will be aware that I regularly involve myself in clinical trials. Why clinical trials? There is no restriction on number of type of trial. I have been assessed for clinical and medical trials
I have not posted for some time as more pressing matters have needed my attention. Those who remember past posts will be aware that I regularly involve myself in clinical trials. Why clinical trials? There is no restriction on number of type of trial. I have been assessed for clinical and medical trials
honeycombe3
in
Cure Parkinson's
4 years ago
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials!
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
MCP benefits aggressive prostate cancer?
Dozens of peer-reviewed, published studies, including peer-reviewed human clinical trials, show how the original and only positively researched form of Modified Citrus Pectin can slow and reverse tumor growth, and reduce metastasis. These results make MCP one of the most important recommendations in
Dozens of peer-reviewed, published studies, including peer-reviewed human clinical trials, show how the original and only positively researched form of Modified Citrus Pectin can slow and reverse tumor growth, and reduce metastasis. These results make MCP one of the most important recommendations in
HopingForTheBest1
in
Advanced Prostate Cancer
4 years ago
Scientists elucidate cause for Parkinson's disease and identify potential treatments
In a seven-year research effort, an international team of scientists has clarified the cause for certain genetic forms of Parkinson's disease, and has identified potential pharmacological treatments.The interdisciplinary research team, led by Prof. Rejko Krüger, of the Luxembourg Centre for Systems Biomedicine
In a seven-year research effort, an international team of scientists has clarified the cause for certain genetic forms of Parkinson's disease, and has identified potential pharmacological treatments.The interdisciplinary research team, led by Prof. Rejko Krüger, of the Luxembourg Centre for Systems Biomedicine
Farooqji
in
Cure Parkinson's
4 years ago
Join our Free AMD Conference - today!!
Just follow this link: http://www.fundraisingeverywhere.com/macularsociety 9:15-4:00 - UK Time :) Conference programme Inherited Retinal Diseases and Working Age Session 9.15 Welcome to the session John Dunston, Chair, Macular Society and Cathy Yelf, Chief Executive, Macular Society 9.35 Message
Just follow this link: http://www.fundraisingeverywhere.com/macularsociety 9:15-4:00 - UK Time :) Conference programme Inherited Retinal Diseases and Working Age Session 9.15 Welcome to the session John Dunston, Chair, Macular Society and Cathy Yelf, Chief Executive, Macular Society 9.35 Message
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Clinical Trial
I'm new here, first post. Is any one on this clinical trial Ultra-V with Ublituximab in combination with Umbralisib and Venetoclax? I had a second opinion with a CLL specialist. My first oncologist, stated I was a stage O and to keep in watch and wait. With my new doctor he states I am stage 2, just
I'm new here, first post. Is any one on this clinical trial Ultra-V with Ublituximab in combination with Umbralisib and Venetoclax? I had a second opinion with a CLL specialist. My first oncologist, stated I was a stage O and to keep in watch and wait. With my new doctor he states I am stage 2, just
Crafting43
in
CLL Support
4 years ago
Our Saga so far...and an observation about quality of care
I've been lurking here for a couple of years but it's time for me to introduce myself and offer up our experiences so far. Please excuse the length of my story! My husband was diagnosed in the summer of 2016 at age 60 with advanced metastatic disease. It took over five months to find out what was going
I've been lurking here for a couple of years but it's time for me to introduce myself and offer up our experiences so far. Please excuse the length of my story! My husband was diagnosed in the summer of 2016 at age 60 with advanced metastatic disease. It took over five months to find out what was going
WildRose6
in
Advanced Prostate Cancer
4 years ago
Plural Effusion with CLL
Started clinical trial at Stanford, Ibrutinib and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial. Tolerating trial but still very short of breath with minimal exertion
Started clinical trial at Stanford, Ibrutinib and Obinutuzumab about week and half ago. WBC was >300 at start now done to 100 and lymph node size decreased significantly! Problem is CT scan showed large plural effusion at start of trial. Tolerating trial but still very short of breath with minimal exertion
kubie
in
CLL Support
4 years ago
Relay Thera phase one clinical trial RLY1971
I started on this trial today. It is an SHP2 inhibitor. Anyone else singing this tune by chance? ______________________ Because of the role SHP2 plays in many diseases, the development of inhibitors targeting the catalytic site in SHP2 has been pursued for more than a decade, but none were advanced
I started on this trial today. It is an SHP2 inhibitor. Anyone else singing this tune by chance? ______________________ Because of the role SHP2 plays in many diseases, the development of inhibitors targeting the catalytic site in SHP2 has been pursued for more than a decade, but none were advanced
PeakClimber
in
Advanced Prostate Cancer
4 years ago
Reflections, where do you find joy or what do you find awe inspiring?
