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No help
Waste of time just told to keep myself dosed up on painkillers till my
tocilizumab
infusion next week....and then wait till see them for my rescore to see if it helping... That's helpful I think not
Waste of time just told to keep myself dosed up on painkillers till my
tocilizumab
infusion next week....and then wait till see them for my rescore to see if it helping... That's helpful I think not
Crazyjo
in
NRAS
10 years ago
Rhuemy visit today
Just been to rhuemy on emergency app due to bad flare up, at hospital tomorrow morning for steroid infusion then try
tocilizumab
again in 2 weeks time.... Just hope this works!
Just been to rhuemy on emergency app due to bad flare up, at hospital tomorrow morning for steroid infusion then try
tocilizumab
again in 2 weeks time.... Just hope this works!
Crazyjo
in
NRAS
10 years ago
Omg another flare up!
Now understand while was feeling low Sunday have woke up today and started a very painful flare up, rang the rhuemy helpline and waiting for call back as been on
tocilizumab
since November and due again in two weeks...
Now understand while was feeling low Sunday have woke up today and started a very painful flare up, rang the rhuemy helpline and waiting for call back as been on
tocilizumab
since November and due again in two weeks...
Crazyjo
in
NRAS
10 years ago
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Anyone on Tocilizumab?
I've had about 7 infusions now, I felt like a mirac!e cure at the time, but now its stopped being effective, everything I seem to take becomes ineffective, Has this happened to to anyone else?
I've had about 7 infusions now, I felt like a mirac!e cure at the time, but now its stopped being effective, everything I seem to take becomes ineffective, Has this happened to to anyone else?
mccpain
in
NRAS
10 years ago
Drugs refused funding...
When I saw Dr Jayne in October he was going to try to get
Tocilizumab
for me but the funding appears to have been refused. They're also not sure they'll be able to get infliximab either and as rituximab isn't licensed for large vessel Vasculitis that might prove difficult too!
When I saw Dr Jayne in October he was going to try to get
Tocilizumab
for me but the funding appears to have been refused. They're also not sure they'll be able to get infliximab either and as rituximab isn't licensed for large vessel Vasculitis that might prove difficult too!
JElsom
in
Vasculitis UK
10 years ago
RA and TB
I went to see the rhummy today prepared to argue my case for
tocilizumab
without mtx when he told me that my blood test that I had before to check that it was ok for this drug came back positive for TB! Chest xray was clear.
I went to see the rhummy today prepared to argue my case for
tocilizumab
without mtx when he told me that my blood test that I had before to check that it was ok for this drug came back positive for TB! Chest xray was clear.
Ozzy
in
NRAS
11 years ago
Anyone been on tocilizumab?
Hi all We had a call on the helpline today from someone wanting to know what being on
tocilizumab
is like. Specifically, they wondered if people tend to feel ill on the day of the infusion/the days after.
Hi all We had a call on the helpline today from someone wanting to know what being on
tocilizumab
is like. Specifically, they wondered if people tend to feel ill on the day of the infusion/the days after.
Victoria-NRAS
Administrator
in
NRAS
11 years ago
Anyone been turned down for tocilizumab because they cannot take mxt with it?
I had a call today to say that it was hard to get funding for me as I don't take mxt. I was on rituximab before but it did not help at all with swollen joints, so I have been taken off it. I am at present just on celebrex and have been since March.
I had a call today to say that it was hard to get funding for me as I don't take mxt. I was on rituximab before but it did not help at all with swollen joints, so I have been taken off it. I am at present just on celebrex and have been since March.
Ozzy
in
NRAS
11 years ago
New treatment - tocilizumab
I'm going to be started on
tocilizumab
as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK or any kind of Vasculitis? Many thanks
I'm going to be started on
tocilizumab
as soon as they have secured funding. Does anyone on here have experience of this treatment for TAK or any kind of Vasculitis? Many thanks
JElsom
in
Vasculitis UK
11 years ago
IT'S HAPPENED - REMISSION WITH TOCILIZUMAB - OFFICIAL
That's when the hand of fortune took over and the chance to have
Tocilizumab
as part of a trial to monitor methotrexate withdrawal. I felt the effects inside two weeks, incredibly quick as these things usually take time.
That's when the hand of fortune took over and the chance to have
Tocilizumab
as part of a trial to monitor methotrexate withdrawal. I felt the effects inside two weeks, incredibly quick as these things usually take time.
harryhunt
in
NRAS
11 years ago
RoActemra (generic Tocilizumab)
For me
Tocilizumab
is a miracle come true. In just under a month there is no trace of my RA except maybe a bit of left over flare damage which is not a problem. My inflammation markers ESR and CRP are 2 and < 1 respectively. I have very little pain, no stiffness and no swelling.
