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Tramazoline / Dexamethasone
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Ultimate Update
Dear All, My beautiful "Biobro" departed this world on Monday. He never had pain from his extensive bone mets, and in the last weeks was on low doses of ibuprofen and gabapentin. He ended up on hospice which I would not recommend as they were essentially indifferent and incompetent. I took
Dear All, My beautiful "Biobro" departed this world on Monday. He never had pain from his extensive bone mets, and in the last weeks was on low doses of ibuprofen and gabapentin. He ended up on hospice which I would not recommend as they were essentially indifferent and incompetent. I took
Biobro
in
Advanced Prostate Cancer
6 months ago
Good News Update on my Joe
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
This Friday Joe will get his 4th dose of Pluvicto. His PSA dropped from 7.69 last month to 4.88 this month. He experiences fatigue, which is remedied by dexamethasone on the days he has something he wants to do. Otherwise, he sleeps. No other side effects worth mentioning at this time. I asked for
Cateydid
in
Advanced Prostate Cancer
6 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
7 months ago
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Temozolomide Side Effects
My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had GBM located on his left frontal lobe but due to size and depth could not be operated on. Therefore he had 3 weeks of radiotherapy along with 155mg daily TMZ. He has poor speech and his right arm is paralysed. However this
My dad is on his 2nd cycle of TMZ (300mg)5 days on, 3 weeks off regime. He had GBM located on his left frontal lobe but due to size and depth could not be operated on. Therefore he had 3 weeks of radiotherapy along with 155mg daily TMZ. He has poor speech and his right arm is paralysed. However this
Casper438
in
Glioblastoma Support
7 months ago
Lepto meningeal involvement. No further treatment. Palliative radiation?
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Biobro
in
Advanced Prostate Cancer
7 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
8 months ago
Drug side effects
Last month I went from prediabetic to hitting 300 due to the Dexamethasone I've been having to take for my chemo treatments. My oncologist put me on metformin & it brought my level down, but now I've been in & out of the ER. Once with intestinal issues, once with chronic diarrhea & shortness of breath
Last month I went from prediabetic to hitting 300 due to the Dexamethasone I've been having to take for my chemo treatments. My oncologist put me on metformin & it brought my level down, but now I've been in & out of the ER. Once with intestinal issues, once with chronic diarrhea & shortness of breath
OneLump22
in
SHARE Metastatic Breast Cancer
8 months ago
Similarities/difference with Waldenstroms? ?
I actually have Waldenstroms macroglobulinemia with associated fairly severe neuropathy. I read somewhere it's very similar to CLL with similar or same treatments?Fully diagnosed about 2 years ago, now apparently backdated to 2016 when the monoclonal peak was discovered. Treatments tried; Dexamethasone
I actually have Waldenstroms macroglobulinemia with associated fairly severe neuropathy. I read somewhere it's very similar to CLL with similar or same treatments?Fully diagnosed about 2 years ago, now apparently backdated to 2016 when the monoclonal peak was discovered. Treatments tried; Dexamethasone
Hidden
in
CLL Support
8 months ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
9 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
9 months ago
BAD NEWS
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
If you followed my recent post, you'll remember that I was ecstatic to have had a consultation with the team at Royal Marsden Cancer Clinic, where I was told that my PET scan of June, my PSA of June (4.4) and my overall good health meant that they felt I needed nothing more than dexamethasone and there
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
remedies or enablers
I have been diagnosed with phimosis and been prescribed Betamethasone to apply inside my foreskin and round my glans . This worked to a degree and I can retract my foreskin I little more but not fully , which is stopping me getting a full blown erection. If you have overcome this problem I would love
I have been diagnosed with phimosis and been prescribed Betamethasone to apply inside my foreskin and round my glans . This worked to a degree and I can retract my foreskin I little more but not fully , which is stopping me getting a full blown erection. If you have overcome this problem I would love
JabbeR111
in
Erectile Dysfunction Support
7 months ago
Low Doses of Dexamethasone as monotherapy in mCRPC
Are there any recent studies that I could show to my dad's doctor? I found some older ones, but not the most recent. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4622618/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3436439/ https://www.researchgate.net/publication/5903550_Efficacy_of_low-dose_dexamethasone_in_castration-refractory_prostate_cancer
Are there any recent studies that I could show to my dad's doctor? I found some older ones, but not the most recent. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4622618/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3436439/ https://www.researchgate.net/publication/5903550_Efficacy_of_low-dose_dexamethasone_in_castration-refractory_prostate_cancer
MyDad76
in
Advanced Prostate Cancer
9 months ago
Update after consultation w/Royal Marsden
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The trigger was a marginally raised PSA (now 4.4) and some evidence on more bone mets, failing Enzalutamide and being offered a course of chemo (which
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
Coming off Naproxen safely?
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Finlay66
in
Advanced Prostate Cancer
10 months ago
What comes next?
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
So, de novo, high volume metastatic, diagnosed in April, 2022. Initial PSA 28.2. Started on triplet - Lupron, Abi & docetaxel. Due to liver issues, had to stop abi right before chemo. Restarted abi about 6 weeks after last chemo. at 500 mg, moved to 750 & then 1000, but had to go back to 750 due to high
rsgdmd
in
Advanced Prostate Cancer
11 months ago
Atrial fibrillation after steroids
Has anyone experienced atrial fibrillation after starting steroids? 4 years ago I had steroid injections in both knees, and less than 48 hours later suddenly went into persistent rapid AF, having no previous history of it. I found some Dutch research that found new atrial fibrillation was more common
Has anyone experienced atrial fibrillation after starting steroids? 4 years ago I had steroid injections in both knees, and less than 48 hours later suddenly went into persistent rapid AF, having no previous history of it. I found some Dutch research that found new atrial fibrillation was more common
Belle11
in
AF Association
11 months ago
dexamethasone
My Dad had been having stroke like symptoms with slurred speech and right arm paralysis. He was sent home with diagnosis of stroke with blood thinners and statin following an MRI. However 6 weeks later he was deteriorating rather than improving and re-admitted to hospital. Following an MRI with contrast
My Dad had been having stroke like symptoms with slurred speech and right arm paralysis. He was sent home with diagnosis of stroke with blood thinners and statin following an MRI. However 6 weeks later he was deteriorating rather than improving and re-admitted to hospital. Following an MRI with contrast
Casper438
in
The Brain Tumour Charity
11 months ago
Switching from prednisone to dexamethasone with abiraterone
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
I'm about to switch, not because my PSA is increasing, but because I'm hopeful that dexamethasone may reduce my blood pressure. Is this a sound or stupid reason to switch? Lupron plus abiraterone with prednisone have maintained my PSA < 0.1 (from 111 at DX) for over 4 years. I have all the usual SEs
Gearhead
in
Advanced Prostate Cancer
1 year ago
Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
ctflatlander
in
Advanced Prostate Cancer
1 year ago
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