I just thought I would drop in and say hi, and good to see some familiar names still around.
For six months when I was here previously I tried my best to assist and support others and their queries as a survivor and have continued to do so elsewhere but to a more limited extent.
Covid being less of a concern than it was two years ago (but still a threat to those of us in vulnerable category), I have now got out a lot more and mixed, even discovering a few other survivors and brain injury or similar afflictions who I do now have much more time for.
(Did anyone see on Twitter the post that Elon Musk's promoted about a single brain cell under an electron microscope, growing additional diversionary pathways? Whether it was fake or not, it highlighted how positivity of the brain can find alternatives and new ways around a problem with neuron pathways. We all need positivity and I think that always makes the day better.
Sadly, and its not just my own observation but that of others too, is the grabbing and aggressive attitudes and behaviour of some others, which is so totally unnecessary. Its a sad reflection on this country that such selfish attitudes prevail.
(It was also the reason two years ago why I stopped visiting this site, as someone was making unnecessary comments about what they planned to do to themselves, which was depressing to those of us who have survived and come through major traumas. We do not need that at all. (Moderators please take note!)
A second chance at life is unique (to us here at least) and one not to be taken lightly.
Anyway, enough of my thoughts…..I hope everyone here is as well as can be expected and progressing. Our issues are not ones that can be dealt with as quick fixes but we learn to live with them.
Best for the coming Festive Season to you all. 👍❤️🌲
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Shreds
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I don't know if I've talked to you before, I apologise for not remember you. I drift in and out of the forum also and in the past have noticed the odd aggressive posts.
I feel we have enough to deal with without people being aggressive on here. This is a place of support , you don't have to agree with everyone but we each have our own beliefs and way of looking at things.
About the pathway growth. That is what I have been told has happened in a way to me. It was explained that the damaged areas and pathways I suffered have either regrow or sought out new pathways. Either way it was a long progress that has been sort of successful in parts.
Dear Shreds, I don't understand the message of your post.
You write: "I hope everyone here is as well as can be expected and progressing."
Yet, if progressing is difficult and we seek an outlet to express our difficulties in hopes of getting mentorship from the experience of others, we should not because it's not positive and "...depressing to those of us who have survived and come through major traumas. We do not need that at all."
Some of us are still smackdab in the middle of major trauma, and this is an appropriate place to share. We strive to get to where you are, but there are no norms of how we get there, and if we're supportive we won't put restrictions on the path each person follows.
I find it uplifting when people help those who are struggling. Often you can't uplift someone without reaching downward.
You take offense to non-positive posts. I take offense to your judgment of what should and should not be discussed specific to our brain injury/tumor conditions on this particular site.
Please inform me if there is a positivity-only policy on this site where people don't often feel too positive as they progress with their challenges surrounding brain injuries and tumors. If so, I will have to leave, because although I am often positive and proud of how I progress despite my challenges, there are definitely times I need to hear from people like you who want me to lift my head and keep moving forward. However, I don't need to be told to shut-up: My brain injury already does that for me.
I didnt give full details of what had made me leave the forum as I didnt feel it appropriate and in itself was devastating for any survivors. I am sure most others didnt need what was posted by that person either. But that I suppose is internet forums for you.
Yes it should be both an outlet and a support. Thats what I perceive we all need. I found it a great place to come and discuss things and I, as well as others, I am sure, have benefitted greatly.
22years ago suffered TBI, spent many years adapting!! Neurons are still re-routing. Definitely a struggle to accept/ adapt, lost many friends but made more new ones!! Anger/ resentment are futile emotions! Some-one gave us a second chance! Accept and USE it wisely!! A chance to redefine y character, jettison the bad qualities and develop new ones!! My parents lost their 1st 2 daughters as babies, then I came along. Whilst in my coma, saw the guy had just buried. Holding them at the pearly gates, keeping St Peter at bay!! I never believed in god, thought from a child if god is good, god is kind? Why take my sisters? Guardian angels saved me, my father 6 times before he died. Makes y think!! Merry Christmas 😘
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Blog on brain injury - who am I?
He's coming home in a couple weeks. 9 months after BI
Lost & Found: What Brain Injury Survivors Want You to Know - Part 2
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