Search
Search
About
Log in
Join
Experiences with
Triple bromide
Posts
Communities
5,123 public posts
Filter results
Update B1 (HDT & TTFD) – 10/19/22
First, I should state, I am not as patient as is required by Dap1948's HDT protocol. 5 months after first starting TTFD, I finally gave up on TTFD because I seemed to be in a never-ending cycle of return of symptoms at yet another lower dose. During that period, I did try sublingual, but I found letting
First, I should state, I am not as patient as is required by Dap1948's HDT protocol. 5 months after first starting TTFD, I finally gave up on TTFD because I seemed to be in a never-ending cycle of return of symptoms at yet another lower dose. During that period, I did try sublingual, but I found letting
Gcf51
in
Cure Parkinson's
2 years ago
Free 15-Minute Webinar About How Patient Data Is Collected in Clinical Trials
Feedback and data from patients can inform and shape the future of clinical trial designs. Attend the November 2nd Flash webinar to hear insights about the different types of data, how they are collected, and their importance. Register here: https://www.ciscrp.org/conversations-on-clinical-trials-humanizing-clinical-research-data-series-episode
Feedback and data from patients can inform and shape the future of clinical trial designs. Attend the November 2nd Flash webinar to hear insights about the different types of data, how they are collected, and their importance. Register here: https://www.ciscrp.org/conversations-on-clinical-trials-humanizing-clinical-research-data-series-episode
ciscrp_official
Partner
in
Understanding Clinical Trials
2 years ago
Itolizumab Shows Promise For Lupus Nephritis Patients in Early Trial Data
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic lupus
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Telitacicept Reduces SLE Severity in Phase 3 Trial in China
RemeGen is also sponsoring a similar Phase 3 trial in the US by Marisa Wexler, MS | September 26, 2022 Telitacicept, a B-cell-targeting therapy developed by RemeGen, outperformed a placebo at reducing the severity of systemic lupus erythematosus (SLE) in a Phase 3 clinical trial in China, the company
RemeGen is also sponsoring a similar Phase 3 trial in the US by Marisa Wexler, MS | September 26, 2022 Telitacicept, a B-cell-targeting therapy developed by RemeGen, outperformed a placebo at reducing the severity of systemic lupus erythematosus (SLE) in a Phase 3 clinical trial in China, the company
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
CLL and Lymphedema
CLL and Lymphedema in forearm while taking Acalbrutinib (Calquence). This appeared without any warning about 6 months ago after a year and half on the drug? The Clinical Trial (Assure) Doctors think there possibly is a chance the drug could be involved, since there was not an injury or definitive
CLL and Lymphedema in forearm while taking Acalbrutinib (Calquence). This appeared without any warning about 6 months ago after a year and half on the drug? The Clinical Trial (Assure) Doctors think there possibly is a chance the drug could be involved, since there was not an injury or definitive
Okeefish
in
CLL Support
2 years ago
Fellow Pulse field ablation pals
I’m interested in talking to others who’ve had a pulse field ablation , had mine over a year ago and SO happy that I had it as part of a clinical trial . How soon before FDA approves pulse field ablation in the U.S. ?
I’m interested in talking to others who’ve had a pulse field ablation , had mine over a year ago and SO happy that I had it as part of a clinical trial . How soon before FDA approves pulse field ablation in the U.S. ?
Jmbrph
in
AF Association
2 years ago
Supply Chain Issues with Pluvicto
Hello everyone. I was in Texas for my quarterly CT and Bone Scans related to the clinical trial that I have been participating in since June 2021. The CT reflected that my tumors are continuing to grow,albeit at a relatively slow pace (i.e millimeters versus centimeters) given my advanceds stage
Hello everyone. I was in Texas for my quarterly CT and Bone Scans related to the clinical trial that I have been participating in since June 2021. The CT reflected that my tumors are continuing to grow,albeit at a relatively slow pace (i.e millimeters versus centimeters) given my advanceds stage
kklott01
in
Advanced Prostate Cancer
2 years ago
UPDATE on AnnovisBio.com Parkinson Clinical Trial Results! Phase 3 Trials are Now Recruiting in over 40 locations across the USA!
"Buntanetap, a Novel Translational Inhibitor of Multiple Neurotoxic Proteins, Proves to Be Safe and Promising in Both Alzheimer’s and Parkinson’s Patients" ------------------------------------------- I just got this update from the president of the company! Download from my Google Drive the two
"Buntanetap, a Novel Translational Inhibitor of Multiple Neurotoxic Proteins, Proves to Be Safe and Promising in Both Alzheimer’s and Parkinson’s Patients" ------------------------------------------- I just got this update from the president of the company! Download from my Google Drive the two
PDWarrior1900
in
Cure Parkinson's
2 years ago
Opinions on Lu-PSMA-617 Clinical Trial
Hello all, my father’s oncologist has suggested we start looking into clinical trials or chemotherapy now for his metastatic castration resistant prostate cancer (metastasized to the coccyx/pelvic bone in 2019). The trial the oncologist suggested is in the title. Wondering if anyone has gone through
Hello all, my father’s oncologist has suggested we start looking into clinical trials or chemotherapy now for his metastatic castration resistant prostate cancer (metastasized to the coccyx/pelvic bone in 2019). The trial the oncologist suggested is in the title. Wondering if anyone has gone through
PHnerd
in
Advanced Prostate Cancer
2 years ago
Opinions regarding Clinical Trial 225Ac J-591
Pretty sure husband about out of treatment options. PSA has never cooperated with treatment, except very early on. Overall, he feels fine other than weaker muscle strength and mid to end of day fatigue; wish his insides would be doing as well as his outside. MO recommended him for this trial. Had interview
Pretty sure husband about out of treatment options. PSA has never cooperated with treatment, except very early on. Overall, he feels fine other than weaker muscle strength and mid to end of day fatigue; wish his insides would be doing as well as his outside. MO recommended him for this trial. Had interview
Geolo85
in
Advanced Prostate Cancer
2 years ago
Current PCa treatment options in the UK do NOT include Triplet Therapy!
