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Traumatic macular hole
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It Never Rains
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
Sher78
in
Hughes Syndrome APS Forum
2 years ago
Side Effects of Rivaroxaban?
In my early 40's I was prescribed Warfarin after DVT thrombosis in leg and two PE's circa 2004. Had what I would call accepted side effects, feeling cold, easily bruised had to change my diet slightly as grapefruit juice, cranberries, leafy greens were apparently not good whilst taking Warfarin. Around
In my early 40's I was prescribed Warfarin after DVT thrombosis in leg and two PE's circa 2004. Had what I would call accepted side effects, feeling cold, easily bruised had to change my diet slightly as grapefruit juice, cranberries, leafy greens were apparently not good whilst taking Warfarin. Around
Hidden
in
Anticoagulation Support
2 years ago
PAD after Pmr
Hi, I just wanted to share what's going on as I've been so worried and upset. I know I've no right to be, I'm fine compared with many of you, but...So I've nearly come to the end of my Pmr...although I don't like saying it in case I jinx it and it flares! I'm on .0.5 pred, and feel fine apart from being
Hi, I just wanted to share what's going on as I've been so worried and upset. I know I've no right to be, I'm fine compared with many of you, but...So I've nearly come to the end of my Pmr...although I don't like saying it in case I jinx it and it flares! I'm on .0.5 pred, and feel fine apart from being
Blossom20
in
PMRGCAuk
2 years ago
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Switching from Rivaroxaban (Xarelto) to Apixaban (Eliquis)
I am switching my DOAC from Xarelto to Eliquis, mainly for ease of compliance. My eclectic eating schedule/habits made it difficult to rigidly comply with the rather bizarre dosing regimen for Xarelto, and the morning/evening dosing of Eliquis will be much more convenient, hopefully leading to more
I am switching my DOAC from Xarelto to Eliquis, mainly for ease of compliance. My eclectic eating schedule/habits made it difficult to rigidly comply with the rather bizarre dosing regimen for Xarelto, and the morning/evening dosing of Eliquis will be much more convenient, hopefully leading to more
frazeej
in
AF Association
2 years ago
Confused
I have been on high dose pred for 5 months....from60mg down to 30 and back up a few times. I had 2 Actemra injections(epi-pen) and my rheamy says my bloodwork shows almost normal inflammation . I am currently on 35 mg pred and going to 30 next week. I still get a light headache....now my problem is that
I have been on high dose pred for 5 months....from60mg down to 30 and back up a few times. I had 2 Actemra injections(epi-pen) and my rheamy says my bloodwork shows almost normal inflammation . I am currently on 35 mg pred and going to 30 next week. I still get a light headache....now my problem is that
Joseph14612
in
PMRGCAuk
2 years ago
life with depression and a terminal illness.
So after a diagnosis early last year this feb 2022 went terminal as it ended up in end stage failure. As if that isn’t enough toss in depression I developed on top of the anxiety and C-PTSD and to sick to be able to take any meds for the depression.
So after a diagnosis early last year this feb 2022 went terminal as it ended up in end stage failure. As if that isn’t enough toss in depression I developed on top of the anxiety and C-PTSD and to sick to be able to take any meds for the depression.
FrankMarsh19
in
Anxiety and Depression Support
2 years ago
An alarming visit: Rheumy suggested infusing with 500 mg per day for 4 days after I've already been tapering for 4 months
Hi all, I'm a GCA patient, diagnosed in AUG via a positive Temporal Artery Biopsy. I started on 60 mg for 2 weeks, then 50 for 2 weeks, etc. down to 20 mg at which I've been holding for about 5 weeks. Yes, I realize this is a rapid taper, but that's what my GP and Rheumy suggested so I followed their
Hi all, I'm a GCA patient, diagnosed in AUG via a positive Temporal Artery Biopsy. I started on 60 mg for 2 weeks, then 50 for 2 weeks, etc. down to 20 mg at which I've been holding for about 5 weeks. Yes, I realize this is a rapid taper, but that's what my GP and Rheumy suggested so I followed their
montebello
in
PMRGCAuk
2 years ago
Hydroxycarbamide long term
Hi I have taken Hydroxycarbamide for 16 years. I started very soon after being diagnosed with PV at age 51 and take 1000mgs per day. My blood results have remained very stable, only had one rise in my platelet levels when I had a chest infection about 5 years ago. I’ve haven’t had any side effects
Hi I have taken Hydroxycarbamide for 16 years. I started very soon after being diagnosed with PV at age 51 and take 1000mgs per day. My blood results have remained very stable, only had one rise in my platelet levels when I had a chest infection about 5 years ago. I’ve haven’t had any side effects
Wesleygrange2a
in
MPN Voice
2 years ago
Skin Problem
Hi, First time on here although I have been reading a lot of posts over the last few months. I am a 77 year old male taking Apixaban for Pulmonary Embolisms and first started with problems in about Nov 2020. As I now know I had all the symptoms of GCA and then by Dec2020 developed the typical symptoms
Hi, First time on here although I have been reading a lot of posts over the last few months. I am a 77 year old male taking Apixaban for Pulmonary Embolisms and first started with problems in about Nov 2020. As I now know I had all the symptoms of GCA and then by Dec2020 developed the typical symptoms
Hidden
in
PMRGCAuk
2 years ago
New to the group.
