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Switching from Firmagon to Lucrin or Eligard
Hi, this is ALEX from Malaysia. First Dx 2016 psa 8.34, gs 3+4. Had RP 10/2017 with positive margin. Did salvage IMRT 8/4/2019 at psa 2.43 without adt. After 2nd Bcr post Salvage RT, psa rose from 0.05 to 0.94 , I started on FIRMAGON on 8/ 3/ 2022. ( Throughout this 5 1/2 year journey, a total of 4
Hi, this is ALEX from Malaysia. First Dx 2016 psa 8.34, gs 3+4. Had RP 10/2017 with positive margin. Did salvage IMRT 8/4/2019 at psa 2.43 without adt. After 2nd Bcr post Salvage RT, psa rose from 0.05 to 0.94 , I started on FIRMAGON on 8/ 3/ 2022. ( Throughout this 5 1/2 year journey, a total of 4
huraymond
in
Advanced Prostate Cancer
2 years ago
Decipher Prostate Biopsy genomic classifier to identify risk of metastasis within five years
I am 84 (walk a mile a day with small weights) and in good health except for recently diagnosed with High Risk Localized Prostate Cancer with a Gleason score of 8. In ten days I will have completed 45 days of IMRT radiation therapy. I take a monthly shot of Firmagon. They also recommended Zytiga and
I am 84 (walk a mile a day with small weights) and in good health except for recently diagnosed with High Risk Localized Prostate Cancer with a Gleason score of 8. In ten days I will have completed 45 days of IMRT radiation therapy. I take a monthly shot of Firmagon. They also recommended Zytiga and
859115
in
Advanced Prostate Cancer
2 years ago
From EHA June 2022. Treating hypertension in patients receiving BTK inhibitors
My own Ibrutinib induced hypertension has been tricky to treat and Losartan, which did suit me, had to be stopped as it was contraindicated. Now on Amlopidine and it's not effective at all so going back to Losartan now that I'm off Ibrutinib. Interesting in that he says that more than one class of
My own Ibrutinib induced hypertension has been tricky to treat and Losartan, which did suit me, had to be stopped as it was contraindicated. Now on Amlopidine and it's not effective at all so going back to Losartan now that I'm off Ibrutinib. Interesting in that he says that more than one class of
Jm954
Administrator
in
CLL Support
2 years ago
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After the Wedding trip to USA I am now in hospital!
After a wonderful trip , feeling really good, I gradually felt tired and “strange “ over the next 2 days . I took my blood pressure and found it was much higher than usual so phoned 111. When the Dr phoned me it was even higher and he said I should go to A&E and was admitted. I’ve had lots of tests and
After a wonderful trip , feeling really good, I gradually felt tired and “strange “ over the next 2 days . I took my blood pressure and found it was much higher than usual so phoned 111. When the Dr phoned me it was even higher and he said I should go to A&E and was admitted. I’ve had lots of tests and
KerryIreland
in
PMRGCAuk
2 years ago
Any strategies for minimizing side effects of IMRT Radiation or making therapy more effective?
Starting IMRT radiation in 2 weeks. VMAT 20 sessions
Starting IMRT radiation in 2 weeks. VMAT 20 sessions
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Prostap (Lupron) Effects
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Jon1923
in
Advanced Prostate Cancer
2 years ago
Blood Pressure tablets.
Can anyone help in regard to blood pressure tablets that do not have much in the way of side-effects. Currently I am taking Bendroflumethiazide 2.5mg which are fine. Because my blood pressure is now slightly raised I need to take a different tablet. I have tried Amlodipine and Rampril 2.5 mg - both
Can anyone help in regard to blood pressure tablets that do not have much in the way of side-effects. Currently I am taking Bendroflumethiazide 2.5mg which are fine. Because my blood pressure is now slightly raised I need to take a different tablet. I have tried Amlodipine and Rampril 2.5 mg - both
Gunner01
in
LUPUS UK
2 years ago
Healthy Foods To Eat while doing IMRT
I am in the second week of IMRT and my body is going nuts with bloating and constipation. Been taking Simeticona and and Movicol(sachets thatcontain macrogol) as well as a change of diet (no fried foods , no cruciferous vegetables ,alcohol) sine a week before treatment and i am constantly constipated
I am in the second week of IMRT and my body is going nuts with bloating and constipation. Been taking Simeticona and and Movicol(sachets thatcontain macrogol) as well as a change of diet (no fried foods , no cruciferous vegetables ,alcohol) sine a week before treatment and i am constantly constipated
Mischa1111111
in
Advanced Prostate Cancer
2 years ago
Clarification on the timing of ADT
Just started my IMRT treatment. Beginning with the 2nd RT,I started taking Bicalatumida 50 mg for 10 days and then i will get the injection of Decapeptyl 22.5 mg and will continue for taking evry 6 months for a total of 18 months. I am what would be considered in the states intermediate unfavorablewith
Just started my IMRT treatment. Beginning with the 2nd RT,I started taking Bicalatumida 50 mg for 10 days and then i will get the injection of Decapeptyl 22.5 mg and will continue for taking evry 6 months for a total of 18 months. I am what would be considered in the states intermediate unfavorablewith
Mischa1111111
in
Advanced Prostate Cancer
2 years ago
Osteoarthritis and lupus
I was wondering if anyone here has been diagnosed with both? I have lower back pain, but never had any X-ray that shows any degenerative changes. My rheumatologist mentioned last Thursday (over a phone appointment) that he thinks it is osteoarthritis in my lower back. I have significant morning stiffness
I was wondering if anyone here has been diagnosed with both? I have lower back pain, but never had any X-ray that shows any degenerative changes. My rheumatologist mentioned last Thursday (over a phone appointment) that he thinks it is osteoarthritis in my lower back. I have significant morning stiffness
Willow7733
in
LUPUS UK
2 years ago
Pulmonary Fibrosis/Pulmonary Hypertension how long?