For me
Tocilizumab
is a miracle come true. In just under a month there is no trace of my RA except maybe a bit of left over flare damage which is not a problem. My inflammation markers ESR and CRP are 2 and < 1 respectively. I have very little pain, no stiffness and no swelling.
harryhunt
in
NRAS
11 years ago
THE BIG FIGHT ROUND 2 (cont) THE CYTOKINE KID v INFLAMMATORY JACK
Please warn any of your fellow RA sufferers who like a good bet, to be wary of backing any contestant who is facing an opponent on
Tocilizumab
. This drug is capable of producing miraculous results and you could lose your shirt.
Please warn any of your fellow RA sufferers who like a good bet, to be wary of backing any contestant who is facing an opponent on
Tocilizumab
. This drug is capable of producing miraculous results and you could lose your shirt.
harryhunt
in
NRAS
11 years ago
THE BIG FIGHT (Round 2 of the Tocilizumab Trial middleweight contest cont.)
.....13th Sept It would seem that Inflammatory Jack has developed new tactics to slow down the Cytokine Kid at the beginning of round 2 - going low for feet, ankles, knees and legs more now in a bit to curtail his outdoor activities. There's no doubt the Kid looks like he needs the magic stool after
.....13th Sept It would seem that Inflammatory Jack has developed new tactics to slow down the Cytokine Kid at the beginning of round 2 - going low for feet, ankles, knees and legs more now in a bit to curtail his outdoor activities. There's no doubt the Kid looks like he needs the magic stool after
harryhunt
in
NRAS
11 years ago
THE BIG FIGHT CYTOKINE KID (TOC H) v INFLAMMATORY JACK Round 2 cont....
Looks like they'll be ordering the next (3rd) batch of the Kids wonder supplement
TOCILIZUMAB
(RoActemra) if it carries on being this effective and even better they might taper down the MTX which was the trial they signed up for as a precondition to the big fight.
Looks like they'll be ordering the next (3rd) batch of the Kids wonder supplement
TOCILIZUMAB
(RoActemra) if it carries on being this effective and even better they might taper down the MTX which was the trial they signed up for as a precondition to the big fight.
harryhunt
in
NRAS
11 years ago
ROUND 2 THE BIG FIGHT.
The
Tocilizumab
drip is disconnected and The Cytokine Kid charges straight to the centre of the ring on the offensive. How will Inflammatory Jack deal with this new found aggression. He is not one to back pedal. To be continued.....
The
Tocilizumab
drip is disconnected and The Cytokine Kid charges straight to the centre of the ring on the offensive. How will Inflammatory Jack deal with this new found aggression. He is not one to back pedal. To be continued.....
harryhunt
in
NRAS
11 years ago
THE BIG FIGHT. TOCILIZUMAB -MTX TAPER TRIAL Over 12 ROUNDS (64 weeks) Commentary courtesy Fly on the Wall
Featuring in the Red corner, Rheumatoid Arthritis (Inflammatory Jack) v in the Blue corner, on the
Tocilizumab
Drip, Harry The Cytokine Kid (Toc H for short.) Your referee for this contest is Gayle Githens - Mazer. (Rheumatology research nurse top grade) Round 1 15th Aug. to 12th Sept.
Featuring in the Red corner, Rheumatoid Arthritis (Inflammatory Jack) v in the Blue corner, on the
Tocilizumab
Drip, Harry The Cytokine Kid (Toc H for short.) Your referee for this contest is Gayle Githens - Mazer. (Rheumatology research nurse top grade) Round 1 15th Aug. to 12th Sept.
harryhunt
in
NRAS
11 years ago
Esa tribunal
I am feeling sick with worry plus i have had my
tocilizumab
monthly infusion today so i shall be feeling very tired tomorrow. I shall let you all know how i get on, not feeling very possitive about it :-( xx Alison
I am feeling sick with worry plus i have had my
tocilizumab
monthly infusion today so i shall be feeling very tired tomorrow. I shall let you all know how i get on, not feeling very possitive about it :-( xx Alison
alibromo
in
NRAS
11 years ago
Tocilizumab
Hi has anyone been on the infusion of Tolcilizumab as I am going on this new treatment ?
Hi has anyone been on the infusion of Tolcilizumab as I am going on this new treatment ?
ann57
in
NRAS
11 years ago
Is it me?
I have been on numerous RA regimes, Methotrexate 25mg weekly at the moment and I am waiting to start
tocilizumab
and there is great hope that this will be the drug for me however as we know it could take months for it to be effective.
I have been on numerous RA regimes, Methotrexate 25mg weekly at the moment and I am waiting to start
tocilizumab
and there is great hope that this will be the drug for me however as we know it could take months for it to be effective.
DandyLad
in
NRAS
11 years ago
Tocilizumab or abatacept
My rheumy is giving me a choice of
tocilizumab
or abatacept. Just wondered what everyone's views of them are. Xx
My rheumy is giving me a choice of
tocilizumab
or abatacept. Just wondered what everyone's views of them are. Xx
juju74
in
NRAS
11 years ago
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