I've been dealing with my PTSD, OCD, anxiety, and bipolar disorder for two years now. Lately I have been super frustrated and feel completely alone.
I've been dealing with my PTSD, OCD, anxiety, and bipolar disorder for two years now. Lately I have been super frustrated and feel completely alone.
Shorty0207
in
Anxiety and Depression Support
2 years ago
Apixaban skin reaction?
I’m having the most awful burning, itchy, inflamed skin on my face that’s come on suddenly over the past couple of days. Im wondering if it’s related to the Apixaban that I’m on. Has anyone else had such a reaction? I have tried an otc antihistamine to no avail so if anyone knows a remedy I’d love
I’m having the most awful burning, itchy, inflamed skin on my face that’s come on suddenly over the past couple of days. Im wondering if it’s related to the Apixaban that I’m on. Has anyone else had such a reaction? I have tried an otc antihistamine to no avail so if anyone knows a remedy I’d love
aprilscot
in
AF Association
2 years ago
Housing anxiety and mental health system?
I've been dx with GAD MDD and PTSD. I had crisis starting in 2018 went for help. Disaster, system and treatment (mistreatment some cases) made things worse. Anyone else had bad time? Sorry if triggered anyone.
I've been dx with GAD MDD and PTSD. I had crisis starting in 2018 went for help. Disaster, system and treatment (mistreatment some cases) made things worse. Anyone else had bad time? Sorry if triggered anyone.
PeaceNeed
in
Anxiety and Depression Support
2 years ago
Can Lupron trigger gross hematuria with clots in those men with radiation cystitis? Anyone experience this?
I have experienced 3 bouts of Hematuria with clots this year that sent me to the hospital ER because of blockage. After the first, I was advised I had radiation cystitis, which was 6 years out from salvage radiation. This year I started on Lupron and Xtandi for prostate cancer recurrence and had
I have experienced 3 bouts of Hematuria with clots this year that sent me to the hospital ER because of blockage. After the first, I was advised I had radiation cystitis, which was 6 years out from salvage radiation. This year I started on Lupron and Xtandi for prostate cancer recurrence and had
Teddy28
in
Advanced Prostate Cancer
2 years ago
First post in around two years
I just thought I would drop in and say hi, and good to see some familiar names still around. For six months when I was here previously I tried my best to assist and support others and their queries as a survivor and have continued to do so elsewhere but to a more limited extent. Covid being less
I just thought I would drop in and say hi, and good to see some familiar names still around. For six months when I was here previously I tried my best to assist and support others and their queries as a survivor and have continued to do so elsewhere but to a more limited extent. Covid being less
Shreds
in
Headway
2 years ago
A Tip!
if you have AF ( with a family history of heart disease as I have) and start getting angina-type symptoms, don’t waste time trying to convince yourself that’s it costocondritis as I did. . Get yourself checked out with an angiogram as soon as possible. In my area it has one of the shortest waiting lists
if you have AF ( with a family history of heart disease as I have) and start getting angina-type symptoms, don’t waste time trying to convince yourself that’s it costocondritis as I did. . Get yourself checked out with an angiogram as soon as possible. In my area it has one of the shortest waiting lists
Samazeuilh2
in
Atrial Fibrillation Support
2 years ago
IBS, Inflammation, and everything else!
Hi everyone, apologies in advance I just need to vent! Trips to the GP just feel like I keep landing at dead ends. I've been on Mebeverine for about 5 weeks now. Things are a lot better than they were but I'm still not 100%. Calprotectin levels came back at 94 during my previous test so I was prescribed
Hi everyone, apologies in advance I just need to vent! Trips to the GP just feel like I keep landing at dead ends. I've been on Mebeverine for about 5 weeks now. Things are a lot better than they were but I'm still not 100%. Calprotectin levels came back at 94 during my previous test so I was prescribed
iOwlface
in
IBS Network
2 years ago
Webinar - Biosimilars
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
AS accumulates in the appendix.
https://pubmed.ncbi.nlm.nih.gov/33876851/ the human appendix contains an abundance of insoluble α-synuclein similar to what has been found in the PD brain appendectomy occurring decades before disease onset was protective against PD. Collectively, our results suggest a model where pathological
https://pubmed.ncbi.nlm.nih.gov/33876851/ the human appendix contains an abundance of insoluble α-synuclein similar to what has been found in the PD brain appendectomy occurring decades before disease onset was protective against PD. Collectively, our results suggest a model where pathological
Little_apple
in
Cure Parkinson's
2 years ago
Thought of the day - B12 paradox
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Pickle500
in
Pernicious Anaemia Society
1 year ago
Early Christmas Gift 🎁
I had a real blessing last night!I dreamed about my late grandmother (who was British and helped to raise me). As I saw her, we walked toward each other and she had a big precious smile on her face! Before I reached her, I knew it was a dream, but I woke up with such JOY 🎄🎄🎄 She loved the holidays
I had a real blessing last night!I dreamed about my late grandmother (who was British and helped to raise me). As I saw her, we walked toward each other and she had a big precious smile on her face! Before I reached her, I knew it was a dream, but I woke up with such JOY 🎄🎄🎄 She loved the holidays
HippoChick888
in
Fibromyalgia Action UK
2 years ago
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