Through the Foundation, we interact with a lot of people in pain and going through very difficult fearful things. Stepping away from that part of life and thinking of the things that move us emotionally, if even for a brief time is of great value. There are so many things to be moved by. Who isn't touched
Through the Foundation, we interact with a lot of people in pain and going through very difficult fearful things. Stepping away from that part of life and thinking of the things that move us emotionally, if even for a brief time is of great value. There are so many things to be moved by. Who isn't touched
nash2
Partner
in
Living with Fatty Liver and NASH
4 years ago
In focus: targeted therapies - bevacizumab ('Avastin')
Hello, everyone This month in our Health in Focus series, we’ll be looking at targeted therapies. Cancer cells behave differently from healthy cells in a number of ways. These behaviours can make them more vulnerable to damage. Targeted therapies are drugs that disrupt this abnormal behaviour, causing
Hello, everyone This month in our Health in Focus series, we’ll be looking at targeted therapies. Cancer cells behave differently from healthy cells in a number of ways. These behaviours can make them more vulnerable to damage. Targeted therapies are drugs that disrupt this abnormal behaviour, causing
OvacomeSupport
Administrator
in
My Ovacome
4 years ago
Clinical trial finds targeted drug effective in patients who have lung cancer with certain gene mutations.
A targeted therapy called capmatinib can provide significant benefits to patients who have advanced lung cancer with specific gene mutations, according to recently published results from a phase two clinical trial. The trial, which is published in the New England Journal of Medicine, was conducted by
A targeted therapy called capmatinib can provide significant benefits to patients who have advanced lung cancer with specific gene mutations, according to recently published results from a phase two clinical trial. The trial, which is published in the New England Journal of Medicine, was conducted by
2greys
in
Lung Conditions Community Forum
4 years ago
Ablation by the Numbers from Medtronic info - 8/29/2020
My ablation was the burning type and successful but here is latest info on Cryoblation ablation. Came across this reading and thought some might find the numbers interesting - FYI Medtronic Cryoablation Superior to Drug Therapy for Symptomatic Paroxysmal ESC Congress: New Research Highlights First-Line
My ablation was the burning type and successful but here is latest info on Cryoblation ablation. Came across this reading and thought some might find the numbers interesting - FYI Medtronic Cryoablation Superior to Drug Therapy for Symptomatic Paroxysmal ESC Congress: New Research Highlights First-Line
RiderontheStorm
in
AF Association
4 years ago
Help finding RCT for BAT for the hormone sensitive
RSH1 linked to a blog https://prostatecancer.health.blog/2019/09/20/bat/ which states ". . . recently the government did a clinical trial using BAT for hormone sensitive prostate cancer and the results were good." I have been unable to track this down--can anyone help?
RSH1 linked to a blog https://prostatecancer.health.blog/2019/09/20/bat/ which states ". . . recently the government did a clinical trial using BAT for hormone sensitive prostate cancer and the results were good." I have been unable to track this down--can anyone help?
cigafred
in
Advanced Prostate Cancer
4 years ago
New treatment for wet AMD available in Scotland
A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today. Brolucizumab (Beovu), which could see patients going as much as 12 weeks between injections, has been approved by the Scottish Medicines Consortium
A new treatment for wet age-related macular degeneration (AMD), which would require fewer injections, has been approved for NHS patients in Scotland today. Brolucizumab (Beovu), which could see patients going as much as 12 weeks between injections, has been approved by the Scottish Medicines Consortium
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Recent Australian study: Lu-177 dose personalization
"In most radionuclide therapies, a fixed amount of radionuclide is administered, which does not take into account individual patient variability in tumor and normal tissue uptake, and hence absorbed dose. 'Dosimetry-led' administration, on the other hand, where administered activity is adjusted based
"In most radionuclide therapies, a fixed amount of radionuclide is administered, which does not take into account individual patient variability in tumor and normal tissue uptake, and hence absorbed dose. 'Dosimetry-led' administration, on the other hand, where administered activity is adjusted based
Hidden
in
Advanced Prostate Cancer
4 years ago
Second call for participants in Graves' disease study
Thyroid UK has been approached again about a clinical trial investigating a new drug for Graves’ disease and wondered if you or anyone else you know might be interested in taking part. This trial was put on hold due to the COVID-19 pandemic restrictions but has now resumed recruitment, with safety considerations
Thyroid UK has been approached again about a clinical trial investigating a new drug for Graves’ disease and wondered if you or anyone else you know might be interested in taking part. This trial was put on hold due to the COVID-19 pandemic restrictions but has now resumed recruitment, with safety considerations
lynmynott
Thyroid UK
in
Thyroid UK
4 years ago
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