TOCILIZUMAB (RoActemra)

[harryhunt]

Here's something to cheer you all up. Just had my 9th Toc infusion and 9th consec month of CRP &ESR of 1 & 2 respect and 9th month of remission without side effects or any infections whatsoever.

[allanah]

Wow Harry! Gives me hope as I'm starting Abatacept soon!, thankyou for this positive post and I'm so glad to hear your good news. Xx

[alibromo]

Hi i have been on it for nearly 2 years now. I dont suffer with any side effects only tiredness the next day. My esr levels are also down but i still suffer with joint pain & stiffness, but i would tell anyone who is offered this to have it. Glad you are going in the right direction Alison xx

[Hidden]

Great news! Long may it last!

[Crazyjo]

I will be having my 5th tocilizumab on weds, my bloods have been good. But still getting stiffness and pain. Especially the last two weeks have been evil. I am glad it working well for you

Jo

[skinnycappuccino]

Hello Harry Brilliant!! I'm in remission too (but on Simponi) and it's sooooooo good to hear that others have similar experieces !! Enjoy! Best, Christine

[harryhunt]

Thank you. I'm sure this condition will be either cured or manageable before too long for most sufferers. I feel really privileged to be on the ACT TAPER trial where the effects of slowly removing methotrexate can be clinically tested. All this research is why there is so much more hope of a better prognosis than ever before. I'm only too grateful I didn't contract this when I was 28 so let's hope your improvement is long term. When you're 60 I'll be pushing up daisies long since. Wonder what they look like from a root perspective.

[watson3 in reply to harryhunt]

Well done Harry and a big thank you for the positive post.

I am due to start RoActemere on the 1-5-14. I have failed leflonomide/Humira/cimzia. I am still on mxt although it has been reduced.

I was not looking forward to starting the infusions. Because I had such a severe reaction to cimzia.

You have give me the courage to try this one with an open mind, will let you know how I get on.

Kindest regards

Carole

[bassiefromholland]

Thnx, I Will start next thursday 16th of april 2015. This gives me hope!

Bas from THE Netherlands