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BAT trial
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
With Xtandi failing and my metastasizes not PSMA avid enough for Lutetium my MO referred me to the Kinghorn Cancer Centre in Sydney to be assessed for a clinical trial involving BAT and Carboplatin (chemo). I am now in the trial and have had my first testosterone injections plus the carboplatin infusion
Bjry
in
Advanced Prostate Cancer
10 months ago
Trial
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Hi lovely ladies, I have been offered a clinical trial as I'm platinum resistant. Can I ask anybody who has done one the outcome and how you felt. Thanks in Advance X
Beoony
in
My Ovacome
10 months ago
A fight was lost today.
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Hopingforthebest1, passed away, peacefully today. His wife was by his side and he succumbed to the cancer. I won’t go into details, but I can tell you what kind of person he was. My dear friend, fought gallantly. He tried so hard to beat this cancer. every test, procedure, clinical trial, etc, was
Trainer40
in
Advanced Prostate Cancer
10 months ago
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WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
Except for a monthly neulasta injection, my Nurex 2127 trial had been going pretty well. My blood counts were good, 13ish HGB 1,80 ALC 150 Plat ANC was always low. My Dr. thought it would be idea to do an 18 month " lets see where we are BMB", no problem. I hadn't had one in about 20 months
steve5441
in
CLL Support
11 months ago
Anyone know any thing about clinical trial BMF-219 a covalent,mein inhibitor
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
I have been in Loxo clinical trial at MSK for 40 mo and have begun to slowly progress. I have been exploring options for next treatment plan.Have been seen at NIH and offered their clinical Nurix trial (degrader) . At vs with my local hematologist (Va Cancer Sp) she referred me to their research dept
Osprey69
in
CLL Support
11 months ago
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
lankisterguy
Volunteer
in
CLL Support
11 months ago
LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
lankisterguy
Volunteer
in
CLL Support
11 months ago
COVID-19 immune cell vaccine eases SLE symptoms in girl: Report
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
Therapy helped 13-year-old by increasing immune tolerance, researchers say
A personalized vaccine kit designed to prevent COVID-19 infection eased systemic lupus erythematosus (SLE) manifestations in an adolescent girl in Indonesia whose symptoms had not been well-controlled with immunosuppressive
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
clinical trial
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
hi all, I have been asked to take part in a trial for new medication with Pantharaclinic by my doctors. I was told this could stop my af permanently. I have a fast heart rate of around 200 to 240. I am going to take part in it, will let you know how it goes.
Byke
in
Atrial Fibrillation Support
11 months ago
There is still HOPE
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
It has been a long time since I posted. First, I want say that I am an 11 year survivor having been diagnosed with Stage 3c ovarian cancer. I’ve had multiple recurrences and I am currently dealing with my seventh. I remember frantically looking for survival stories just to see how much time I had after
yo207
in
My Ovacome
11 months ago
MRD testing not offered
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
I'm about mid way through the O+V journey. I asked my hemo/oncologist about MRD testing when its over and he replied (as I've since ready many times) that MRD in itself is not an indication of my future or if/when I'll need to go back on an active treatment; they will rely primarily on my CBC and any
xpetes
in
CLL Support
11 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
11 months ago
CMV PCR for blood <2.0E+2 IU/mL
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
rcusher
in
CLL Support
11 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
11 months ago
Tara, a chatbot that matches patients to clinical trials
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
11 months ago
Parkinson's Disease Pipeline, Clinical Trials Assessment, and FDA Approvals 2023 (Updated)
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
https://www.benzinga.com/pressreleases/23/09/ab34834243/parkinsons-disease-pipeline-clinical-trials-assessment-and-fda-approvals-2023-updated?utm_source=dlvr.it&utm_medium=twitter
Farooqji
in
Cure Parkinson's
11 months ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
11 months ago
ELON MUSK's BRAIN invention to (hopefully) restore movement to those who are paralyzed!
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
"The first human patient will soon receive a Neuralink device. This ultimately has the potential to restore full body movement," Musk posted on X, the social media platform formerly known as Twitter. " "In a blog post, Neuralink announced that recruitment is open for the first-in-human clinical trial
PDWarrior1900
in
Cure Parkinson's
11 months ago
Online discussion opportunity about Patient Initiated Follow Up (PIFU)
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
NRAS is collaborating with and supporting a team at Oxford who are looking at Patient Initiated Follow-up as it is being rolled out by NHSE and who are proposing to conduct a clinical trial which will include the development of resources for both patients and health professionals. Please see the notice
Aribah-NRAS
NRAS
in
NRAS
11 months ago
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