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Today, I had a phone discussion with my uro-oncology support team and they told me that they NEVER give both chemo and an AR drug (e.g. abi, enza, etc) to prostate cancer patients at the same time - even if advanced. Apparently, the UK "gold standard" of treatment is to give a de novo APC patient either
Benkaymel
in
Advanced Prostate Cancer
2 years ago
Buntanetap Clinical Trial
What do you all think about the Buntanetap clinical trial? https://parkinsonsnewstoday.com/news/first-early-stage-parkinsons-patient-dosed-phase-3-trial-buntanetap/
What do you all think about the Buntanetap clinical trial? https://parkinsonsnewstoday.com/news/first-early-stage-parkinsons-patient-dosed-phase-3-trial-buntanetap/
lamboman
in
Cure Parkinson's
2 years ago
Itolizumab Shows Promise For Lupus Nephritis Patients in Early Trial Data
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis
by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic
Type B part of EQUALISE trial recruiting SLE patients with active lupus nephritis
by Lindsey Shapiro | October 10, 2022 Equillium’s investigational antibody-based treatment, itolizumab (EQ001), led to significant reductions in urine protein levels — a marker of kidney dysfunction — in systemic
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
OVM-200 clinical trial
Back from a great holiday now and had my 4th non detectable PSA result last Friday so 11th Degarelix injection followed plus Apalutamide pick up. Online consult today with MO so have asked his thoughts on this vaccine trial. He clearly wasn’t aware of it though knew the lead guy ( saying he doesn’t
Back from a great holiday now and had my 4th non detectable PSA result last Friday so 11th Degarelix injection followed plus Apalutamide pick up. Online consult today with MO so have asked his thoughts on this vaccine trial. He clearly wasn’t aware of it though knew the lead guy ( saying he doesn’t
Brysonal
in
Fight Prostate Cancer
2 years ago
The other half of Bianco's talk
Tessnow agreed: "The sheer number of people who are doing fine on levothyroxine are going to cover up the potential benefit the combination would give those who are most symptomatic. We need to focus our studies on those patients". In fact, this research gap was among the conclusions from an expert
Tessnow agreed: "The sheer number of people who are doing fine on levothyroxine are going to cover up the potential benefit the combination would give those who are most symptomatic. We need to focus our studies on those patients". In fact, this research gap was among the conclusions from an expert
diogenes
in
Thyroid UK
2 years ago
Summary of Prof A Bianco's book and project: too long to add comment in 1 post but you can see progress
I've just received this as an interested party in Bianco's book and project. It's a long post and I have to send another with the other part of the message. Debate Continues on Combination Therapy for Hypothyroidism Miriam E. Tucker May 20, 2 It's "critically important" for clinicians
I've just received this as an interested party in Bianco's book and project. It's a long post and I have to send another with the other part of the message. Debate Continues on Combination Therapy for Hypothyroidism Miriam E. Tucker May 20, 2 It's "critically important" for clinicians
diogenes
in
Thyroid UK
2 years ago
Recurrent PC
Hello fellow PC warriors. In Jan 19 I completed combo treatment SBRT and Bicalutamide. My PSA started rising 5 months ago signaling BCR. Further testing PSMA PET / MRI confirmed reoccurring PC and my 15 core guided biopsy was mostly 4+5's, one 5+5 all grade group 5. Good news is that it's still
Hello fellow PC warriors. In Jan 19 I completed combo treatment SBRT and Bicalutamide. My PSA started rising 5 months ago signaling BCR. Further testing PSMA PET / MRI confirmed reoccurring PC and my 15 core guided biopsy was mostly 4+5's, one 5+5 all grade group 5. Good news is that it's still
marmigs
in
Advanced Prostate Cancer
2 years ago
Fasting. I recently have gone to OMAD.
https://www.youtube.com/watch?v=NuGefQV1Nxk https://www.youtube.com/watch?v=dmDsFU6WMR4 https://www.youtube.com/watch?v=Bg4YXlQGtno https://www.youtube.com/watch?v=6EQmzNgX9oc “By influencing these major cellular pathways, ketone bodies produced during fasting have profound effects on systemic metabolism
https://www.youtube.com/watch?v=NuGefQV1Nxk https://www.youtube.com/watch?v=dmDsFU6WMR4 https://www.youtube.com/watch?v=Bg4YXlQGtno https://www.youtube.com/watch?v=6EQmzNgX9oc “By influencing these major cellular pathways, ketone bodies produced during fasting have profound effects on systemic metabolism
MBAnderson
in
Cure Parkinson's
2 years ago
Why does BAT work in so few?
Bipolar Androgen Therapy (BAT), which entails cycling between androgen deprivation therapy (ADT) and very high doses of testosterone (T) has had disappointing results. No one really understood why only 20-30% of castration-resistant (CRPC) men derived any benefit and why even that was usually short-lived
Bipolar Androgen Therapy (BAT), which entails cycling between androgen deprivation therapy (ADT) and very high doses of testosterone (T) has had disappointing results. No one really understood why only 20-30% of castration-resistant (CRPC) men derived any benefit and why even that was usually short-lived
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Navigating the Hidden Costs of Clinical Trials on Patient Power
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
lankisterguy
Volunteer
in
CLL Support
2 years ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
1259 results
Cure Parkinson's
638 results
CLL Support
619 results
View top 10 communities
Sort by
Most Relevant
Newest