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
Little-Lung-Lulu
in
Lung Conditions Community Forum
2 years ago
Long term use of Duloxetine
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Shaz8465
in
Anxiety Support
2 years ago
Worry wart
Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone is at 9ng/dl . My PSA was at 4.19 on Dec. 2021 . My primary dx was gleason 4+3 downgraded to 3+4 by John Hopkins . I had Sbrt , 5 sessions on 2016
Good Morning All , I started my Eligard ( 6 month )on Dec.9 2021, Zytiga ,(250mg ) Prednisone ( 5 mg) on a low fat breakfast on Feb. 1 2022. My Testosterone is at 9ng/dl . My PSA was at 4.19 on Dec. 2021 . My primary dx was gleason 4+3 downgraded to 3+4 by John Hopkins . I had Sbrt , 5 sessions on 2016
reconjj
in
The Roy Castle Lung Cancer Foundation
2 years ago
Start of 36 mo of ADT?
I started on 36 months of ADT in Feb 2020 (Neoadjuvant) followed by 44 sessions of IMRT from May 2020 to July 2020 with Continuous ADT from Feb to now. When does the 36 months start from? From the first injection in Feb or from the finish of IMRT in July. I’ve found conflicting answers on line.
I started on 36 months of ADT in Feb 2020 (Neoadjuvant) followed by 44 sessions of IMRT from May 2020 to July 2020 with Continuous ADT from Feb to now. When does the 36 months start from? From the first injection in Feb or from the finish of IMRT in July. I’ve found conflicting answers on line.
Dracus
in
Prostate Cancer Network
2 years ago
Help
Hello all you kind folk, I wonder if anyone can give me any advice regarding Doxazosin, a medication for prostate problems, now I am female and am concerned That I will suddenly start an urge to go to the pub for a pint and call everyone mate! The medication is prescribed for my very high blood pressure
Hello all you kind folk, I wonder if anyone can give me any advice regarding Doxazosin, a medication for prostate problems, now I am female and am concerned That I will suddenly start an urge to go to the pub for a pint and call everyone mate! The medication is prescribed for my very high blood pressure
Hatten28
in
Atrial Fibrillation Support
2 years ago
Traveling on a plane with liver cirrhosis and portal hypertension
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Lrn13
in
British Liver Trust
2 years ago
Confursed about the Cure?
I am writing from Spain with universal health care . I received a diagnosis and second opinion from Uiversity of Navara for curative treatment and of course one favored RP . The first opinion IMRT + 18months ADT. I am scheduled for RD (dont know when)but on the report I see possible T3? That to
I am writing from Spain with universal health care . I received a diagnosis and second opinion from Uiversity of Navara for curative treatment and of course one favored RP . The first opinion IMRT + 18months ADT. I am scheduled for RD (dont know when)but on the report I see possible T3? That to
Mischa1111111
in
Prostate Cancer Network
2 years ago
Blood Pressure tablets
I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazide 2.5mg tablets. These have been very good. However my blood pressure has risen slightly - I have tried amlodipine 5mg and also Ramipril 2.5mg and I have had side effects from both. My GP is not very helpful. Anybody
I have raised blood pressure. Prof. Graham Hughes recommended Bendroflumethiazide 2.5mg tablets. These have been very good. However my blood pressure has risen slightly - I have tried amlodipine 5mg and also Ramipril 2.5mg and I have had side effects from both. My GP is not very helpful. Anybody
Gunner01
in
LUPUS UK
2 years ago
Hypertension
Recently been diagnosed with cardiomegaly and diastolic dysfunction. Am on my 5th blood pressure medication (tried ramipril, Losartan -chest tightness with both) had amlodipine but water retention and struggling to walk. Put on Indapamide- chest tightness again but reduced fluid now to try bendroflumethiazide
Recently been diagnosed with cardiomegaly and diastolic dysfunction. Am on my 5th blood pressure medication (tried ramipril, Losartan -chest tightness with both) had amlodipine but water retention and struggling to walk. Put on Indapamide- chest tightness again but reduced fluid now to try bendroflumethiazide
gemleanne1981
in
High Blood Pressure Support
2 years ago
Alpha fetoprotein test for cirrhosis patients??
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
teale100
in
British Liver Trust
2 years ago
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